Newly diagnosed

[GRANADA68]

New member just found out have fm thought I had cancer mri scans colonoskby not good blood tests galore no answers 😡😡😡😡 but no know what I have totally screwed up so Much pain ibs legs killing migraines the lot how do you all Cope !!!! Xx

[Ramjets]

Hi GRANADA68 , I can totally relate to how you feel, I went through stages of thinking I had MS, Parkinsons, suffered a stroke...the journey to fibro diagnosis is definitely an emotional roller-coaster so it is bittersweet when a name is finally given to what you are suffering. We all have our own ways of coping whether through medication, alternative therapies etc. I personally have tried to get by on minimal meds although I do have to take beta-blockers for my migraines as I have been unable to find anything else that eases them at the moment. However I have found that regular gentle exercise (and more energetic activities when able), sticking to reasonably healthy diet, soaking in warm baths with Epsom Salts, pacing myself and using distraction techniques have helped me manage my condition to a certain degree. I am sure our friendly members will be happy to share their ways of dealing with the many symptoms of fibro with you. You have definitely come the right place to receive lots of help and support. There is also plenty of useful information and links on our main site so you may like to check this out at some point:

fmauk.org/

I would just like to mention that I've noticed you haven’t locked your post. You don't have to but many of our members are not too keen on responding to unlocked ones as they can be read by people outside the Community. Therefore you are likely to receive more replies if you lock it. Instructions on how to do this can be found on the link below but if you get stuck please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

So welcome to the forum, we look forward to hearing more from you. Take care. x

[GRANADA68 in reply to Ramjets]

Thankyou for your reply so good to speak to people going through the same thing still getting my head round it x

[YASMINTINA FMA UK Volunteer]

Hi there and welcome I take each day as it comes ,always going to be bad days and enjoy the better ones. I sometimes look back on my week and say to myself look at the positive things you did this week , even if it’s a trip to the shops , a coffee with a friend, every day is different and small achievements just keeps me positive. I hope joining the forum you can chat to other members for advice tips etc, if you would like to lock your posts it normally generates more replies as only our forum can see here’s the link. healthunlocked.com/fibromya..., I’ve found this a great place to share, support, and be supported lovely bunch of people xx

[GRANADA68 in reply to YASMINTINA]

Thanks so much for your reply xx

[rach1402]

It's totally normal to feel angry, confused, scared and hard done by when you're chronically ill but you don't have to feel lonely or misunderstood here, you're in good company and try not to give yourself a hard time, it's not your fault you're unwell.

There's no cure for fibromyalgia but we all have our own ways of dealing with the symptoms, be it through medication for pain, inflammation, anxiety and depression etc, or lifestyle changes (baby steps with diet and exercise is more successful than a drastic change) , there are even a few unconventional approaches you can try but always check they're safe before you try them.

Read up on it as much as you can so you can make informed decisions because it affects everyone differently so there isn't a one size fits all treatment, it's about finding out what works for you. Some general tips from my experience are to spend your good days doing things you enjoy with people who are loyal and understanding, rest when you're tired and don't feel guilty about it, you're not lazy you've got a debilitating condition that's not your fault. Avoid people and situations that make you feel worse and don't try to push on through the pain, it doesn't work like that for us, it just makes us feel worse for longer.

If you need your spirits lifting or you feel like nobody understands this group is always here. Even if you don't feel like posting anything, just reading the thoughts of people who understand what you're going through is comforting if you're having a hard time.

Take care and be kind to yourself, you will find things that help you along the way. 😊

[GRANADA68]

Thank you so much makes such a difference to talk to people going through this, I hadn't even heard of this before I got it so everything is so new doing lots f research ! Going to a local gym Monday they have a hydro therapy pool so hoping this will be helpful☺️☺️☺️ Thanks again

[GRANADA68]

Don't know what to do about going back to work