Morning everyone, I managed a full night sleep but feel exhausted. Common as you all know.
Can we discuss all the current drive around positive mental health. It seems to be the thing with ALL health professionals at the moment. Now I'm a very positive upbeat person as a rule and not short on reframing things to manage difficult conditions i.e. Goblin jailers for the pain. Using humour as my weapon of choice in my daily battle.
I'm also a mental health nurse by trade and until July I was a director of a mental health hospital. I only meantion this to show I have experience with mental health positivity.
But unless you have first hand experience of a condition like fibromyalgia it is impossible to comprehend the impact it has on ones life. It is the most debilitating condition and to add insult to injury no one believes you when you say how bad the pain is. And pain is only one aspect of this condition. The cognitive dysfunction is just as debilitating as the physical aspect.
I know positive mental attitude is important and it's easy to say but as we all know it's much more difficult in practice. I find it not only insulting, but lacking in genuine empathy, to keep tell someone 'you must be positive, you must get exercise, do without pain relievers and use positive thinking.
Yes, to a degree it's all correct, I taught and use deep relaxation and visualisation for years for pain relief and with within mental health settings. However, I find it is not very successful with fibro. I can reframe and distract but that action alone is exhausting! And you burn out within a very brief time and end up with flares. I'm also a reflexologist and use it but...the act of given treatment, which I thoroughly enjoy and I find as relaxing to give as to receive, exhausts me. Would I give up my career for this life on esa and humiliation by the redicule if I didn't have to. No, nor would any of you I'm quite sure.
Part of my job role was 'controlled drugs accountable officer' was meant any over use or abuse of prescribing controlled drugs was put under the spotlight by me. I attend 1/4 yr northwest Manchester meetings with all other senior officials. Drs, county pharmacists, chief of police etc. All set up after the shipman case. So I know the discussions around controlled drugs. Pregabalin being one of the most talked about over abuse drugs. There has been a dramatic increase in its use for pain relief and it's causing huge concern. Side effects and cost implications and abuse being the raised concerns. Gp's are under increasing pressure to reduce the medical cost and abuse of these drugs. I don't use it nor would I as I don't want the side effects. I do use lidocaine patches for my spine and the consultants, known my job, as I was still working at the time, told me he was 'warned to stop prescribing them due to cost and NHS financial pressure.
I feel it's important to be positive but never be afraid to challenge the discrimination you are shown. There are many factors at play when professionals see you as a patient and again, I agree there should be rigorous checks to avoid over use and abuses of medications, but please ensure you have a good, honest relationship with your gp. But do not be afraid to insist on current up to date information and proper treatment options.
Perhaps today's positive J word should be non JUDGEMENTAL treatment and a bucketful of kindness.
I felt it was important to discuss the above as I have read so many posts re meds being stopped and quips re positive mental thinking. I do hope I haven't offended anyone with my writing. Remain blessed and as pain free as possible. The goblin jailers are lurking 😉