Newbie

Hello just quick question. As i havnt got a formal fibromiliga diagnosed. Does anyone find the pain and numbness move around your body and have good days? I have mainly my back and hips tho now its more my legs and arms that have started to feel it too. Most of the systoms match me but i dont want to go to the doctors again and also my family doesnt believe me either has anyone else had problems with awkard family? Thanks for reading a newbies rant :)

11 Replies

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  • Sadly, your situation is quite common. People can wait for years to finally get an official diagnosis. There are so many symptoms, they come and go or come and stay and different intensity regarding daily fatigue, pain etc. etc. When family members are not supportive either it's an awful lot to contend with!

    This Website is fantastic. Members are supportive, understanding, and can share info. so that it helps just to know you're not alone and you are not going crazy!

    I wish you well, i'm sure you will get more responses and I hope you feel welcome.

    Tulip :) xx

  • Hi there

    Firstly, sorry to hear of your problems.

    Please go back to A dr. Fibro has lots of symptoms and not everyone gets all of them or some of them. It can also take years for symptoms to appear and get worse.

    I do get numb in places and yes it does go through phases of the pain being tolerable and times when you can't cope.

    If your dr doesn't do anything, change to another one as fibro is recognised by the NHS, they have a page on the web about it and the help you can get.

    As for your family, sometimes it's hard for people t accept thing like chronic pain when we look normal, eg without a cast on a broken limb. I think the best support I've had is from this site, as other sufferers understand you.

    Take care and keep pestering the Drs, lots of us have had to. Good luck.

    Best wishes.

  • Hi Elenio

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I am so genuinely sorry to read that you are suffering and struggling, and many sufferers do go through this. However, Fibro symptoms are also very similar to other medical conditions and so it could prove beneficial to get a proper diagnosis.

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • It's the only good thing about Fibro, the variety! It's usually damp weather that affects the intensity for me & some others l know, but l never know from one day to the next where it will hit. There are the few occasions when l am free from pain, but those are the worst days in a way because l get lulled into a false sense of security & try & catch up on all the things l need to do... then l end up doing a great big zilch for the next three days, so be warned!!!

  • I also understand how frustrating it is when family or partner doesn't appreciate how much constant pain and unhappiness fills your life when Fibro takes you into it's clutches. Love yourself lots & often, be kind & gentle with yourself and rememer.... you have the right to say NO, even when you want to say Yes, cos you have to look after your Fibro as well. Don't fight it cos you will waste your energy that way & that is a precious commodity. Don't expect too much of yourself and delight in what you can acheive, even if it is just getting up to go to the loo. "Yesterday is history; tomorrow is a mystery and today is a gift. That's why is is called The Present." Eleanor Rooseavelt. :-) Hugs, Jacqui.

  • I would go to your gp with the information on fb and the medication that helps mine is helped by amitriptyline, Phenergan at nt to help your brain relax alongside them are painkillers blood pressure tablets but there are days that you think nothing working and sleep for hours and feel as iv been hit by a bus and most affected is my right hand side just texting this my wrist hand and shoulder is muscular pain inside but outside I look as though nothing wrong so go to go with all information on it if you would like the names of the tablets I use let me know, granrain

  • We didn't believe my darling aunt, neither did her doctor and the hospital carried out all sorts of tests and then suggested it was a psychiatric problem! She was in so much pain and lost so much weight we were all very worried about her...she suffered like this for about a year.....sadly she died alone of CANCER so YOU MUST go to the doctor, they make mistakes too and as for your family, they are worried and would be happier not to worry about you. Take care. This is not to scare anyone but I miss her so much and would hate for anyone else to go through the pain she did and the guilt and loss we feel.

    Flossie20

  • Thank you for all ur welcomes and comments im currently changing doctors as other one is a bus journey away and when your tight for money i seriously cannot walk it. Other problem is i have a 2 year old and the tablets i have tried many me very sleepy on top of the sleepness i feel already haha. Im hoping to find a different gp that unstands and get my family to too.

  • Hi again Elenio

    I genuinely hope that you get registered okay with your new doctors and please go and tell them exactly how you are feeling? I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi Elenio,

    The symptoms you describe are very much the case with Fibromyalgia. Definitely change doctors if you can. My GP surgery is terrible and i am going to change! Pain and numbness can affect any part of your body. The numbness came much later for me.

    I do have a supportive family but my husband needs to be reminded every so often! I share all of the chores with him and the care of our 2 year old daughter. On some days i find that difficult.

    Good luck with everything xxx

  • Thank you all for kind words i think it will be a step in right direction and not just because im 'lazy' as some think of me

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