information on fibromaligai - Fibromyalgia Acti...

Fibromyalgia Action UK

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information on fibromaligai

angieskye profile image
6 Replies

i was wondering if there is any information on this condition please i have just been told i have this along with lupus which i found out 4 years ago i also have raynauls any information available would be a great help ty angie

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angieskye profile image
angieskye
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6 Replies
hamble99b profile image
hamble99b

hi angieskye, Welcome! :)

if you click on the butterfly in the fop right-hand corner of this age, it will take you to the fibroaction site here there are links to lots of information. If you have any questions you want to ask us, stores or worries to share, please do.

this a friendly group of people and we are here to support, share, and listen - and we also have some of us who enjoy virtual "fun" days and themes. [everyone is welcome to join in if they want to]

Were all on at different times of the day or night, some maybe only once a week some only occasionally.

If you post something and nobody replies straightaway, someone soon will - if you don't, which is very rare, please post it again and send a private message [pm] to me, Mdaisy and gins and we will reply.

many people don't feel they want to reply and that's fine, but, be assured, your message will be read.

regards,

sandra.

Cookie72 profile image
Cookie72

Welcome to the caring sharing laughing fibro club angieskye as our good friend Sandra has said it's a great site we are all in the same boat and here for one and other, they are a great bunch of fibro friends and the volunteers are great they try to cheer us up with their virtual days out even tho they are in pain themselves just like the rest of us, hope you enjoy the site and look forward to reading your posts.....sending you a welcome gentle hug....Dee xx

Bearess profile image
Bearess

Hello - good morning and welcome ;-)

I'm in a silly mood today :-)

I was given the thumbs up from the doctor yesterday after suffering a heart attack on 1st August this year - it was due to myacarditis so no stents needed and no permanent damage to the heart - YAHOO :-) :-) :-) :-)

Fibro has not been that bad either because I've been resting more - now that tells me something ;-)

Have a great day people :-)

hamble99b profile image
hamble99b in reply to Bearess

that's great news bearess :)

Bearess profile image
Bearess in reply to hamble99b

Thank you Sandra :-)

haribo36 profile image
haribo36

Good morning angieskye,welcome to this wonderful site full of compassionate,caring and supportive people.You will not only get support but will also find out a wealth of information from people's experiences,as well as some laughs along the way.It really has helped me so much since I've been posting on here,reading other posts and responding to them.How much were you told about fibromyalgia?you can read up about it from the Fibroaction pages as Sandra has suggested plus u.k fibromyalgia have information on the condition.Fibromyalgia is referred to as a syndrome as there are lots of different symptoms that you can have and some of them may well be the same as your lupus ones.There are lots of different treatment options available to try that you can read about in fibro actions pages xx

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