Info on Fibro

I’m new to Fibro and find some of my family and friends very dismissive of my condition. I feel that they don’t understand the full impact of how this makes you feel and think or how the pain travels from one part of my body or jaws to another in any given hour or day. When I was diagnosed by a private consultant. I left his office with him giving me a letter for my GP of which meds I should take and that was it! No leaflets of what to expect or anything I could share with family so that I may be listened too sincerely. Please can someone point me in the right direction to obtain some leaflets. There’s plenty of info on Google but I rather have something from an approved medical source?

[phlebo123]

Hello and welcome! May I suggest that you look on the fmauk.org website? There is lots of useful info and some leaflets about fibro that you may like to print off and show to your family and fri ends

I am sure lots of us here can understand how you are feeling, because unless you actually have the condition it is so difficult to know the impact it can have on our daily life.

take care xxx

[Hazel_Angelstar Administrator FMA UK Staff]

Hi and a warm welcome to our community. Here you will find information, sorry, friendship and laughter too.

You can order FMA UK resources at fmauk.org/resources however there will be a delay in sending them out, as we are all working from home at present.

[Nelly1]

Hi Chillix,

This is a great explanation of Fibro for family and friends.

Stay safe

prohealth.com/library/a-let...

[Midori]

Check out The Spoon Theory as well; it could help your family to understand how energy depletes over the days and why you become fatigued easily.

[Julesubu]

Some areas have Fibro clinics or maybe a pain clinic will have hospital info. It is very hard for anyone else to understand if they don't have it as we look ok on the outside.