Fibromyalgia Action UK
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Fibro help

Hi I got diagnosed back in May and luckily the doctors found it very quickly. I tried all sorts of different tablets but recently feel I'm on the right one. I have been on them about 6 weeks and as they were helping the doctor doubled the dose. This hasn't made any difference.

But mainly I wanted to ask if any body had any good tips on how to cope? I find it very hard as I feel nobody understands the pain/ tiredness I feel. I suffer really bad with headaches that sometimes I can't lift my head off the pillow.

Any help would be appreciated on things that have helped you? Im new and hope to be able to talk to people going through the same as me for once!


5 Replies

Hi there Lucytick, and welcome to our very friendly forum :-)

Everyone here will be understanding same are all in the same boat. Could I suggest that you take a look at our mother site where you will find lots of useful information and contacts.

We are a fun bunch and most of us believe that laughter is helpful and that laughter releases feel good endorphins, so you may find some you want to join in with or alternatively not, but whichever is right for you.

My tip which is really the most important one is pacing, and gently trying to get a routine which suits you and reduces your pain levels.

Sending lots of positive vibes your way :-)

Foggy x

1 like

Hi can only agree 100% with foggie laughter is wonderful and pacing a day at a time be kind to yourself and gentle !try not to get stressed. Look up the spoon theory ,for pacing and getting others to understand. And maybe ask GP about a pain clinic. Good luck.

Chris :)

1 like

Hi Lucytick

Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful and informative.

I agree with our Foggy all the way here, pace yourself and do not overdo things or it is a recipe for a flare up. I want to wish you all the best of luck and I genuinely look forward to bumping into you around the forum.

All my hopes and dreams for you

Ken x


The advice I would give is to listen to your body and make sure that you get enough rest. I agree with Foggy below - pace yourself and don't feel guilty if you have to stop - it works for me. I learnt the hard way!

All the best to you - it can all be managed :-)


Get a good pillow sweetheart and sometimes moist heat helps. On down the road you might have to go to the pain clinic. I got to the point I couldn't lay my head down on the pillow as I had so much tension in my muscles it was horrible. It hurt my shoulders, neck and the back of my head. Once I had to go to the urgent care clinic because of a sever headache. Do the best you can but don't suffer if you don't have to honey!!! Hope this helps. Hang in there. xxx Mitzi


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