ME /fibro

[mo1mo2]

Hi all Went to ME/FIbromyglia conference on 23rd. Excellent as was run by the Patient and Client Council Had several MLAs there including the health minister who is interested in the condition. Varies professionals spoke and sufferers . What we want is a consultant and a clinic we can go to rather than all these pain management courses

[rosewine]

I bet it was extremely interesting. Yes that is what we want a centre of excellence where we can get the best treatment and advice. I would be more than willing to travel to anywhere where I felt I could get it.x

I

[Reykua]

Hi mo1mo2,

Thank you so very much for attending and giving us the feedback.

It sounds like it was really worth going - especially as the Health Minister attended as well. I'm wondering if that means the current government is keen to find out as much about the conditions as possible to support us or if they're trying to find a way around the conditions to ensure that they do not have to provide us with disability payments and force us into work.

Unfortunately, I'm a bit of a cynic - can you tell? I'm hoping against hope that they aren't intending to find a loophole or some stick they can beat us with so I shall be watching this space with bated breath.

If there's anything that was said that you think will indeed impact on Health or Government Policy, please do share with us.

Many thanks again and Well done.

Best wishes.

[mo1mo2 in reply to Reykua]

Hi know what you mean about sickness payment etc, am on DLA at moment but that could all change my doc told me to put down on forms all my other illnesses as they are not very sympathetic to fibro. Our ME facebook here posted articles from America where docs have proved ME is biological. What we want here is a proper consultant and a clinic and not more pain management clinics as they are just a fob off

Maureen

[Gerry]

Was this in Northern Ireland were I live if it was could you keep me posted would like to know more?.Thank you.

[TheAuthor]

Sounds brilliant.

Thanks for sharing

Ken