I feel so alone : Hi everyone I hope... - Fibromyalgia Acti...

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I feel so alone

Purple-haze profile image
20 Replies

Hi everyone I hope everyone is as well as you can be, I'm sorry I have not been on here for a while it's cos I am struggling at the moment with what is happening with the numbing sensation in my finger's and right foot and I am to scared to go to my doctor about it. And feel so alone cos I seem to get any of my family to listen to me when I try to talk to them and I all I want to do is hide away cos I fed up with taking tablet's just to get through each day. Can anyone relate to how I am feeling?

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Purple-haze profile image
Purple-haze
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20 Replies
aud01 profile image
aud01

I can relate only too well and probably feel the same only too often also..... This illness is a very harsh illness and causes a lot of loneliness ... And also a lot of deaf ears from family and friends who just don't understand the constant daily battles we go through .... Chin up and feel free to chat away but yes do go to the doctor and speak with them as you sound depressed and need a little boost ... Big hugs xxxx

Purple-haze profile image
Purple-haze in reply to aud01

Thank you for your response, but I am already on Amitriptyline which I two a night, along with alsorts of other medication, and they have referred me to the pain management over at the hospital. Although I would like to know if I could meet up with someone who is going through the same as me.

snappy1 profile image
snappy1

Yes I can relate, really cheesed of with tablet taking but if I don't take them then I'm worse. I'm glad this site is here as there is always something or someone to take your mind off this. Rant away here, sometimes just writing it down gets it out of your system

and you know we are all in the same boat (which I might need if this rain keeps up!)

Purple-haze profile image
Purple-haze in reply to snappy1

Where are you? Cos I live in Southend-On-Sea we had a day of rain yesterday and today we had a day of sun, which was nice. It would meet up with someone else who is going through the same as I

Keeleybee profile image
Keeleybee

Yes I can relate :-( even when surrounded with people I love dearly who are always there I feel alone.

Talking is the best way! This site is the best to just get some understanding and empathy of others who actually do understand what you mean by 'I feel like iv been hit by a bus'

Big loves x

Hi their i know just how you feel i'm on my own my family don't even speak to me and haven't done now for 12 years, but at least i've got friends on this site that are my new family don't be afraid to go to the doctors with you numbing problem in you fingers and right foot i'd go straight away by getting someone that does listen to go with you, and as for tablets if you see how many i have to take plus injections you would be amazed i here if you need to take your never on your own kind regards Alan

rosewine profile image
rosewine

Don't feel alone as you have the support of everyone here.

Please, please go to the doctors as it sounds to me as though this is not going to just clear up. It could be something simple like a trapped nerve in the back and something like physio or an antiinflamatory might help it. If you are at home just mulling it over it can only make your low feeling worse. I understand where you are coming from with the tablets as I sometimes feel I am rattling like a tube of smarties but realised quite some time ago that without them life unfortunately is unbearable.

Please make an appt at the doctors and let us know how you get on.x

Regnofibro1 profile image
Regnofibro1

Only too well unfortunately. I am surrounded by people but feel alone a lot of the time.

NessH profile image
NessH

I know how you feel, there are times when even though my Husband and family are with me they just do not understand or seem to care (well they don't show they care) I find it amazing how they do not realize what I am going through, and I am not even allowed to talk to my husband about how it affects me!! But then I have friends who do care and can tell from the sound of my voice as to how I am feeling and a lot of the time it is my friends that get me through my worst days, and this group is so good too, especially when it is the middle of the night and you just want someone to say yes I hear you.

Purple-haze profile image
Purple-haze in reply to NessH

I know it's so hard to get them to unstand what I am going through just for one day.

TheAuthor profile image
TheAuthor

I am so genuinely sorry to read that, and I want to sincerely wish you all the best of luck with this issue. Please take care of yourself, and please visit the doctor if this continues.

All my hopes and dreams for you

Ken

Purple-haze profile image
Purple-haze in reply to TheAuthor

Thank you for your kind words. I wish I wasn't so scared of what the doctor might say or say!

BlueMermaid3 profile image
BlueMermaid3

Hi there

I know the lonely feeling even though my teenage children are still at home. You should definitely see your GP, but it is quite a common thing to have pins and needles and a numb feeling.

Whilst writing I have pins and needles in my right foot. If I sit for more than half an hour my backside is completely numb when I stand up.

The way I cope is to move around a lot. I rarely sit down.

You have many friends here who will always be around for you.

I hope that is some source of comfort for you.

Sending you gentle hugs xxxx

jackie4ball profile image
jackie4ball

I can definitely relate to how you are feeling. I havent even been on here in a very longtime as i am still in abad place home wise dye to the council, cant get any help through mental health team until i move, pain clinic dropped me until i move. 3 of my sons live up north and my daughter lives local. I think loneliness is a tough thing to deal with. Sending you hugs

Purple-haze profile image
Purple-haze in reply to jackie4ball

I don't understand why you are going down the metal health route? I didn't think you could get help from the council with Fibromyalgia!

jackie4ball profile image
jackie4ball

I have mental health problems which have been made worse by my housing which is acouncul property i was given a year ago this month ut is in a bery bad area. There are no facilities for my disabilities as i have osteoarthritis in my hands knees and hips. There are steps up to the property and literally no soundproofing so i am kept awake all night by yhe tenants above and their german shepherd dog. My pain vlinic wasnt dven like a pain clinic it was talking to a mental health nurse or an OT no one trying to help settle the pain down with anything. Then they suggested mindfullness but i was turned down because of my mental health again until i am in a happier place mentally nothing will help. But if you get no sleep and are in constant fear as there are always police or fire engines down your road its hard to relax. Also i dont cope with being alone. I was in a 4 year relationship which ended last year before that a 22 year old marriage and 4 children 3 of whom now live away from the area. I have suicidal thoughts as i sometimes dont see the point of going on which is why i did see mental health team. I hope that makes sense.

Purple-haze profile image
Purple-haze in reply to jackie4ball

I am so sorry I got the completely the wrong end of the stick, what council are you with I'm sure if you get the mental health team fighting your corner and explain the hell you are going through the council should stand up and listen to you, if not there are other housing organisations who should be able to help you, it's always worth giving them a try. Just don't give up on everything. I sincerely hope you find some help and peace of mind soon. Take care God bless

jackie4ball profile image
jackie4ball

Hi Purple Haze

Thank you, unfortunately I have been battling with everyone all year now mental health team, housing, politicions after 8 months i have been given a support worker who is trying but its not proving easy. Because everything hinges on me moving no one will give me any treatment i know that sounds crazy but thats how it has been. Just one battle after another. Thank you for your kind words. x

MariLiz profile image
MariLiz

Numbness can be a symptom of low B12, ask your doctor to do a blood test for that and for ferritin and folate and VitD levels too. We are all here to help one another as much as we can. You're never alone on here. MariLiz

kathlaidlaw profile image
kathlaidlaw

I think we all can hun and you are not alone you have us and we are a hell of a lot of us a lot more than family and yes I would say we are a family . a family are people you can laugh with cry with and tell your most inner thoughts to and they will sit and lisen to you they will not put you down and will help you walk tall and hold your head up and we are all that and a bit more so yes we are your family and we will always be your family . so don't be alone be with us .

be with are happy little family yes I know there are to many to count but we feel like we know each and every one of them so get your chin up and walk tall

sending mummy hugs not soft but big mummy hug just for you

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