Mr.

[andy65]

Hi all hope you don't, mind but iam having a really bad couple of weeks.so tiered I have had this sh**yyyy condition for 20years and still have to explain to my family what I go through...pain is so bad I don't no if I can take this enymore sorry to moan thanks for listing.

[Angiedeaks]

I know how you're feeling, I'm having a bad time too at the moment... Really sorry you're not good at the moment and hope you can get some relief. People can't fully understand if they don't have it. I've had 10 years of it (since I was 22) and I've had to accept that this is how I am now, learning to live with it is soooo hard, and seems unfair but we got to try and enjoy good days and just cope and ride out the bad. Easier said than done I know..Hoping you get some relief, take care xx

[Kittyletmein]

Hi andy65,

I do feel for you and know how difficult it is for us and our family and friends to walk in our shoes and everything feels worse when you have to find the additional energy to constantly educate them. My children dont understand and my mother-in-law is worse...no matter how many times I say this is something I have to live with she always without fail says well I hope you get better soon.

Do you any family member or friend you can be your advocate with family?

Please feel welcome to voice how you feel anytime or day. We all here experience and understand as we walk in the same shoes (though mine are a size 4, no correclation to pain teehee.

Do hope you feeling little better soon.

LMIP -

[Iampain]

Hi, I think k most of us have been/ are feeling like this, I was told by an honest doctor two days ago to expect pain for the rest of my life. Although I always appreciate honesty, to have her sit there and coldly state the facts devastated me. Most of them skirt around the issue, and quote from their script... Exercise lose weight pace /take tons of meds see you in a month it flows from their lips like so much verbal diahroea, but they don't actually understand how it makes us feel. I feel as though I'm a nuisance, a drain on resources, in the way,that its somehow my fault I'm sick!.... but these are negative feelings and we do have to push through them.

So I've written myself a set of rules, and I'm going to stick to them

If things feel desperate talk to someone about it

If doctors are hopeless, go somewhere else

If you don't feel happy with your personal arrangements change them!

Use whatever resources are available without guilt we deserve to be helped

Above all, try to set apart a portion of each day to do something you enjoy

Feel free to rant rave and moan on here, we've all got to vent, and support is guaranteed from this lovely community

[Betty67]

There is hope I have had this condition since 1985 and the only time I got any relief is when I went on holiday to a small Mediterranean island. last November I was at rock bottom and decided to do something very drastic I moved. This morning on the phone my father asked me how I was managing to get my medication and I don't need it any more. I know this sounds a bit extreme but it does show that there are solutions you just need to find yours. I still moan and groan and miss my husband but as my sister said I am a selfish b**ch.

[Lolis in reply to Betty67]

You are not a selfish b**ch. I don't believe it for a second. Your sisters problems are your sisters problems. You are not a selfish b**ch.

Look after yourself emotionally as well as physically xx

[Betty67 in reply to Lolis]

Funny have just skype an old friend, normally we email and she said I was looking the most relaxed I have ever been.

[Rosetta2014]

You are permitted to moaned and groan we all get it. It's been 17 years hellish years for me it took 14 yrs for my husband to start to get it and my son has just began. people have to be in the right fame of mind to want to understand fibro is very complicated and multifaceted. I feel your pain.

[Rosetta2014 in reply to Rosetta2014]

andy65, your are so very welcome xxx lots of gentle hugs

[TheAuthor]

Hi andy65

I am so sorry to read that you are feeling so poorly at this time and I genuinely hope that you start to feel better soon. I was wondering if you have been to discuss this situation with your GP? As there may be some other medication that they can offer you to help alleviate your pain symptoms?

I want to wish you all the best of luck with finding the answers that you so desperately desire and deserve.

All my hopes and dreams for you

Ken

[loraine12]

Hi so sorry you are feeling so much pain and feeling so down. It seems that the world at large do not know what we go through, I was diagnosed a couple of years ago but no one has ever asked 'how are you' recently I feel and fractured my patella and people flooded in to see how I was. When I would say I'm terrible because it adds to the pain I already suffer they stopped visiting. Maybe some day someone famous will speak about fibromyalgia and then we will be understood. Please know that we all understand and you are not alone, Loraine x

[mitziblue]

Sweetheart, have you tried a pain clinic? It's really helped me. xxx Mitzi

[Hidden]

Hi love I know what you mean im tired of my family not accepting that im I'll they make me feel like it all in my head I even dont use my stick when with them said I need a wheelchair as some days csn hardly walk and they laughed at me and told me to grow up thinking of you hugs love jillxx

[Shadows-walker]

Hi Andy ,I have only the three children all the rest have past away , and my two youngest children are brilliant ,to the point where they drive me mad as they overly fuss , they mean well, but my ex colleagues were appalling ,I think because I drove my children mad with how much I did and I was incredible independant ,I have to ask now for help and I have had to learn to ask which I hate ,my daughter is home at moment and she has been been brilliant with how much she has done for me ,but the last 3 weeks we have had a few arguments because I over do it , i have been feeling better because ,she been doing everything and hasn't let me ,I am so sorry your family don't understand I think because it's all new to me and mine ,they get a shock when they come home, it's the distance thing may be , I read a lot of post on here about family and colleagues not understanding , I think it takes unique individuals to understand this condition when not haveing through it themselves ,I didn't know what pain was ,constant pain as we all now unfortunately is hell, be kind to yourself come on here everyday and rant it helps we all understand ,it's just bloody hard for you I know as it's your own family ,someone explained to my daughter it's like haveing wisdom teeth coming through all over your body and they are right I think anyway please post again so we know how your doing we do care xx