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Fibromyalgia Action UK

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LuMendonca profile image
8 Replies

Hello! A few weeks ago I was diagnosed with Fibromyalgia. There is a lot I don't know about this condition and I need to learn to live with it. Can anyone recomend some literature with plain and simple explanations? My main symptom is cronic fatigue and brain fog. Any recomendations on how to improve my condition? Also, is there any support group in Plymouth or surrounding areas that I could join to help understand the condition and how to live with it? Thank you! This are just my first steps to understading so I have a long way to go...

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LuMendonca profile image
LuMendonca
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8 Replies
Orangeblossom profile image
Orangeblossom

Hi I'm quite new to it too, I got a little book called Living with Fibromyalgia, have seen it mentioned on here too. It is easy to read with some tips and exercises, looks quite useful. x

LuMendonca profile image
LuMendonca in reply toOrangeblossom

Thank you! I'll look it up. x

Ian123 profile image
Ian123

Fibro Action have information fibroaction.org/ plus you will always be welcome here in the community with any questions :-)

LuMendonca profile image
LuMendonca

Thank you Ian! I'll read the information and thank you forthe warm welcome! x

TheAuthor profile image
TheAuthor

Hi LuMendonca

Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun! I have pasted you below two links to Fibro Supports Groups, so I hope that you find them useful:

FibroAction Support Groups

fibroaction-public.sharepoi...

Fibro Support Net

fibromyalgia-support.com/su...

I want to wish you all the best of luck and I look forward to bumping into you around the forum.

All my hopes and dreams for you

Ken

LuMendonca profile image
LuMendonca in reply toTheAuthor

Hiya! Thank you for your warm welcome and all the support! It has been very conforting to have all of you sharing knowledge and information. xx

Guccigirl profile image
Guccigirl

Hi there

First let me say we are only a click away if you need help or an ear to bend! Best thing is to go onto FM uk site, they have a full documentation of all literature , and a someone who has read it extensively !! It's all good

Start with the books that are for learning to deal with Fibro, that way you will get most basic but helpful info without immediately being bombarded with it all.

A little tip,,, keep a note pad & pen with you at all times to jot down anything you feel you need to know from either us guys here or your rheumatologist ! It's good to have a list of things that have been happening to you, & that you want to ask him.

About groups FM uk will also be able to tell you where your nearest group is! Keep this in mind..... Some of the groups run a library with all the books you can borrow instead of buying them, it's a great idea and they will post books out to you to read.

The FM site is also good for info.

Hope this helps

Gucci girl x

LuMendonca profile image
LuMendonca in reply toGuccigirl

Thank you so much! I'll visit it today and start reading it. Any "beginners" book you would recommend? xx

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