fibromyalgia/CFS

[1499]

Just new. Struggling with fibromyalgia pains looking for any tips and help that is available thanks.

[Hidden]

Hello 1499 and welcome. Sorry that you have this horrid illness.

I am afraid that it is such a complicated illness a few hint and tip wont help.

This illness is different in everybody and so each of needs different treatments. It can take a long time to get you sorted out with meds. you also have to learn how to control it by pacing. For now have a look at our mother site. The link is fmauk.org.

Come back to us with as many questions as you like and as often as you like.

[1499 in reply to Hidden]

Hi There! Thank you for that I will look on the mother site. I do get the monthly Fibro Magazine which has useful advice but Flare-up at the moment seems to be the worst I've had. Had a recent bereavement and dont think this has helped. It is such a weird painful condition. I try to be as active as I can and find it hard to pace myself , and tend to catch up with things when having a good day. When you are having a flare-up you think to yourself how mad you are for doing what you do!!! I will never learn lol! Hope you are well, regards!

[Hidden in reply to 1499]

I am not too bad. It would be nice to get rid of these concrete boots so that i could at least manage to get to the kitchen without stopping.

[Trikki]

Hi....Mayrose is right in what she says....I think you are beginning a long road of searching what is right for you. We all react differently to the meds prescribed for us....some of us don't sleep at all well while others don't seem to have that problem...I think we all suffer from chronic fatigue and pain....Do look at all the post and mother site as you will then have an idea of what can and cannot be done for this condition. I wish you a good day and hope we hear from you again....we also have a good giggle at times which is so important to keep us sane (well almost sane!) xx

[1499 in reply to Trikki]

Thank you Trikki for your comments it is such a weird condition! Like most fibro sufferers you are looking for the magic pill lol! especially during the flare-ups. I get the Fibromyalgia Monthly magazine which keeps up to date with anything new at times and you can also get it online if you subscribe. I totally agree that we are all so different with our symptoms. At times i always say "it steals away your life " but there are so many people out there with cancers etc., who would gladly swap with me. I was being sent to a Neurologist as suffered for years before I went to see a GP only recently (diagnosed 7yrs ago) and feel there is maybe osteo or something else going on especially with my knees as they lock when I kneel and its so painful to stand up. I try to avoid kneeling and am not really overweight. Was now told Neurologist dont see Fibro patients and am now being referred to a pain clinic though my practice nurse is going get my knees x-rayed. I take electric type shocks in my knees and it affects me walking for any length of time. Some days are better than others. Dont know if anyone has similar symptoms?. Thanks for listening hope you are well? regards

[Hidden in reply to 1499]

Yes I get the electric shock bone on bone feeling mine is osteo arthritis and it really hurts a lot had it since I was 13 I am now 47 x

[1499 in reply to Hidden]

Thank you for replying I am getting my knees xrayed so hopefully I will know whether it is osteo or fibro related. Keep well! x

[TheAuthor]

Hi 1499

Welcome to the forum and it is wonderful to make your acquaintance. I have found that when my medication isn't helping much that my TENS Machine helps me personally. I do agree with Hidden however, as we all experience Fibro differently and some tips may not work for you? I want to sincerely wish you all the best of luck, and please take care of yourself my friend.

All my hopes and dreams for you

Ken

[1499 in reply to TheAuthor]

Thank you so much for such a nice message! I Lost my husband 6 months ago who suffered for the last 3years from 2 forms of cancers, and the flare-ups seem to have been the worst I have had in a long time and am at a low ebb as you can imagine , trying to get on with things as best I can. The fibro seems to be worse than ever, really hard to cope with, and my GP thinks the grief isn't helping. Have only been on pregabalin since April as stopped taking amitriptyline about a year ago and they definately help the pain but have some side effects though nothing too drastic. Really dont want to be on medication if I can help it. I read an article that said fibro sufferers should not eat "Grains" but I haven't tried this as yet. Could you advise what kind of Tens machine you use as there are so many out there. Keep Well!

[TheAuthor in reply to 1499]

Hi again 1499

I really am so genuinely and sincerely sorry to read of the sad loss of your beloved husband and my heart truly goes out to you my friend. I think your GP is right as the grief must increase your pain a great deal more.

I have tow TENS Machines. One is a 'bog standard' 4 pad machine that I use on my nerve damage and Fibro anywhere below my chest and the other is a more specific 2 pad machine that I use on my neck and for headaches and migraines. I have found that the cheap machines work just as well as the expensive ones.

I want to genuinely wish you all the best of luck, and please take care of yourself my friend,

All my hopes and dreams for you

Ken

[1499 in reply to TheAuthor]

Thanks so much!!!

[TheAuthor in reply to 1499]