I am new Can anyone help me i have just diagnosed with Fibromyalgia after several years of pain disorder and finding out i have cysts on my kidneys, i am having a lot of rib pain and i am so cold all the time my body is freezing even to touch can anyone give some advise please,

My husband is finding it hard to accept as well want talk to me about it just tries to shut it down and i feel like im going mad .

The Doctors and health prof made me feel like i was hypercondryacte sorry for the spelling

6 Replies

  • Hi smurf- its awful its taken so long to diagnose you, I guess its if you have good medics with the knowledge in your area! as for your rib pain, ?all over rib pain or in certain areas? Ribs mostly look after our heart & lungs, kidney-well a bit further down at the back.. Rib pain can be rheumatic and muscular, does the rib hurt when you breath in? if it does then go to A&E and ask to be xrayed or scanned to rule out anything nasty. Do you take pain relief? I use a warm water bottle stuck up my bra all day I replenish the heat to keep me pain free, I also stick it down the back of my knickers for low back pain.. I,ve got TENS machine too that gives you the freedom to walk around wired up, they do give relief too. The TENS goes with me in my handbag on my travels, I have to pads stuck where I usually need them and leave the wires free until I need to hook up to the machine, its so small it clips to your clothes or sits in a pocket.. It has been valuable to me.. keep intouch.. low price on the net (Ebay)

  • Hi Smurf. Before I try to help, welcome to the forum family. As you will have guessed we are all Fibro sufferers with most of us having various other medical problems as well. One of our volunteer admin members will give you the official welcome when they are able.

    Fibro often goes hand in hand with a problem to do with the ribs, the name of which has totally left me lol. But I'm sure that someone will be able to give you more info than my foggy brain is capable of at the moment. It's not something that I suffer personally.

    I think many of us can relate to hubby not being interested. It could well be that he hates to see you suffer and can't do anything to help. Try to have a chat with him when the right time appears ask him how he feels about what you go through and tell him that his reaction is frightening you. Fibro really can be 'the elephant in the room'.

    Hope you get some useful help soon 🐸

  • Hi there

    Welcome to the forum :)

    You are not alone in having suffered for some years before finally getting a definitive diagnosis, so many of our members will empathise with you there.

    If you have a look on our mother site you'll find lots of information on Fibromyalgia including some sheets that you can print off that you could show to your husband

    For internet safety reasons it is usually best to lock your posts.  Locked posts stay within our forum community whereas posts that have not been locked are open to anyone who has access to the internet.

    There are simple to understand instructions on how to lock posts on the right of your screen under Pinned Posts in blue.

    As to the problems you are experiencing at the moment with rib pain I think the term Sorebones may be searching for is Costochondritis.  This is when there is inflammation in the chest wall.

    However any form of chest pain should always be checked out straight away.

    Have you spoken with your GP about this pain?  It may be that he/she will want to send you for an x-ray and or ECG.

    I personally suffer from feeling cold all the time.  It is something very common in people who have Fibro.  It seems some people are hot all the time, some cold and others suffer with both. 

    I look forward to chatting with you again.

    Wishing you less pain and more peace

    Lu x


  • Hi and welcome.Please know you will never be judged here nor will we ignore you. Feel free to come around to chat vent laugh whatever you chose to do.Take care.Peck🐤

  • Hi smurf45

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    I am so genuinely sorry to read that you are suffering and struggling so much, and I sincerely hope that you can find some resolution and relief to these issues. I can see that Lu (Bluemermaid3) has given you the link to our mother site, FMA UK which hosts loads of useful Fibro information and is well worth checking out.

    I have pasted you a link for the NHS Choices cache on Fibro treatments, so I sincerely hope that you find this useful:

    I perosnally undertake a daily physiotherapy routine and use a TENS Machine to accompany my medications. I want to genuinely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


  • I have 2great Doctors who try to help a lot I was diagnose 8 years ago ,and I understand about your husband , my husband won't even I feel so I keep hidden as much as I can ,and that hurts . I do try to keep busy

    It helps

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