Hi boys and girls, I will try not to get too phylisophical on you but here goes!!
Why we are labelled as having Fibromyalgia syndrome it is not really a diagnosis as such as a " syndrome" means a Collection of symptoms not what is causing these symptoms
So I was looking around a few weeks ago on the web and came across adrenal gland exhaustion and delved deeper and deeper researching more info on adrenal exhaustion and wondered if maybe this is what causes fibromyalgia however I am not a medical expert but am really interested in the fact that you can help your adrenal glands to a point yourself..
The adrenals are to small glands that sit on the top of your kidneys and are responsible for many functions etc...
If you are interested yourself look stuff up on this as I have done as there are natural ways to help your adrenals , I am certainly going to keep ,delving and gleaning more on the adrenal glands , I am not a medical expert but I am feeling rather drawn to this ( not suggesting it is a magic cure or anything but think it is worth me carrying on researching further into natural ways to help my adrenals
If it's a red herring so to speak then it is and I haven't lost anything
But I shall update in a few months on this and let you folks know if I do try any natural recommendations suggested in what I have been reading or if I decide it not to be particularly worthwhile so stay tuned!!!
Gentle hugs to all X
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electricjaws
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Electric.....i started out looking at adrenals. You might be going in the right direction. They are a powerful organ, and they clean out viruses and illness in our bodies. I think they are getting overloaded because there are so many viruses and flu around. I got the flu every year of my life. Swollen lymph nodes from streph infection every year as a young girl, woman. Some really really bad. It stresses the adrenals to try and clean this out of our body. I also got the dangerous swine flu 7 years ago in the middle of the summer. It nearly killed me. I was so sick..my head felt like it was going to explode. My husband was ready to take me to the hospital, but i rested, blew my nose and let my body fight it off. No one in my family got it because i washed my hands like crazy, threw out my tissues and didnt touch my nose or face or mouth. In fact, i probably immuned my family against it. My husband didnt even get it sleeping next to me.
I would love to hear what you find and your treatment you are planning if you could message me, i would appreciate it.
I started taking milk thistle to help my liver when my entire body was itching. I dont have itching problems anymore. I did cut out dairy which might have been the cause.
This is worth looking in to however I have spoken at length about this at hospital appointments and the jury is still out as far as this is concerned. As Natura has said, we are very complex. xx
No point talking to anyone at the hospital about this because they are 'interested , unfortunately Lou, because they would just rather get money off big pharmecuetical companies for putting drugs in you , which do more harm than good. If drugs were meant to be in your body then nobody would have side effects!! I have been put on so ,any different mens over the years that my body now rejects most meds as my body became toxic, and now I suffer from multi chemical intolerance, so no hospitals aren't interested
I think this is really interesting and it's what I've read as well... Fibromyalgia is not really a diagnosis as such is it? It literally means all over muscle pain. The syndrome they add on just means it can encompass all kinds of symptoms and be 'multi-system' - that's what my GP said. He called it 'muscle rheumatism'. I've also read of a lot of people who've been diagnosed with fibro and then found some time later they have low thyroid function. The thyroid function blood tests GPs order are sometimes not sensitive enough.
Certainly, a whole lot more research needs to be done to understand this awful condition.
I have had Fibro for over 30 years and imo the doctors are now making it even harder for those who are truly sick. They have gone from not believing the illness even exists to over diagnosing every time they don't have an answer to what may be making people suffer.
Again only my opinion but this does nothing to help validate Fibromyalgia and those who suffer from it. To been almost dangerous of miss diagnosing and missing serious health problems.
It took me 10 years to find out what was wrong with me after finally finding a young doctor who had heard of this so called invisible illness and said he needed to rule out any other problem I may or may not have. This took many many months of examinations blood tests and results. He even sent me to see a doctor who treated tropical diseases in Sheffield I kid you not !!
It was only when every
thing came back clear was I diagnosed with Fibro. It seems to me the doctors today do not take enough time before telling patients they have fibro. Almost everyone and their mother now as Fibro !! I find it sad and unfair to those who truly suffer. The Doctors have a lot to answer again this is only my opinion.
Good post. On the whole my GP is very good but I have to pursue answers and set the agenda. I have a health and care background so I think that grants me more leeway than others might get. Must admit that I'm still unsure about my diagnosis and if it were my only one I'd struggle more to comprehend. Thankfully I also have a degenerative neurological condition of the spine and can attribute readily and not so readily many of my concerns. I say thankfully from the point of view that this is a clearly evidenced condition via MRI and so confers clarity (to an extent) for me and clinicians. However I continually find that I still have to seek answers through my own research. I tend to attribute all my ills to my conditions. This may be correct or it may be folly? All I know is, like most here I feel constantly below par, am always in pain/discomfort, have no sustainable energy and am all round getting weaker.
To a lot of doctors , you are a " specimen" something to be poked and prodded and operated on , you are not a human suffering being because if you think about it they do their training on cadavers so I think a lot of them although I would say not all disassociate themselves from you as being a real feeling person!!!
There are some great doctors and surgeons out there who are really nice but they are in a minority as opposed to the majority I feel
I have had good and bad experiences with doctors. Some I don't know how they pass Med school. Others were so wonderful. I just wish the medical community had more knowledge about what research is doing. This is something I am going to have to think on.....
specialists why was not more been done about the research etc in to Fibromyalgia the first reply was simply there was not enough funds and the second one said it was not one of your more fashionable illnesses !!!
I believe it as taken over 30 years just to get as far as we have got now as been a recognised illness. These remarks were made some years ago. And I can see changes. small ones and the movement is slow lol but I do feel there is more on offer these days. whether it helps or not at least it is better than 30 years ago when there was nothing at all but the good old antidepressant and the mental ward because you was seen as been depressed !!
Too true we were and are depressed then and now. Well who wouldn't get depressed and low. most of us can experience symptoms of so many different illnesses in one day than most people would suffer in a lifetime !!
I try to be as positive as I can and knowing I am part of a group that is just like me and understands what i'm talking about gives me a good feeling about life in general. Yep I get Peed off like everyone else at times I am human honest I am lol But I know all my days won't be dark ones. We just have to wait for the good days to come round and make the most of them when they knock on our door.
I am totally with you on the adrenal gland element and have argued it for a long time, especially linked to the Chronic Fatigue element. I am diabetic having a small pancreas and inject insulin five times a day. Also my testosterone is low so every ten weeks I have to go and have an injection for that. Both of these are hormonal as is adrenalin. Surely it at least warrants some research to see if there is a connection?
Electric...just reading more about cortisol production and stress hormones...and how adrenals get stressed...i am wondering if this is the cause of all of out problems...stress is all too real. Also adrenal responsible for clearing flu and viruses out of the body i believe.
Chronically elevated cortisol will cause anxiety, autoimmune, cancer, hormone imbalance, IBS, thyroid conditions, weight loss resistance. ( i have anxiety, autoimmune, hormone imblance, ibs, thyroid and weight loss resistance. Taking a tsp of baking soda in water daily to keep cancer away. Bodies too acidic).
I have taken some products to help regulate healthy inflammatory response, astaxanthin..but I got some sharp pain in abdomen. Then i saw ted.com lecture about how the medical profession uses men to do their studies. So, i halved the dose. Actually its very messy, so i may have quartered it. My belly swelling reduced which is what too much cortisol does. I have had energy all day. Not as tired as i usually am, and i have been able to catch my breath which usually is very hard for me. And in fact, my head is not itching so badly as it usually does. Concidence?
Very interesting.
Plus read that cushing syndrome can be caused by use of corticosteroids like prednisone for long periods of time. Look up Cushings syndrome stuff. Almost like lupus... Inflammatory disease. Now, cushing can also be caused by tumors in certain parts of body...research.
Increased cortisol can deplete serotonin which impacts sleep, recovery and appetite. I have not had an appetite for years. And i have been sleeping poorly.
Cortisol is a muscle wasting hormone produced by adrenal glands whenever we encounter stress..which explains muscle weakness.
There are several supplements that can be taken to control cortisol....vit c was one. If anyones interested....look them up. Or i can share what i found. Wonder if this is the cure!!!
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Please help!
Misdiagnosis?
If I could only give one piece of advise.........
Diagnosed with Fibromyalgia in 1984 and earlier in 1988 both rheumatologists and I though this info was in my medical notes but it is not.
