Over active thyroid : I have just been... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,982 members67,146 posts

Over active thyroid

Jan101 profile image
18 Replies

I have just been told by my specialist that I have a over active thyroid and have to see my GP. Could anyone tell me what they can do for this as I have never had this before? Also what medication do they give you and can it go back to normal. I also want to wish you all well and to be in as little pain as possible.

Jan101 xx

Written by
Jan101 profile image
Jan101
To view profiles and participate in discussions please or .
Read more about...
18 Replies
RayB profile image
RayB

Jan,

It is usually treated with meds to suppress the thyroid or the use radio active iodine and radiation to reduce the thyroid and it's production to thyroxine,, this normally involves taking a small amount of Thyroxine replacement after the procedure.

They can do surgery but this is much less common.

As they have referred you to the care of you GP they are probably recommending Anti-thyroid drugs, for the moment to see how it goes.

Ray

Jan101 profile image
Jan101 in reply toRayB

Hi Ray thank you for your reply. I was worried as I said I have never had this before and the first appointment I can get with my GP is the 19th Dec. Let's hope the tablets work as I would not like to undertake the treatment but if I have to then I will have no choice. Once again thank you for your quick reply it really helps me not to worry. I hope that you are well. Jan 101 XX

RayB profile image
RayB in reply toJan101

Jan,

Were it were myself, I would not be looking at suppression meds as a long term solution.

The best option today seems to be Iodine and radiation,, with adjustment if needed after with some supplemental Thyroxine. They try to get it close with the treatment to keep the amount of thyroxine you have to take to a minimum,, but Thyroxine T4 hormone is fairly harmless in the correct dosage and dose not have the controversy the suppression meds have!

Ray

Leemaree44 profile image
Leemaree44 in reply toRayB

Meds to suppress is the norm. I had radioactive iodine at 25 and immediately ended up with an underactive thyroid which personally I feel is more difficult to control. I had to have a parathyroid tumour removed 3 years ago and my surgeon said that these days, in New Zealand at least, the preferred method is removal of part or all of the thyroid rather than radioactive iodine as it makes it easier to control thyroxine dosage after the op. He also said it was very likely my parathyroid tumour was caused by the radioactive iodine treatment! It was benign but until it was discovered, creates some very unpleasant side effects. Hope your issue is sorted quickly as overactive thyroid symptoms are not nice xo

bluebell99 profile image
bluebell99

Hello Jan101

Sorry you have this to add to your ill health.

I am not familiar with hyperthyroid as mine is under active, but I guess your GP will be able to give you more information. Have you Googled it? That is always my first port of call and as long as you read from reputable websites like the NHS one, they can give comprehensive knowledge about it.

Was the specialist you saw an Endocrinologist? If not then it may be an idea to get a referral to one who deals with these things on a daily basis and could give you options and advice.

I think the main thing is that they will want to get your thyroid working at optimum levels for you.

Wishing you well and hope you feel better soon.

Kay

Hello Jan- its not as bad as you might think, thyroid problems have numerous meds now to control under/over active mainly thyroxine, you might have to keep going back to g.p until you get a good balance of meds to control/supress the problem but you will soon be back to normal, can I just say to you Watch the diet so as to avoid weight gain!

peck profile image
peck

HI Jan101 , I have under-active. thyroid and take Levothyroxyne, again mine is under-active.....I've been on meds for about 8 years and it has never checked as normal.Its always been the same med just different dose, and this med has to be adjusted VERY carefully.Im sure your GP will tell you this as well.I live in the US and my GP treats mine but don't know what kind of doctor treats Thyroid in the UK.Its my understanding I will take meds for this the rest of my life, but that is me.Good luck with this, Peck 🐤

Jan101 profile image
Jan101 in reply topeck

Thank you for your reply. I saw doctor yesterday and she said that the thyroid was normal in my neck and it's the one in my brain that is showing that it is over active and she would leave it for now to see if it settles down on its own and would do more blood test in 3 to 6 mths. I do get confused as this is really the first year that I have been so ill with so many different things. This really has not been my year. Feeling really sad 😢 I do hope that you are feeling the best that you can. Take good care my friend. XX

hebden profile image
hebden

Sorry you have something else to contend with. Might be worth joining the Thyroiduk site on here. They will be able to help. Ive found they really know their stuff.

Jan101 profile image
Jan101 in reply tohebden

Thank you for your reply. I will definitely look at this site as I know nothing about thyroid. I hope that you you are feeling the best that you can. Take good care my friend. XX

TheAuthor profile image
TheAuthor

Hi Jan101

I am so genuinely sorry to read that you have been diagnosed with a Overactive Thyroid, and I want to sincerely wish you all the best of luck with having this treated. I have pasted you a link below to the NHS Choices cache on treatments:

nhs.uk/Conditions/Thyroid-o...

All my hopes and dreams for you

Ken

Jan101 profile image
Jan101 in reply toTheAuthor

Thank you for your reply. Saw doctor yesterday and I am totally confused. She asked if there was a history of thyroid problems in my family I said no. This is where I got confused she said that my thyroid in my neck was normal but the one in my brain was over active. So she said that she would leave it just now as I have been very ill for a year and it could settle on its own and she would do more blood test in about 3 to 6 mths. Is thyroid serious if it is not treated? She also knows that I am still in bad pain in my hips. Also thank you for you link I will have a look at that also. I hope that you are feeling the best that you can. Take good care my friend. XX

hebden profile image
hebden in reply toJan101

Sounds like she meant your pituitary gland but I don't think doctors get much training in thyroid issues. Thyroid uk will give you loads of info. good luck. hugs Joolz.x

Jan101 profile image
Jan101 in reply tohebden

Thank you Joolz I will have a look 👀 as I came out totally confused and was not sure what she was on about as she only said that she would do more blood test in 6 mths. Thank you again. I hope you are keeping well my friend. X

hebden profile image
hebden in reply toJan101

They do like their blood tests don't they? Its about time doctors started to look at symptoms again. Good luck. Hugs Joolz.x

TheAuthor profile image
TheAuthor in reply toJan101

Hi again Jan101

I have pasted you a *Goolge Search relating to thyroid hormone deficiency to the brain. It does not say it is dangerous though:

*Thyroid hormone deficiency to the brain during development is caused by iodine deficiency, congenital hypothyroidism, and maternal hypothyroidism and hypothyroxinemia. The sydromes of Resistance to Thyroid Hormones due to receptor mutations, especially TRα, cause variable affectation of brain function.2 Sep 2015

Good luck my friend

Ken x

Jan101 profile image
Jan101 in reply toTheAuthor

Thank you Ken for the information. You have put my mind at rest. I have been awake since 3.30 this morning worrying as I was totally confused when I left my GP as I thought that there needed to be something done instead of waiting 6mths for another blood test. I must say I am not the best when it comes to understanding medical terms. Because when I see my GP she tends to also talk about everything else that has been happening to me this year so you can see why I come out so confused trying to take everything in. But I feel better now and will just wait for the blood tests to see if it had settled. Thank you so much I really appreciate your information. I really hope that you are feeling the best that you can. Take good care my friend. 😘 XX

TheAuthor profile image
TheAuthor in reply toJan101

Good luck my friend x :)

Not what you're looking for?

You may also like...

Under active Thyroid and Perimenopausal

Interested to find out how many Fibro sufferers have problems with their Thyroid? Also been told...
Macberts profile image

Under active thyroid

Can this be misdiagnosed as Fibro? Is there a connection between the two? Do any of you have...
weetam profile image

keeping active.

I am off to a circuit training class tonight, I go regularly. It hurts like hell the next day and...
fibrodude profile image

Under active thyroid blood test

Hi all wondering if anyone can help me my 15 year old daughter has fibromyalgia I asked to have a...
Hollie121 profile image

Having fibromyalgia over 20 years

The doctors that said I've had fibromyalgia over 20 years untreated here in the states they don't...
Carlwolf profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.