Newbie here

Hi all... I was diagnosed many years ago with fibro and have gone thru many trials of different drugs over the years. I gave you and started utilizing Chiropractic, organic vitamins, whole food nutrition and Essential oils and have found much better luck...I couldn't live without this protocol!

[Fibrofoggiest]

Hello like you I have suffered with Fibro for many many years. I am glad that you have found something which helps you, but as I am sure you will agree, what works for one person doesn't always act in the same way for everyone. If there was such a regime, I'm sure we would all be queuing up to get in on the act and lead much better quality of lives than we do.

I wish you well in your journey with fibro

Foggy x

[Alliejones]

Hiya

I am a newbie on here too. I would be really interested in knowing a bit more about your whole holistic approach as I am literally chucking so many pills down my throat for various things including fibro I don't have much room for food or desire for it lately...

Al xx

[Hidden in reply to Alliejones]

Hi foggy...I agree.. Just like weight loss.. Nothing works the same for everyone.. I'm just thankful this worked for me and like to share. Allie... I'd be glad to share more in depth...

[TheAuthor]

Hi zenagain71

I am so delighted to read that you are finding things that work for your Fibro, but as Foggy says what works for one may not necessarily work for another. I sincerely hope that your regime continues to work well for you.

I have multiple health conditions and take many different supplements including Accrette D and Alendronic Acid for Osteoporosis which I have lived with for many years, they manage to ''sort of'' stabalise my condition so my bone density does not decrease too much over the years.

All my hopes and dreams for you

Ken

[Hidden in reply to TheAuthor]

Thanks...I sincerely hope all Works for you as well!! I will still always lean towards proper nutrition as a base then supplement around that... Hydration is key too!! ☺

[jools56 in reply to TheAuthor]

Ken, I have started Alendronic Acid this week after being diagnosed as "osteopaedic" (I think the term was) following surgery, radiotherapy and prescription of Letrozole to lower oestrogen levels, as those treatments can cause osteoporosis. I had a tiny breast tumour but as it was caught so early, that's been the extent of my treatment. I've also been prescribed calcium/vit D3. It may be a coincidence, but on the evening of taking the first dose of AA, I had one of the worst fibro flare ups I can remember. It took hold at about 9pm, and despite taking 2x cocodamol, my usual 2x10mg amitriptyline and 1 2 mg diazepam, nothing would stop the pain. It felt like a migraine - but in every muscle and joint, as if someone was sticking knitting needles into me. It woke me at 11.45 and 1 am, and despite having enough meds to knock out a horse, I took 1 more co codamol. Slowly I felt the pain start to wane, and the relief was immense, but I could only fall lightly to sleep off and on. As a fellow fibromite, have you found AA made your symptoms worse? Was it a side effect that settled? There was a major change in the weather too, (from warm to chillier/rain) which can be a trigger for me, so I don't want to come to a hasty conclusion about stopping AA. The advice leaflet says a very common side effect is "bone muscle and joint pain which is sometimes severe". Any advice welcome, please.

[TheAuthor in reply to jools56]

Hi jools56

I am so genuinely sorry to read that but I can relate it completely. When I started taking it quite a few years ago I had a very bad flare and I felt like I had a migraine and I was exceedingly nauseous. Fortunately it did wear off after a couple of doses and so I am presuming that it was a side effect of never taking anything like this before? However, I still get stomach ache for a couple of hours after taking it and sometimes I get a feeling like I have acid or something in my throat for the morning. My nurse says to sit still (and upright) after taking for about an hour and everything should be fine.

I have had joint pain and throbbing in the bones near my calf muscles but my GP insists it is my arthritis but I am not 100% convinced? As my arthritis usually only affects my joints!

I sincerely hope that you do not get a repeat episode of this my friend, and if it persists it may be best to discuss it with your doctor as it can cause harm in the long term, sadly it is the nature if this medication. Please take care of yourself.

All my hopes and dreams for you

Ken

[jools56 in reply to TheAuthor]

Thanks Ken. I took my second dose on Monday - throat and stomach fine, as I left a full hour after taking the AA with a large glass of water and remained on my feet. (Gosh do I miss my morning cuppa first thing!) But yesterday (Tues) I began to feel achey, and by lunchtime I had to take paracetamol, ibruprofen and rest in the afternoon. As I've had flare ups in the night, I took 2 co codamol with my usual meds at bed time. Well, by 2 am I was woken by severe pain in my finger joints and wrists. As it was 4 hours since the last dose, I took more painkillers so that I could get back to sleep. By the time I woke at about 6.30, my hands hurt so much that I rubbed Voltarol gel into them, which eased it a bit, just so I could make my cup of tea. I noticed that my hands were swollen. Like you, I also have osteoarthritis, but I've never had pain like this in all my finger joints at once. I am convinced now that the AA is aggravating both conditions. Rang my GP (as on checking the leaflet, swollen hands is a side effect, as is joint, bone and muscle pain) but she is away until Monday. I'm not taking any more of them until I have discussed all this with her. I was just feeling that I was getting on top of things, recovering from the tiredness caused by the radiotherapy, and now this med is making me feel poorly.

I suspect your bone pain isn't your arthritis too, we fibromites get used to sussing out when the doctors are trying to fob us off for a quiet life!

Thank you so much for your listening ear.

Jools56

[TheAuthor in reply to jools56]

Hi jools56

I am so genuinely sorry to read this and I do not blame you for not taking anymore until you have spoken to your doctor. I have never experienced such serious side effects, as I said before it was migraines and nausea and the sense of something stuck in my throat. I want to sincerely wish you all the best of luck when you get to see your GP.

It is highly possible that some of my pain and swelling is related to this, and / or other medication as I am such a lot. Please take care of yourself my friend.

All my hopes and dreams for you

Ken