I had a visit from a dr who I have since found out he has been retired for 12 years.
I have fibromyalgia, arthritis in my hip and feet I also have plantation fasciitis and he has basically written me off saying I am capable of doing everything without help. I have my whole house with adaptations from the OT, a wheelchair, walk in shower, I am also incontinent and have pads supplied and have attended a 12 week pain management course and attend the pain clinic. I take so much medication it's ridiculous.
I am trying to get as much support from the professionals that believe me but does anybody have any advice x
Written by
Kierakid
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Try looking at fmaukorg and join local support group.Fma have benefits advisor on end of phone 2 sessions a week she can guide you through maze of DWP!
Support groups are for anyone who has FMS or is living/caring for one with FMS.
Give it a try.Remember 2 ways to go with FMS...
Either it rules you or you rule it!...I know which one I want!
I am so sorry to read this, and I genuinely hope that you can find the answers that you so desire and deserve. I have pasted you below a link to the lists for support groups from the FibroAction site:
I have read posts from so many members about poor treatment or unhelpful GP's etc, and my advice always is keep trying different doctors and / or surgeries until you find a good one, as they are out there! Many do not appear to truly understand Fibro, but I have found that is the same with many medical conditions?
Firstly, I want to say that I hope your PIP assessment went as well as can be possible. My thoughts are with you.
I sincerely hope you don't mind me asking you, but I have read a lot about people applying for PIP having to go and have a medical. When I work out how to do a post, I was going to ask if averyone, including people transferring from DLA to PIP had to have a medical, but until I can work that part out, I was wondering if you could help me, as you said that PIP are going to you rather than the other way around, what are the deciding factors that make them come out to you?
I would be most grateful for any advice you may be able to give.
hi there no I don't mind but pip didt turn up I phoned twice and was told they don't no why they didt turn up got to ring tommorow I'm changing from DLA to pip I just got a letter to say they were conning here as I can't get around to much maybe that's why I don't really no sorry I can't help hope you are OK x
Kierakid, I think I've posted about this before, but here goes, if it's any use.
2years ago I had a visit form a doctor on renewal for DLA. I was turned down on the basis of his report and went to appeal ( as I had done before). I asked for a copy of his report before the appeal and went through it really carefully. I noted where I thought he was wrong or where I had been quoted wrongly or my information had been wrongly misinterpreted. I challenged each of these points and gave my reasons. I also showed it to my own GP and asked for her assessment. I know they are cautious about critiscising a fellow doctor, but they know your case better!
I presented a copy of this document to each member of the panel at my appeal at the start as the basis of my reason for appeal. This saves anything being left out due to nerves, brain fog or whatever.
In my case, the visiting DR said my back problems rated 2 on a scale of 1-4 and I had minimal difficulty moving etc etc. despite having the aids etc in the house. I understand your frustration at the decision but do please fight it. 3weeks after my home visit, I was in hospital having 3discs fused, decompression, rods/screws etc inserted to stabilise my spine-the visiting dr completely ignored the fact that I had told him I was waiting for a definite date for surgery but it was imminent! The fact that he got it so wrong seemed to be the deciding factor in the decision at appeal to grant me higher rate mobility. They did drop my care to the lower rate, which I disagree with but I didn't force the issue, when the mobility component had been upped. I re-applied in Sept of this year and waited to see what they would do-no visit from a DR and higher mobility and lower care indefinitely. It was such a relief!
It seems overwhelming but do fight it. Make sure you take someone with you to an appeal. You can have someone to speak for you if you wish, so ask citizens advice about that. I hope things improve for you and you get a good solution. Xoxox
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just received my medical report form a registered NURSE at ATOS ??????
Appealing DWP decision after Atos medical
Pip ATOS report.
Medical Assessment (ATOS)
