Fibromyalgia and A.F

Fibromyalgia and A.F

Hi,

Let me firstly wish each and everyone of you Happiness and good Health for all of 2015...

I don't know where to begin with this post and will endeavor to make it informative without waffling on...

Many years ago in the early 80's following a very long period of illness that baffled the Physicians I was eventually diagnosed by a consultant in Rodney Street Liverpool as having Fibromyalgia as well as multiple food and environmental allergies consequently admitted to Seffton Hospital for several weeks under the consultants care...I was educated to a new way of "coping" with this painful condition whilst as some of you may know was not then recognized by many medical professionals ...and indeed even to the day many Physicians have not acquired the broad knowledge necessary for understanding of this disease....I was luckily to find an eminent Physician who fully understood and guided me for several years...

The years passed by I continued with my careers, managing the condition without very much medical intervention just the occasional Voltarol for pain relief...

As some of you will know I was diagnosed with PAF nearly three years ago followed by an PVI Ablation at Liverpool last August...

Looking back I feel I have had AF for many many years prior to being diagnosed mistaking all my numerous symptoms with Fibro...

I have these past few weeks had a really bad flare up which my GP prescribed Amitriptyline which has done nothing for the pain but has floored me so today just flushed it down the loo...My heart is beating irregularly at times but whether this is to do with the meds,AF or Fibro I don't know...

Does anyone of you kind people out there have both these conditions also and if so I would much appreciate if you could give me some ideas of pain management...

I more or less stick to a macrobiotic diet and prepare my food fresh daily without additives or preservatives this has been my stable diet for 30 yrs or so, but of course its been Christmas and I am only human and only so much willpower whilst I managed to stay Alcohol free my willpower did not stretch to the cakes and chocolate....

Have been referred to Walton Hospital for pain management just waiting for an appointment...

Well there we are I hope I ain't bored the pants of you...

Carol...

10 Replies

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  • sorry wrote quite a long reply and it has disappeared.

    Just to say really all the best and hope you find something to help you soon.

  • Hi caromia

    I am so sorry to read of all of the pain and suffering that you have endured, and I genuinely hope that you can find the answers that you so desperately desire and deserve. I do not suffer with AF myself, but I understand what a serious issue this is.

    I have pasted you the NHS Choices link to Amitriptyline and I would discuss with your GP and / or Medical Specialist if you should be taking this or not with your condition?

    NHS Choices - Amitriptyline

    nhs.uk/medicine-guides/page...

    I want to wish you all the best of luck with this.

    All my hopes and dreams for you

    Ken

  • Hi Ken!....What is AF?

  • Hi ninjananna

    AF is Atrial fibrillation.

    Atrial fibrillation is a heart condition that causes an irregular and often abnormally fast heart rate.

    Take care

    Ken x

  • Thank you Ken and to everyone else who responded to my post...I am new to this site as my main health concern for the past few years has been the Atrial Fibbulation and ignoring the symptoms of Fibromyalgia ...

    Wishing you all a pain free year....

    Keep well.

    Carol...

  • Thank you caromia and a happy pain free new year to you also.

    All my hopes and dreams for you

    Ken x

  • I always hesitate to write about Meds as we all seem to have such radically different reactions but Amiltryptaline was a disaster for me. I was almost catatonic on it. I've had the normal life sadnesses and anxieties but this was the reaction from hell. I've read others here who have found it good for pain with no adverse side effects, so hard to call it really. it did help with pain mind you but the cost to me was high.

    I know so many of us have very low blood pressure so just wondering if that can start the AF, it would make sense as the body is struggling with low blood supply.

    I went to a well known FM doctor in Seattle years ago, he has since moved, and he put me on Pindolol, which is a beta blocker. It did work to keep me from being faint at work a lot but as I'm in Ireland I couldn't get a refill, my doctor is not on board to say the least.

    Some say to drink more water and increase your salt intake, Dr Nancy Klimas I believe is one of these doctors who recommend that. Healthy salt of course, the heart thing is scary and very limiting, I would ask for a 24 hr monitoring device maybe.

    Best to you. helen

  • I was offered this in a very low dose for pain on a night. I did not take it as I knew it was an antidepressant.

  • Hi, Caromia, I have fibro and AF and Parkinson's. I take Digoxin and Sotalol for the atrial fib. I agree with

    Sesame about the 24 hour monitoring device. I recently carried a heart monitor for 30 days and the info

    it recorded when I had an AF event gave my cardiologist a better insight into my condition and he gave me

    the prescription for Sotalol. I hope you find relief for your pain soon.

  • Hi Caromia - I'd try putting this info on the AF site if you haven't already. There's a drug you mentioned that rang a bell & I may be wrong but I'm sure the AF lot will let you know. As far as the pains concerned I personally find paracetomol my best help- but I'm not sure my liver feels the same - All the best with the AF site. Take care Ann

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