Really need a pick me up and some advise - Fibromyalgia Acti...

Fibromyalgia Action UK

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Really need a pick me up and some advise

poppyflowergirl profile image
6 Replies

Sorry guys, I hate saying hello and then being miserable but I guess most people seek and join these sites when they are feeling desperate for support and answers. I started off the day thinking I am going to get control and did a yoga class, feeling positive until I lightly touched my inside elbows on the floor and wanted to throw up, my body went tight and I wanted to (if I could!) curl up in a ball. I have hit a low point this morning and having some dangerous thoughts.......I will get a grip. I am on Lycia which I hate the feeling off and put on SO much weight, I am trying self help with exercising and yoga but it makes me hurt. I don't want people feeling sorry for me, but can someone please give me an massive kick up the butt and send some positive tips for trying to get on top with all of this please.....thank you x

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poppyflowergirl profile image
poppyflowergirl
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6 Replies
Regnofibro1 profile image
Regnofibro1

My physical therapist gave me some stretches and a few gentle exercise to do. You might look into it. I also tried yoga and just hurt to much. I have found that the things I am doing now really do help. I can tell the difference. I got a little scared when scales told me I had put on weight after doing them for a few weeks. My doctor laughed and told me I was getting my muscles back. They weigh more than fat so don't panic. Now I have noticed my clothes are bigger on me. So I am actually losing inches. My weight is now dropping. So I must be doing something right. So I my advice is just take it slow and it will work!

sophie22 profile image
sophie22

Hi Poppy, I have had fibromyalgia for over 16 years now and have been through all the rolling up of the sleeves, snap out of it girl routine with the inevitable result of bringing myself to my knees, if I could get down there! I now find that gentle stretching and a 7 minute Qigong routine that you can get on YouTube is very helpful along with a walk each day depending on how you feel as to how far helps the best, I still feel achy but now know when my body warns me to stop or else! I have just done a four week physio core stability course for people with chronic pain and they told us to do a little often is better than boom or bust! Meditation was also recommended, I find it very helpful, there are some good CDS to help with this. keep on going and find what is best for you but try it in small does first then over a long period of time work your way up slowly, physio said 18-24 months, so they really do mean slowly. hope this helps gentle hugs!

kathlaidlaw profile image
kathlaidlaw

ye hunny stop overdoing fine do yoga but make it the only thing you do . see we all have a problem on here we all over do it see like you we have good thought and think yaaaaaaa I can do that cleaning , run , see if I can still work the hover or do that curbed that I have been putting things in so I think I have cleaned up . and the next day we feel like you do now we all say the same thing you have to know your body try swimming it is not as hard on the body . and with putting wait on we have all had that to , but if I had the choice of being skinny like I was before size 8 peteit with pain or what I am now with some good days on meds I know my choice . its hard being a very active person and going to a couch potato I know . yes stand up to it and say you are not going to get me down no mater what you through at me . I am a strong woman and you can give me what you will but I will stand tall and I will deal with what you will as I AM A STRONG WOMAN . and I will stand tall and I have 1, 000s of friends who stand right beside me and we fight it together

so remember before you go to bed say I am a strong woman and tomorrow I will fight you again

and also remember we are all here at the end of a key board you are never on your own you will always have us we will never leave you .

yes you will have bad days and may be even bad weeks but when you do come to us come and have a coffee with us and even a slice of cake and a few bickys

sending a big mummy hug and I will send as many as you need

kath

rosewine profile image
rosewine

We have all worn the T shirt overdo and we all pay the pain penalty price and we then find it effects us mentally. Yoga can be stenous even when we were fit so only do the gentler more stretching poses. If you can find baths that are warm swimming is a good gentle exercise for all your muscles and joints as because of the resistance of the water makes even the gentlest movements more valuable.

I to have found core exercises have helped my back be stronger and more flexible, little and often is the key.

Don't do yourself down remember you have had these flares before and come out the other side and the fibro army is behind you w atching your back. Be gentle with yourself until you are in recovery.

Just one word of caution I don't know how long you have been on lyrica but it can sometimes actually alter your mood so if it lasts worth a word with your GP. Let us know how you are doing.x

Natura profile image
Natura

Hi poppyflower....i use to be able to do yoga, pilates...it hurts too much....i put on the cd and do what i can , and skip over what i cant. I also read meditation in the morning is good, breathing exercises, and a walk in the eve. According to the indians in Nepal. That is part of their daily self care. I think we tend to over do it. I have been an exercise nut my entire life. Just have to change how we do things. Would love to find a class for people with injuries or illness so that we can get support and exercise without being judged. Part of it is motivation too, i didnt do anything all weekend or today. Too tired even thinking about it. I have to push myself more....hope u feel better..

TheAuthor profile image
TheAuthor

Hi poppyflowergirl

Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful , informative and loads of fun! I have pasted you a link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information: fmauk.org/index.php

I am so genuinely sorry to read that you are suffering and struggling and I sincerely hope that you can find some resolution and relief to these issues. Overdoing things is really not recommended with Fibro as it can give you a flare up. I want to genuinely wish you all the best of luck. Please take care of yourself.

All my hopes and dreams for you

Ken

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