I was officially diagnosed with FM several months ago and was lucky enough to be given a 6 week course with physiotherapists for exercises and education in order to gain the knowledge to help my self.
I'm sure everyone here is aware of the effects it has on the mind and body, how good days go to bad so quickly
What I'm looking for are some positive stories, what's helped other get up and get going each day.
I'm on the weight loss forum to, I have a 7 year old girl who is my whole world, I need my energy and health to keep up with her.
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HelenJ85
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Hello and welcome to the forum, in answer to your question the main thing I do each day is to go through all the movement I was taught at physio, this involves all joints and gentle stretches, I use resistance bands, just stay as mobile as possible xx
Hi All, I'm a technophobe & newby on this site - hope someone is receiving this.
Sorry not positive right now too many aches & pains, mental & emotional confusion & despair.
After 4 years of Medical Consultants making me feel like a hyperchondriac due to my complex symptoms I was eventually diagnosed with FM 12 mths ago. A health Professional myself I have to admit I had never heard of FM until then & didn't want to read too much about it because I was even suspecting a psychosomatic condition myself.
I have worked in the NHS part - time for 20 yrs now but I can no longer cope with going to work due to the fatigue, persistent aches & pains & sporadic confusion in my thoughts & speech which freaks me out. I feel I am losing myself !
I would be interested to know has anyone found there to be a link between FM & low Vit D & or the taking of Warfarin . I'm on it lifelong after DVT leading to sub massive bi-lateral PE's
I cannot continue to work & need to be retired on the grounds of ill health which would only put me on the breadline anyway but better than not . Any advice greatfully received.
Its sounds as if you really have had enough! We will all completely understand as at some point most people have had that feeling with Fibro,
I have found that the Vit D does help, but I do think you can not beat a healthy diet with plenty of natural nutrients and then take any thing extra as a supplement, as that is how they are intended to be used.
I hope with some rest and relaxation you can start to feel a little better, he some 'me time' and don't try to keep up with everyone else. xx
Thank you for your response , I've just returned from month resting in the sun, eating lots of salads & I'm as brown as a berry yet still feel exhausted & Vit D remains low ?
Will research into why that is because Dr's don't seem to be able to explain why.
Yes I worked for nhs too and was retired on medical grounds. Yes it's very hard financially,limp through from month to month as only get nhs pension. Got refused pip and cannot get pension credit as not of state pensionable age.
Still better than working though I just couldn't do it anymore and the best thing for my health is being able to sleep when I can in the afternoon due to such chronic fatigue.
I can rest when I need to and potter about and walk the dog when I can.
Best thing I ever did for my health was to retire.......good luck but I'm sure your body will make the decision for you.
Look after yourself,why flog yourself half to death just for work? Is it really worth it?
I thought not ........take care of yourselves my fibro buddies xxxxxx
Thank you so much I feel you really get where I'm coming from & yes after years of pondering my body has made the choice of retirement for me. I need to rest when I need to rest & I can't go that whilst working.
I have my appt next week with the Occupational Health Dr who in the past has made light of my symptoms telling me to " use it or lose it "so highly unlikely that she will recommend retirement on grounds of ill health.
I do believe there is some small link. I had a test about a year or so ago and it was only 28, my gp said it was supposed to be no lower than 65. I am now on prescription vita d and folic acid.
Also, I am part of research with Kings College as they are looking into the link between FM and genetics!!?? Interesting!
There is a link between Fibro and low vitamin D, doctor gave me a three month course of vit d and now I take multi vitamins. Fibro is not an easy condition to live with especially as you don't know how you'll feel from one day to the next. It is difficult going from having a salary to benefits and realising that you now have to budget even more. Good luck xx
I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted fro you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:
I personally have multiple health conditions including Fibro, COPD, Asthma, Arthritis, Sciatic Nerve Compression, Migraines and No Coccyx to name a few. However, what motivates me everyday is my dear lady wife who suffers badly with Multiple Sclerosis and needs me, and of course, I will be there.
I want to sincerely wish you all the best of luck, and please take care of yourself.
I have recently started doing more exercise which can be the last thing you want to do when feeling ill but it has actually helped me quite a lot. In particular I find swimming very good.
I also think that a positive attitude helps. I try to avoid negative thinking although of course it's not always possible with Fibro, staying as upbeat as you can certainly helps.
This forum and the wonderful, strong and often funny folk here helps me lots with that!
Wishing you a great and as pain free as possible day.
Welcome to the Forum. I do think a positive attitude helps. I had ME for 20 years, Fibro for 6. I was a single parent when I had ME, and bringing my son up was very hard, but also a great joy. I think it motivated me to fight on and enjoy life as much as I could. Life is short and somehow we have to find the best in it we can
Fibro is limiting but I refuse to be defined by it. There are still much that we can do. I find that gentle exercise helps, careful diet. I use relaxation techniques and acupuncture at times. There are ups and downs , and everyone's illness is different, but I still manage much of the time to have a satisfying and productive life. I wish you all the best, Hilary x
I have a whole shopping cart full of problems besides fibro and still find I am doing just fine. All majors stressors in my life are now greatly reduced, and with that change my pain is reduced drastically. I highly recommend looking closely at the major stressors in your life and making any necessary changes to eliminate or reduce them and you'll find your fibro pain reduced greatly after a few months of this new lifestyle. My other diagnoses' effects have also improved quite a bit. My flare ups aren't as bad as in the past. I'm amazed at what is happening to me. I've eliminated several meds and reduced a few more. I'm on less than half of my anxiety medicine. I don't need my muscle relaxer for my fibro anymore! I don't need my masseuse to work nasty knots of pain out of my whole body anymore! It's a new kind of life I never would have thought possible. I hope you can live this way, too.
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