Hello : Hi I'm new here..I'm 51yrs old... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hello

Doyah1 profile image
14 Replies

Hi I'm new here..I'm 51yrs old and I've been battling health issues for the past 20yrs..after many Gp visits, and tests I have finally been diagnosed with fibromyalgia, which my daughter has too..I look forward to chatting with people and hope to get some insight in dealing with this condition that has taken over my life. Thankyou.

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Doyah1 profile image
Doyah1
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14 Replies
Robbie138 profile image
Robbie138

Hi Doyah 1, welcome to this wonderful forum, you should meet people that's always willing to chat. We are open 24/7. 😊

angiesmith50 profile image
angiesmith50

Welcome sorry you have fibro but I bet your relieved to finally get a diagnosis. Your daughter has it too how sad. We're all here to help and support each other. xx

Trikki profile image
Trikki

Welcome Donah.....So sorry to hear both you and daughter have fibro, but you have come to the right place for info. support (when you are down!) and a few laughs in-between...!I really hope you get as much from these fibro friends as I have...x

neesey1005 profile image
neesey1005

So sorry you have fibromyalgia but welcome to the fibromyalgia gang !!!!

hebden profile image
hebden

Welcome Doyah1. You've come to the right place for help, support or just to let off steam Gentle hugs Joolz.x

frances1 profile image
frances1

Welcome big hugs

Flyby7 profile image
Flyby7

I have fibro as well it makes me tired I have other conditions as well cops arthritis etc which all don't help but you have to take it easy sometimes that helps

Bambamsnan profile image
Bambamsnan

Hi Doyah1 hope you are OK and welcome to our friendly forum I'm so sorry both you and daughter are suffering with fibromyalgia it's a cruel illness I'm sure you will lots of help and advice on here it's hard when you have no name for your suffering then you get a name and you don't no wether to be thankful or not ☺

Doyah1 profile image
Doyah1

Thankyou to everyone for kind words. You are all such lovely people. Can I ask pls, does anyone have jumping muscles and body tics with their fibromyalgia

ErosisSore profile image
ErosisSore in reply to Doyah1

Hi Doyah1

Welcome to the forum. I too have been recently diagnosed with Fibromyalgia. Yes I have the jumping muscle and body tics all the time especially while I'm relaxing or trying to sleep. These are accompanied by pain, cramps, tingling and pins and needles. I find that Amitriptyline does help with this at bed time but it makes me very groggy for days after. My right arm was twitching so much the other night I thought my elbow was going to fly off....lol!

All the best

Jo x

Doyah1 profile image
Doyah1 in reply to ErosisSore

Thankyou for replying. That's exactly what I have, my right toe is sensitive and I also have cramps and pins and needles. Sometimes it feels as if someone is holding a flame to my toes and walking is agony as my feet are so painful. I find the symptoms hard to explain, but it feels like my body has something living in it and it just attacks everywhere. I feel like I have poisonous blood..sorry for my words of explanation, but I don't know how else to put it. Very best wishes to you. X

Kjb121 profile image
Kjb121 in reply to Doyah1

Yes I do also have painfull muscle spasms and feels like something is crawling over my skin I have only recently been diagnosed after nearly 3 years of every test under the sun. Still find it hard to believe that fybromyalgia could cause me so much illness still a bit in shock and worry its something else but when I read things on the site It all starts being put in to place and how bad you can be with it.

Doyah1 profile image
Doyah1 in reply to Kjb121

Hi kjb121

I have been scared for many years so to finally have a diagnosis has relaxed me a little..im so glad to have found this forum with such lovely people coming forward to help. It's an unpleasant thought knowing this is going to be our life and is unlikely to ever go. I have been reading through posts and like you have found very similar symptoms which has def helped me to trust the diagnosis and yes it's a bit like a jigsaw and u start to see the bits fit together..lots of love x

TheAuthor profile image
TheAuthor

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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