More stress

[Mogi52]

Hi everyone, I posted last week that had I had a decision from dept work and pensions regarding my ESA assessment and it was great news , I am still to receive my ESA. I was advised to apply for PIP from the lady who helped my fill in my form for ESA, so now I have yet another stressful wait for a few weeks until the date of my PIP assessment which I received today . Why do we get ourselves in such a state about all of this, it's so hard not to though, I really don't know where I would be if it wasn't for all the lovely support on here, xxx

[BlueMermaid3]

Hi

My personal opinion is that we get ourselves into a state about these assessments because we can't prove the agony and heartache that this crappy condition causes us.

Being so ill makes us vulnerable and unfortunately open to being tricked into saying things that can be taken the wrong way.

I want to wish you the very best of luck for your PIP assessment. I truly hope that you get a nice assessor that can see this condition for what it is.

Gentle hugs

Lu xx

[Mogi52 in reply to BlueMermaid3]

Thank you, I know what you mean , it's bad enough being unwell without all the stress , I'm finding it really hard to accept and it doesn't help having the assessment in your mind. I k ow I am very lucky to get ESA, that was a big relief for me and my husband . Thanks again , hugs to you xxx

[Sniffer8]

BlueMermaid makes excellent points. I find it hard enough to clarify to myself how I feel and what's going, let alone to family, never mind officialdom which is stacked against us. I don't meet PIP criteria but am on contribution based ESA - thankfully in the Support Group. I wish you well Mogi 😊

[Mogi52]

Hi sniffer , yeah I get contribution based ESA too, I'm a bit confused as it said on the letter they will pay it until January 2016 then I got a letter in the next day saying I was in the support group and my payments went up slightly so goodness knows . I'm grateful for what I am getting tho but so wish this was all over with for a wee while . Thank you for replying , hugs to you xxx

[Sniffer8 in reply to Mogi52]

Hi Mogi, I know that the DWP are behind with a huge backlog but communicating with them is a one sided affair. I've noticed that I only ever get what is clearly a template letter and therefore doesn't address my queries which is so frustrating. I write rather than phone and would ideally email as I wouldn't express myself so well verbally and I like written records to be able to refer to. My letters didn't say how long I'd receive ESA, would I eventually be required to attend a medical and whether further sick notes would be required. As they steadfastly avoided answering I decided I would send in 13 weekly sick notes unless specifically told not to in a letter. My GP advised I should keep doing this also and agrees on continuous evidence being submitted in this way. It's amazing the many posts here re ESA where people have been advised on such things as a matter of course, or left in the dark. Very concerning, process should be uniform and audited.

[Mogi52 in reply to Sniffer8]

That's so true, everyone has a different story and different side to it. We just keep going , hugs to you xx

[BaffledKaffy in reply to Mogi52]

Perhaps that's why I'm sitting here in US still trying to figure out what different types of help you have in UK and how it works! Even you don't know

[BaffledKaffy in reply to BaffledKaffy]

And you would think I'm still learning how to post a comment! I inadvertently touch something and it's like playing a slot machine: bells and whistles go off, everything moves around and my Reply gets "submitted" before I'm done! Oh, well ...

Hugs to all, bk

[Mogi52 in reply to BaffledKaffy]

Exactly lol, things arnt the same across the board , that's the problem , hugs to you , xx

[Regnofibro1]

Hugs

[Poppy-poppy]

Good luck, best wishes

[Mogi52 in reply to Poppy-poppy]

Thank you 😊, xx

[cathy21]

Hi so pleased for you, the waiting and not knowing the hardesr bit.

X

[TheAuthor]

I am so genuinely sorry to read that you are all worked up about your PIP, and I want to genuinely and sincerely wish you all the best of luck with this.

All my hopes and dreams for you

Ken