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Fibromyalgia Action UK

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Hi I am new to the site this is my first post I have diabetes poly neurophy poor control I am insulin dependent I have chronic widespread pain I wonder if anyone could explain about fibromyalgia as I said to my doctor have you looked into fibromyalgia and he said you prob have a bit but you have a proper condition for your problems as fibromyalgia is a mental condition I don't understand what he ment as when I read the condition I have the symptoms

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TheAuthor profile image
TheAuthor

Hi Amanda222

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read about your health issues and I want to sincerely wish you all the best of luck.

I have pasted you a link to our mother site FMA UK which hosts loads of useful information about Fibro: fmauk.org/

Your GP has expressed what some GP's and Consultants believe about Fibro, and when other members say their GP has said this, I always advise them to find a new GP!

All my hopes and dreams for you

Ken

Amanda222 profile image
Amanda222 in reply toTheAuthor

Thankyou for your lovely words Ken yes I agree with you they don't seem to want to go down the fibromyalgia route I have terrible acute like sciatica down my left side going in my legs I carnt move some days I've had a MRI and it showed slight bulging discs but they say the pain not coming from my back I mentioned fibro and he said its neurophy and they haven't gone into fibro as I have other diagnosed problems they make you sick I carnt walk far all my body hurts my balance is rubbish I use a wheelchair outside I have just had a blood test yesterday and I'm criticle vitamin D deficiency this is the second time in 12 months I feel rubbish and fed up sorry for the moan xx

TheAuthor profile image
TheAuthor in reply toAmanda222

Please do not worry about having a moan, it is what we are here for. Please take care of yourself.

All my hopes and dreams for you

Ken x

Hi, As Ken says ... Find a new GP! Fibromyalgia is not all in your head. Ignorance on his part and if he/she can't be bothered maintaining current levels of professional development then I would not trust him/her with your life! Just out of interest have you checked your symptoms against b12 deficiency on the pernicious anaemia society website. Might be worth a look. Jax💕

Amanda222 profile image
Amanda222

Hi had Thankyou for your reply I agree with you do I just type pernicious anaemia from this website new to it all x

pernicious-anaemia-society....

Hi, There is a forum on health unlocked too which is linked to the above website. You can join just as you have done with the fibromyalgia one 🙂

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