Really sore at moment and so tired Panicing as have load of appointments at hospital and don't feel bodily up to going. I also attend oncology and my bloods are a bit off. So tired but not sleepy if that makes sense Hate not being able to plan anything. sorry to sound so miserable.
Maureen
Sorry to hear that you are feeling so rough. Have had to have an Epsom Salt bath and am propped up in bed now with hot water bottles all around me wondering exactly the same thing as I have a medical appointment first thing tomorrow morning and like you really don't feel up to going. OH who always takes me has just said he is starting a migraine, oh happy days. If you say that to a fit person that you don't think you are up to making a medical appointment you always get a quizical reaction.. My friend who is as fit as a flea started laughing the last time I told her that, she said "well you are going for them to make you feel better" and I said "yes, precisely but you have to be well enough to get there in the first place".
Your bloods might be off because you are having a flare as I am sure it affects the whole of our body. I know I am supposed to test my blood pressure at home to make sure it stays reasonably constant between visits to the docs and sometimes just out of interest I have done an extra test when my pain has been very bad and it has always gone up and when the pain is more normal, if you can ever say pain is that the blood pressure is okay.
Anyway, I am rambling on just wanted to show you some support and keeping fingers crossed that you will be able to attend. It is awful when you have to play things by ear each day I think I have given up planning things but with the medical appointments we have no choice in the matter. Good luck with everything. Soft hugs being sent.x
I do understand how you feel but do keep your appointments xx
I have missed a PIP tribunal today. There was no way I could make it. the pain. aches and dithering with cold when it wasnt cold. plus the way the fog was id have been crashing into everything and everyone.
So i called and explained. i also told her that the new evidence that i was hoping to have is now waiting a brain scan.
She said that she would ask them if it could be postponed, she seemed more hopeful when i said that the specialist had told me that it was not Dementia but a possible vascular problem.
Oh well we shall see.
So sorry you couldn't make it to the tribunal I know you weren't right at all yesterday either. In one way not being able to attend because you were too ill might push the message home more and that you are still having to have further investigations can go in your favour. I know they are making a decision on what they knew at the time they turned down your claim but because of the investigations and what they might turn up might strengthen your hand. I do hope you get another date hopefullyafter you get the results from these latest tests. Fingers crossed for you.x
Thanks, I am getting totally sick of the whole thing. First 2 pip medicals, then mandatory reconcideration. the a paper tribunal and now this. I wish i could just forget it . but probabley wont. after all I am entitled to it. Give up on spelling for now.
Sue xx
feel the same.just had mandatory reconsideration set bak..was only asking for 2 more bloody points to get standard daily living. .not asking for enhanced....appeal here I come grrrrr xx
I am so sorry to read this, and I want to genuinely wish you all the best and I sincerely hope that all of your appointments go really well for you.
Good luck
Ken x
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