Fibro and accepting it.

[Tishie]

Is anyone else angry that their life has changed so much.

[jillylin]

Hi,

yes, very. I used to be an ultra fit ballet dancer . Now I struggle to climb a flight of stairs and I can't even teach because of Fibrofog. It's a long adjustment period.

Gentle hugs

Jillyxx

[Fibrofoggiest]

Hi there Tishie,

I wouldn't say I'm angry about the way Fibro has changed my life, frustrated yes - like crazy, but I don't like to waste my time feeling angry about something I can't change, if that makes any sort of sense, which it probably doesn't 😳😳

Foggy x

[maxwellous]

Hi tishie, yes I'm afraid I am angry with my fibro. Although had it for about 15yrs. & thought I had it under control, to a fashion, it has got worse these last 2-3 yes. I'm 68 so get the usual getting older aches & pains, but fibro has its own pain. Going to Lipid Clinic in 3wks my cholesterol is 9, they need to check other things,iI have a feeling I could be Hipo. first blood tests came back "normal" but that's nothing to go by from what I've read here. On stations at mo, & muscles hurting more. I used to love line dancing, but had to say goodbye to that as well as other activities. Anyway this doesn't mean you will experience same, let's hope not. Take one day at a time & don't panic my dear.

Hugs to you. xx

[maxwellous]

Re stations, should be statins, as you probably guessed!!

[jellynpain]

Hi,

During the last four years I think I have gone through many emotions in trying to cope, mentally and physically.

I do think there is a element of needing to accept... but even then still get sad, annoyed, frustrated etc. at times.

There is still that part of me saying 'maybe it will all go away at some point'.

Xx

[Furry]

Hi, I used to get angry but now I've accepted the changes fibro brings to my life, it has taken time though. i am 51 I'm sure it would be more difficult for me if I was younger. It sometimes makes me sad that I can't do what I used to do but over time I've found other things I can do instead. It's other people that make me angry! take care. X

[smartcarkaz]

Oh yes! If you check out my recent posts, I added a link to a lovely blog written by a lady called Donna who writes about learning to accept the condition. There is also a poster on another post about being angry that a few of us will be printing out!

Sending hugs xx

[TheAuthor]

I try not too, as anger drains you physically and this serves no purpose. I have a wonderful lady in my life who is very ill with MS, and I have to stay focused for her sake. So as difficult as it is, I know I have to use my energy appropriately.

[martine34 in reply to TheAuthor]

I feel everything you have written there, my hubby has MS and I feel I have to conserve energy to deal with all the everyday things. But it is frustrating as I try and want to do so much with our boys, like I used to but at the moment am exhausted, sad and angry but like you said we have to try to use our energy wisely. Wishing every one a sunny Sunday 😎

[TheAuthor in reply to martine34]

I understand exactly what you mean and where you are coming from. I genuinely hope that you are feeling well today

All my hopes and dreams for you

Ken

[RIBBONPINK in reply to TheAuthor]

HI KEN MY HUSBAND HAS VERY SEVERE DEPRESSION BUT WORKS SO HARD SO I HAVE TO STAY FOCUSED TO SUPPORT HIM AND HE SUPPORTS ME WE ARE BOTH FOCUSED ON HELPING EACH OTHER.OUR NEGATIVE THOUGHTS TURN INTO POSITIVE IDEAS.

[TheAuthor in reply to RIBBONPINK]

That is wonderful that you can both make something good come out of the pain, and I genuinely appreciate how difficult it can be at times.

All my hopes and dreams for you

Ken

[RIBBONPINK in reply to TheAuthor]

THANK YOU KEN WE ARE ALL BROTHERS AND SISTERS ON THIS WONDERFUL GODS EARTH IT IS A PRIVILAGE TO BE HERE WE ALL SHOULD HELP ONE ANOTHER MY FAITH KEEPS US STRONG.ALL MY HOPES AND DREAMS FOR YOU TOO.

[Tishie]

Thank you all for replying it really helps to know others out there understand. I have so many questions its unbelievable, I could keep you all busy for weeks. Its 3am I am up because I seem to sleep for 2 to 3 hours then up continually. I get so tired I HAVE to go to bed after 2 to 3 hours or so. That sounds confusing but its the best I can do as I find focusing very hard too.

[Crazy_Horse in reply to Tishie]

Managing any chronic illness is best done one-day-at- a- time, sometimes moment-by-moment.

It's absolutely normal to grieve the losses, the changes. It's normal to go through different stages of grieving, as well.

When it comes to expressing the anger, there are healthy ways to do so.

Our loved ones don't deserve our anger; we might do well to guard against lashing out at others and alienating important relationships.

Expressing anger in healthy, non-destructive ways, can bring us closer to achieving inner peace.

In Support,

Crazy_Horse

[Ginsing]

Hi Tishie,

I think at some stage we all get angry about what has been -

then we become sad followed by a resolute feeling.

If this is how it is going to be then I have to make the best I can out of it. So become a fighter -

when the days are really bad rest you get better faster when you have good

times enjoy them make the most of it. I always try to stay on the positive side of life

it is much easier to cope with things as they happen to you.

It is good to have this site to talk through our problems you know a problem shared

is a problem halved. It is true.

Keep smiling

Ginsing

[RIBBONPINK]

YES I FEEL DARN ANGRY BUT HAVE LEARNT TO ACCEPT THINGS TURNING NEGATIVITY INTO POSITIVITY.FED UP OF EXHAUSTION AND USING WHEEL CHAIR BUT SOME DAYS I WAKE UP AND I HEAR BIRDS SINGING AND THINK TO MYSELF ITS SO GOOD TO BE ALIVE.I SET MYSELF LITTLE GOALS ONE STEP AT A TIME.MY FAITH KEEPS ME STRONG.X RIBBONPINK

[teddybear7]

Ooo now this has opened a can of worms. & really got me thinking. I seem to spend most days saying to myself ' now come on at least it's not the big c and there's other's worse off than you'. I get fed up and frustrated & have lot's of tears and why me's. I dream of what it used to be like and go to bed many nights wishing for the elusive morning you know the one where you wake up and it's all gone away. I have denial days where I don't believe I really have it and the next blood test or examination will show a different something that can be treated. Then I take a deep breath & get on with life as I now know it.

I look at my grand children & my heart melts. I give my children advice & guidance. I get in my now automatic car & am thankful that I can still get around I visit mum & make her day. Angry......no I don't think I am. Changed yes...lifes changed. But I've still got one & thankful I have. Xxcc

[Hidden]

Yes every day, were supposed to just accept this and get on with things,

if only it was that easy? I don't live anymore I just exist, and I'm having

more and more symptoms as time goes on I am fed up with having no

treatment that works.

[pollmadoll]

Hi I have had Fibromyalgia for 8 years and still have to carry on as normally as possible as a single mother with two growing sons. I have recently been on the coping skills programme in Bath at the Mineral Hospital. I am not on any medication but am very strict on my diet ie no coffee,chocolate or gluten

I also juice fruit and veg for extra energy ginger juiced helps.Tumeric capsules help too, hot baths and night rescue remedy.