I'm just wondering if any of you have suggestions on what to use for the sudden onset of tingling all over your body .even clothes touching me hurts. Like a constant tingling burning sensation .even to take my hand and go up and down my arm or leg feels very strange.funny sensation feeling.
Sound familiar to anyone.
Just started yesterday more annoying than anything. Feels like I want to shake it off but no such luck very uncomfortable.
Any suggestions.
Sorry so long away ..but so glad to be back.
Just trying to accept all the new changes.
Tingling
Lightheaded.. Dizzy...wobbly legs..need I go on..
Thanks all
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sweetdreams1234
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Allodynia is pain, generally on the skin, caused by something that wouldn't normally cause pain such as pressure from clothing or sheets on a bed. Believed to be a hypersensitive reaction that may result from central sensitization, which is associated with fibromyalgia.
There are three types tactile allodynia caused by touch, mechanical allodynia caused material rubbing against the skin and thermal allodynia brought on by temperature changes.
Hoping this gives you some ideas for doing your own research as I am not a doctor only another person searching for answers.
Pain is broadly divided into two types - nociceptive pain (tissue damage) and neuropathic pain (nerve damage). The neuropathic pain does not usually respond well for standard pain killers, however it's often eased by antidepressant or anti-epileptic medicines at lower doses than for there original purpose. This will take time with a doctor locating a treatment that you can tolerate and manages the symptoms.
Could be RLS, restless leg syndrome doesn't only apply to the legs it can be anywhere over your body, do you get this feeling early in the evenings when your settling down? If so it sounds very much like RlS. Hope this helped.
It sometimes can be really hard to describe the feeling but it can drive you insane, activity when it starts helps but I've stayed up all night because of the RLS, I take Pramipexole this is a drug designed for suffers of Parkinson's but it helps those who suffer from RLS, down side it will give you really bad headaches at the beginning but it does settle down, mine took four weeks.
Yes had this every day for about three years. It now feels like a whooshing sensation. I also get spasms in my hands and just drop anything I'm holding as if my hands do things too early or have a mind of their own. You do get quite used to it and you know it's there but you tend to ignore it. I think to have to do that to 'get bye ' or you would freak out.
Hi sweet dreams, If what Ian says is right and it always is. I have all three, I always feel sunburnt ALL over, most of the time its mild enough to ignore, or i have just got used to it.
Clothing usually goes on about 10 or 11ish and off again at tea time, when i cant stand warm winter clothes tickling, itching and the feeling that my body hair is being plucked out one at a time any longer. It is then none fluffy jim jam time. I went out wed morning and had to put shoes and socks on, it took a hot bath to stop the irritation in my legs and feet,even after i had taken them off.
My family all know not to touch me. Even a gentle finger brushing my arm can send an electric shock like pain shooting up my arm. I gave a poor lady who accidentally and very gently elbowed me in the ribs when in a busy super market a shock, i screamed as though being
murdered.
The only things that seem to help all my skin irritations, including RLS is a hot bath or shower. Though for some i can imagine them making thing worse. I can only shower because i have a very gentle setting on the shower head.
I hope this helps or that you can find some other way to get relief.
Not sure if you will see this mayrose, as I know it has been a while since you posted. I just wanted to say I used to feel this skin pain, neuropathy, tingling, creepy crawly, feeling every single day. I still feel it occassionally. Which is much better than it was. I have lowered my pain medication dosage. What is helping me now, more than anything, . is legal, high thc medical cannabis. It hr
Hi Sweetdreams Yes i have the same car''t even stand the bed sheets near my skin at times. And when holding the younger granchildren if they knock me the pain shoots over my skin it is somethink I have discussed with all eg. GP, pain manager doc, physio, ect , with no answer but its part of the fibro,The only advice I can give is when at home and indoors just put light weight clother's on when indoors. and as .Paula22 i have the same and has dropped many cups, plates ,ect family make a joke of it now by saying MUMS BEEN DOING HER GREEK DANCING AGAIN BY SMASHING THE PLATES SO KEEP SMILEING and you will get used to it as its the only thing we can do,Have a very Happy Christmas and keep SMILEING.XXXX
I suffer the same sensation it like nothing I can pinpoint, I get it in the back neck face and worse around my knee there's nothing I know of that will help I've tried most things, but it goes as quick as it comes since mine first startedabout six months ago it comes and goes rregularly, but I can constantly feel it under the skin waiting to flare up again sorry this isn't much help but your not alone feeling what you do xx
I've had this too, for over a year now. At first I thought I was getting a dose of flu, because I ached badly as well as having the extremely sore skin. I explained it to my GP like the feeling you had in your arm if someone gave you a "chinese burn"! (not sure if any of you on here remember those, it was something schoolchildren did to one another by holding one of your arms with both hands and twisting the skin in opposite directions!) It wasn't a very friendly thing to do, and used to sting like mad.
I was referred to a rheumatologist and she prescribed a low dose of Amitryptiline to be taken at night.
I still wake with it most mornings, it seems to be worse at night for some reason. It gradually reduces during the day, but can be triggered by someone bumping into me, or grandchildren suddenly jumping on my lap etc.... There doesn't appear to be anything that really stops it, although I have taken strong painkillers if it's keeping me awake at night. A warm wheatbag eases it a bit, and I do go for a massage every month or so, and strangely, although that might be sore to begin with, it is better afterwards. If anyone knows a complete solution please post on here. Good luck sweetdreams, I hope you and all on here have a Happy Christmas! MariLiz x
ps I've wondered if it's my low B12 rather than the fibro causing it?
I suffered this & a Clostraphobic feeling could not let partner even give me a cuddle it was so unpleasant for me, I then was diagnosed as pernicious anaemic & get B12 jags for this every 8 weeks I now no longer suffer this but unfortunately lost my relationship because of this as he thought I was rejecting him & it just took it's toll on the relationship x
Thanks for your reply honor1a, I think if I could get more frequent B12 jabs I'd be better. My GP only gives them three monthly. I have tried a sublingual spray, but after a few days my teeth feel on edge. I know what you mean about it making things hard within a personal relationship, sometimes I just don't want to be touched!
I got my jag every13 weeks to begin with, but after 9/10 months or more i said to my GP that i need the B12 more frequently, as by week 6/7 i am exhausted no interest in any form of life, from week 7 to 13 when I get my jag, i am going from bed to settee & in a lot of pain, it is also depressing me, not being able to live a semi normal life she agreed to try it for 3 jags at 8 weekly intervals if i feel better for it they would continue it at 8 weekly, i think age & lifestyle has a lit to do with it, I'm 55 try go walking 2twice a week with a friend, i go to aqua classes 3 times a week, meet a friend for lunch, trying to get out to keep an interest in daily life so it wasagreed my energy levels required jag more frequently. It's all down to what & how explained to GP plus my two GP's are young & forward thinking thankfully just keep going to GP even a little exaggeration on your symptoms if you feel it necessary to get the help you so need xx
Hi again honour1a, I just spent ages typing a reply and it disappeared, So I apologise if you've already seen this. My GP insists on a blood test result before allowing an earlier injection, so anything over 500 and you don't get the injection! Like you, I try to keep active, and go to Yoga once a week, an Art Class, and socialise with friends as much as possible. I can't walk as far as I used to because the pains in my feet and legs get really bad. If I try to force it, I really suffer that night or the next day. I am 65 now, so I suppose I must expect to be slowing down a bit. I am fighting it as much as I can though! MariLiz x
Sorry you seem to have an unsympathetic GP maybe because you're in age group expected to be slowing down, that he is refusing to give you it more often, but 65 is no age at all, try see othrr GP in the practice, it might also be a budget thing also
Hi Hunny it's horrible werid feeling like you been out sunbathing I get it regular, don't think there is anything for it you have wait till it wears off xxx bless thinking of you xx
I had similar sensitive feeling not the burning though also felt a Clostraphobic feeling couldnot let my partner get vlose or cuddle me I ended upbeing pernicious anaemic I get B12 jags every 8 weeks the sensitive Clostraphobic feeling went away hope this helps you. Hope you have a Merry Christmas x
Sounds like nerves. I don't mean nerves as in anxiety, but nerves in your body. You need to call your doctor and tell him/her. You might need a nuerolgist.
My utmost sympathy. I have same symptoms for 4 years and done the rounds of pain consultants and neurologists and was dismissed as psychosomatic &/or fibromyalgia (I was diagnosed 2002). However, this year I struck lucky and found a neurologist who is interested and he calls it sensory neuropathy. I am on list for skin biopsies to diagnosed more accurately. I now see a pain consultant who is interested. I get about 50% relief from pregabalin 600mg daily, lidocaine plasters used on the major burning body parts (this fluctuates as you will know) and simple paracetamol and ibuprofen. Opioids (like Tramadol) help many people but I was resistant. There is nothing (at present) that can give 100% relief from the burning or irritation. I would write down all the locations of symptoms and how they change depending upon activity level, weather, type of clothing and see your GP. Some GP's are amenable to patients requesting referrals to a neurologist and/or pain specialist. I asked to see a pain specialist who then referred me to a neurologist (stroke of luck!!). Diagnosis takes ages but has to be worth it to get a decent management plan in place.
Hi there. Just read this and thought OMG, I have the same! Mine is likened to that fad years ago that you wore round your waist and it gave you a tingling! I have it constant and I went to the doctors and he said there was nothing he could see...I hope it clears for us both but with fibromyalgia, anything goes! Stay well and have a good Christmas.
I am so sorry to read that you are suffering in this way, and I can see that you have been given some wonderful advice in your thread so I will just wish you all the best of luck with finding the answers that you so desperately desire and deserve.
Hi i was getting what started off as a tingling sensation like pins and needles in my feet tingling burning sensation sometimes even changing to a cold freezing tingling sensation. I also feel light headed and dizzy and have an uncomfortable twitching crawling senasation in my legs, I already get b12 injections once a month and when went to see the doctor ,was referred to the neurologist who done some tests by putting small electic shocks sensations on my legs to to a nerve conduction test. It turns out i have perphiral neropathy in my legs ..nerve damage so go and get this checked out immediatly. Sometimes i even stagger backwards a few steps when walking and u would think i was drunk though i do not drink. I now get vitamin b complex tablets folic acid and gabapentin to help with my legs.You could also ask the doctor for a muscle relaxant to see if that works i take robaxin 750mgs seems to help me any more questions please ask x
Sorry for the late response... Thanks for all your kind words and sharing.I'll get this checked out about the vitamin b I do take vit D and magnesium.. But the pain in legs and lower back the tingling and numbing is still persistent off and on..went for massages and do help a bit.
Gentle hugs.sweetdreams1234.
Hello sweetdreams. How are you today? I'm hope you feeling better!?? I have allodynia too.It started 2 years ago after a bad case of flu with tingling burning in my legs then it spread till the top of my head,it also felt like awful aching under the skin and wasnt able to use bedsheets or sleep next to open window as the wind touching the skin can make the pain more stinging burning it is an awful condition to live with,my pain doctor thinks its central sensitization from my fibromyalgia which i suffer with since age 17 im 26 now and still have fibro with constant allodynia throughout my body its very had to choose clothing with this condition.Please never give up hope as this condition can make you feel helpless and angry and depressed..I can't have a normal relationship too as i struggling with my boyfriend due to pain all over skin and can't bear being touched,as its very painful,also developed vulvodynia how lucky huh??i cry a lot and "pray to god" that this will pass one day and i can live then a relatively normal life again, like before it all started...even the severe muscle pain of fibromyalgia is more bearable than pain from clothing and touch and hugs its debilitating...I cant imagine how am i going to have a baby or a family with my partner due to this condition.. I was trialled on 3600mg gabapentin but it didnt help and then decreased it to 900mg and now i only take 600mg and 50mg Imipramine at night i also had a trial lidocaine infusion in the hospital in october which required me to be in the hospital from 8-3pm and the IV procedure took 3.5 hours to complete i had no relief with that too, but im awaiting another apointment soon to have more infusions as my doctor thinks it might desensitize my brain if i had more infusuions,if that doesnt work then i dont know whats going to be the nexstept???He also said my case is very unusual and he never seen a similar case throughout his practice as a pain doctor and he is 60 I'm very sad i have to work full time and its so hard...Plesae be persistent with docotors to get the best possible treatment available.please tell me more about your symptoms and what have you tried yet? I tried lots of antidepressants Cymbalta Effexor,Amytriptyline,Duloxetine, Zoloft Co-codamol,Tramadol,Naproxen and many more,all of it with longest possible trial time with no relief just horrible side effects on top of illness great.. but i find Imipramine 50mg relatively helpful i get less really bad awful pain days,and more bearable pain days with it im also able to hug some days lately so its kind of working well.Sorry about the long story i just don't know who to talk to,im from a foreign country and have no friends just my partner and i guess i moan a lot to him about my illness and pain and i feel guilty about this too,because i cant help myself.I'm hoping to make some friends here to speak to,who understands my pain .and i would love to listen to ohers difficultis aswell i might be able to give some advice.And i would like to hear advice too regarding living with chronic pain.Thanks for listening if you read all then you're a hero in my eyes as another symptom brain fog can make this difficult.Take care get well soon or at least better darling, hoping for the best for all of you.gentle hugs xxxx
Sounds like small fiber peripheral neuropathy. Given whole body sensation and sudden onset consider small fiber ganglionopathy (often seen in an autoimmune diathesis but other causes should be considered such as DM/metabolic disorder, etc). Should have proper work-up. Medicines like gabapentin and duloxitine work well for pain but also need to determine underlying cause. sleep, exercise also help with pain control.
I hope you are feeling better. I have peripheral neuropathy and that's not it!!! You have an easier issue, but potentially more dangerous. I hope you're still with us, but read this article, (mobile.nytimes.com/2003/11/... )and check your heating system immediately. This is a sign of carbon monoxide poisoning. Your heating system could be compromised. Get a monitor and check. Or call bord gais. Fire department or landlord. I REALLY HOPE YOU WILL FIND THE ISSUE. SAVED MY LIFE THIS ARTICLE!
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I have all three, I always feel sunburnt ALL over, most of the time its mild enough to ignore, or i have just got used to it.
I'm very sad i have to work full time and its so hard...Plesae be persistent with docotors to get the best possible treatment available.please tell me more about your symptoms and what have you tried yet? I tried lots of antidepressants Cymbalta Effexor,Amytriptyline,Duloxetine, Zoloft Co-codamol,Tramadol,Naproxen and many more,all of it with longest possible trial time with no relief just horrible side effects on top of illness great.. but i find Imipramine 50mg relatively helpful i get less really bad awful pain days,and more bearable pain days with it im also able to hug some days lately so its kind of working well.Sorry about the long story i just don't know who to talk to,im from a foreign country and have no friends just my partner and i guess i moan a lot to him about my illness and pain and i feel guilty about this too,because i cant help myself.I'm hoping to make some friends here to speak to,who understands my pain .and i would love to listen to ohers difficultis aswell i might be able to give some advice.And i would like to hear advice too regarding living with chronic pain.Thanks for listening if you read all then you're a hero in my eyes as another symptom brain fog can make this difficult.Take care get well soon or at least better darling, hoping for the best for all of you.gentle hugs xxxx
Dead/numbness tingling legs
Desperately wanting relief from pain :( 
What is wrong with me? Please help!
Does anyone get really bad tingling lips and legs give way at times with fibro x
