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Fibromyalgia Action UK
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Unsure

Hi. I have been experiencing constant pain in my neck and on off incredibly painful headaches over the last 3 months after several trips back and forth to the doctor but to no avail and the pain still remains almost everyday. I have also been experiencing sleeping for almost 9-10 hours a night and wake feeling like I haven't slept at all. I have raynauds and that is all I know to be honest.

Any feedback regarding if anyone else has experienced similar and how they went about explaining to there gp the issues they have been experiencing. I have never heard about this until yesterday and some of what I have felt over the last few months relate to this.

Many thanks

8 Replies
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This probably won't help but ended up in hospital with headaches and had over a week worth of tests to be told they had no idea. Long story discovered on my own that the headaches were causes by cinnamon, I was drinking Chai and even took the tea bags to hospital with me.

Hope you find your solution soon.

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Thanks for the reply. Yeah I ended up in a&e with my head and neck pain being tested for meningitis luckily it wasn't that, but 3 months on as I say still no relief from the pain.

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Cervical spondylosis can cause neck pain, stiffness and headaches which normally start at the back of the head and then go over the top. My OH and I both have it and have both experienced similar symptoms and we were both diagnosed through having Xrays. I have had mine for about 20 years and I have got to say it seems much better than it was but I sometimes wonder whether it is because I have so much pain elsewhere now that I concentrate on that area less. I don't have the sleep problem at all and unfortunately am the other way and rarely get more than a snatched half hour at a time. My OH used to be the sort of person who was away once his head hit the pillow but blames his disjointed sleep to the pain in his neck. Quite a few peoplem with fibro seem to have Raynaulds I have a mild form of it and dread the winter months.

It must be very frustrating for you to not have a proper diagnosis, hope you get some answers soonx

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Thanks I appreciate it thanks for the detailed reply. Take care :)

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Hi there stephgaslight (can I call you Steph please, as it's a bit of a mouthfull otherwise :-) )

I am wondering whether you headaches are infact migraines, have you discussed this with your doctor at all? If not I would suggest that you make an appointment and also ask him if he/she knows anything about fibro, if so you might suggest a trigger point test and/or a referral to a rheumatologist, which could clarify matters for you a lot.

Sending lots of positive, gentle healing vibes your way :-) :-)

Foggy x

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Thank you stephs fine :)

I have mentioned them, one doctor tells me it's a migraine and the other says it's just a headache put me on antibiotics to clear my sinuses and a week later still no change. I will keep pestering them until I get somewhere x

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Hi Steph,

I really do think you may need a second opinion on this as your GP sounds like he's a person who prescribes antibiotics for anything, without doing the ground work first. Do keep pestering though as some doctors consider themselves infallable, often missing what is staring them in the face

More positive vibes winging their way to you post haste :-) :-)

Foggy x

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Hi Stephgaslight

I am so sorry to read that you have been suffering with these issues and I genuinely hope that you can find some resolution and relief to the problem. There could be many reasons for what is happening to you, and it may be best to look at all the aspects of your headaches and their build up?

I suffer with very bad Migraines which give me an aura in my vision and vomiting, do yours do this? You may (as rosewine suggested) have another medical issue such as Cervical Spondylosis which is causing the issue? Fibro can cause headaches? So the cause is vast.

I have pasted you a couple of NHS Choices links below relating to cluster headaches and migraines so I hope that you find them useful:

Cluster Headaches

nhs.uk/Conditions/cluster-h...

Migraines

nhs.uk/Conditions/cluster-h...

I want to wish you all the best of luck with finding the answers that you so desperately desire and deserve. One extra foot note that I would add, is to keep a food & drink diary to look for any coincidences in what you have in relation to your headaches and take this to your GP.

All my hopes and dreams for you

Ken x

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