Hi Fibro Family,
Hope you are feeling well this morning.
A follow-up and question about my gastroscopy/endoscopy experience earlier this month.
I did complain in a detailed email to the NHS and followed the correct complaints procedure. After sending the email, I got a reply by email from the Patients Complaints Officer. It explained that it would take up to 21 days to gather all the facts from the relevant staff and he would be writing back to me with the outcome. He also left contact details if I wanted to discuss anything. I rang a couple of days after and expressed my concern that if I complained about my treatment, the endoscopist and staff involved would probably cover themselves and I would get a flimsy apology. I also stressed to him that I wanted to bring awareness to Fibromyalgia and how crucial it is that we are listened to by the medical profession. He said all the right things on the phone and re-assured me that the department concerned would be made aware of future procedures done for Fibro patients.
I got the letter yesterday, going into detail about the procedure, and a flimsy apology that I found my experience to be unpleasant. I expected all of the above from them, but didn't expect to see that the endoscopy department actually told bare faced LIES, just to cover themselves.
At the end of the letter, he did mention that the head of the department would bring up Fibromyalgia at the next depatmental meeting. What is he planning to say, he has NO EXPERIENCE of what it's like.
What an insult, I was made to feel it was all my fault and I should have said NO instead of allowing them to carry on with the procedure if I felt uncomfortable....
I have been left traumatised by this, and keep having flashbacks of gagging and finding it hard to get my breath. I am over the physical side of things, but the emotional and psychological effects are still with me.
I'm not sure if I have the strength to take this matter any further, I feel like an idiot. However, I do not want anyone else to go through the same experience.
Before Fribro, it was in my nature to fight for what is right, but I may just lose this battle because they know how to weasle their way out of any reponsibility. I would love to have the strength to contact a big charity or even the newspapers highlight my experience, because the staff need to acknowledge that what they did was unacceptable.
What do people think?
Should I just leave it? Am I being over sensitive? Is it unhealthy to dwell on this?
Should I use my energy to keep well?
I appreciate your feedback.
p.s thinking of changing my user name to 'moanymoo'