Diagnosis : How were you diagnosed? And... - Fibromyalgia Acti...

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Diagnosis

Cuddlybarb profile image
8 Replies

How were you diagnosed?

And how long did it take?

I'm undergoing tests to eliminate other conditions but my GP feels that fibromyalgia is a very possible diagnosis.

Thank you x

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Cuddlybarb profile image
Cuddlybarb
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8 Replies
ukmsmi4 profile image
ukmsmi4

Hi Barbara

I would happily answer your question but I'd rather not if your post is not locked.

sarahw12 profile image
sarahw12

My gp done different blood tests to rule other things and he sent me to another hospital i had been under for another condition to rule that out that had taken about a year and then last june i saw a rheumatologist who done scans and xrays to rule out psoarsis arthritis and then in november i got told by a physiotherapist that i had fibromyalgia.

i now go to a fibromyalgia support group that i found out about on facebook and i am also at the minute going to a fibromyalgia education group at the hospital once a week for the next 5 weeks.x

peck profile image
peck

It took me 1 year I was diagnosed in 1999.My GP at the time done test for 11 months, the last test being for lupus which was negative at which time she determined it to be fm.I hope this helps.☺

sarahw12 profile image
sarahw12 in reply topeck

My rheumatologist has done a blood test on me for lupus and a few other things.x

barbarabarker profile image
barbarabarker

I kept a diary of symptoms for about four years or more and my GP sent me for a couple of x Ray's and ruled out damage to knees and neck He just ignored other symptoms and said things such as "I get a sore.......... As well. I felt that I must be slightly mad imagining various symptoms.

my sister had a friend with fibromyalgia (I had never heard of it) I researched it and found that many of my symptoms were the same.

one day a locus doctor was on duty and he read my latest edition of my symptoms and agreed with my conclusion that I have fibromyalgia.

I was not sent for ant tests. I was sent to a rheumatologist who could not understand why the GP had sent me as GP's can usually diagnose it.

Both he and the GP said that nothing can be done about it other than Amitriptyline and Cocodamol.

I find both inefective, but who knows I might be worse without them..

(Sorry, just proof read this and cannot get to the mistakes on this borrowed device to correct them)

Sab123blossom profile image
Sab123blossom in reply tobarbarabarker

for me it was a desperate Private consultation with Rhumetologist who first suspected Fibro and allodynia(extreme sensitivity)...then I was sent by doc to NHS Rheumi..had all blloods again plus MR to ruleout MS .they found I have a cyst on my Pineal gland ..was sent to Neurologist and was reassured that cyst was nothing to do with Fibro....I so did not want a diag of fibro..but Physio told me it was the better of what it could have been because Fibro does not affect the body for ever when flare ups happen..whereas some other things , MS etc are degenerative

rosewine profile image
rosewine

My Gp diagnosed mine from the symptoms I presented and because drugs that should have alleviated the pain in other illnesses were having little effect. When I was sent to see an acupuncturist, a physio and an Occ Therapist they all said the symptoms fitted Fibro.

Often they give you tests to elimnate other possibilities and when all these come up negative they come to the conclusion that fibro is to blame.

TheAuthor profile image
TheAuthor

I was diagnosed very quickly via a private consultant. I kept a dairy and went through a lot of tests and got a diagnosis within a couple of months. I want to genuinely and sincerely wish you all the best of luck with getting a diagnosis one way or the other.

All my hopes and dreams for you

Ken

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