My consultant has put me on azathiopr... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,957 members67,095 posts

My consultant has put me on azathioprine for my pain ,but the side effects are awful has any one else been on it for fibro.

stargazer0117 profile image
4 Replies

Has any one tried crane therapy,or osteopaths for pain relief has it helped any one .If you have tried azathioprine and did it react with the steroids.

Written by
stargazer0117 profile image
stargazer0117
To view profiles and participate in discussions please or .
Read more about...
4 Replies
hamble99b profile image
hamble99b

hi stargazer, it's a bit quiet on here at the moment.

hopefully people will be on tomorrow who can answer you as I haven't experienced any of them.

regards,

hamble.

TheAuthor profile image
TheAuthor

Hi stargazer0117

I sincerely hope that you are feeling as well as you possibly can be today? I want to say a big hello and welcome to the forum, and I genuinely hope that you find it useful.

I have never used Azathioprine, but I have pasted you a link from Arthritis UK about this medication, so I genuinely hope that you find it useful:

arthritisresearchuk.org/art...

I was curious about you asking about reactions or interactions with steroids, so I have read up a bit on the drug, and it can have the same side effects as steroids, in that Azathioprine should be used with caution in: the elderly, liver or kidney disease, patients with a condition in which their body produces too little thiopurine methyltransferase or TPMT, patients who have ever had chickenpox or shingles, patients who have recently been in contact with somebody who has chickenpox or shingles, patients who are going to have a vaccination, patients with the rare inherited condition Lesch-Nyhan syndrome. In exactly the same way as Prednisolone does! Are you taking Prednisolone?

When you asked about Crane Therapy, are you referring to the counselling service? As they use a more holistic, mind-body approach to treatment, weaving together techniques from Cognitive Behavioral Therapy, IFS, mindfulness/acceptance and yoga. Many Counselling organisations use such approaches these days, and especially mindfulness which has become very popular in the UK over the last few years.

I want to wish you all the best of luck and I genuinely look forward to bumping into you around the forum.

All my hopes and dreams for you

Ken

bluebell99 profile image
bluebell99

I took azathioprine for seven years, combined with prednisolone, for lupus. I had to have a blood test first to check if I had any of the conditions Ken has mentioned above, which fortunately I did not have.

I tolerated it very well, no side effects, and it certainly helped with pain and fogginess that lupus sufferers have. ( I have fibro and lupus, a double whammy!)

You do have to be careful though as it is an immune-suppressant, so make sure you have your flu jab, and stay away from those with infectious conditions like chicken pox.

I had to stop when unfortunately I was diagnosed with renal cancer and needed to boost my immune system. Just to say the two things are not linked by the way.

I did so well on it that I completed an OU degree in History, and although I have been off it for several years, I still miss it and the way it helped alleviate my symptoms.

It will take a few weeks to start working properly like most of these things, but based on my own experience I would definitely say, go for it.

Xx

Shazzzy profile image
Shazzzy

Hi Stargazer, after two car crashes i saw an ostoeopath to help with neck pain many years ago, I also had cranial therapy done on my toddler daughter as she did not sleep well, she used to wake up half a dozen times per night for 3 years, it helped enormously, i had forgotten about this till i saw your question. Hope you get some relief soon

Shazzzy

Not what you're looking for?

You may also like...

chest pain thought it was a heart attack, has any one else had this

a few weeks ago i went to bed as usual and started getting these chest pains for some time now i...
pennells profile image

can anyone give me advice on taking amitryptiline ive been putting off asking the dr for it but my pain is bad and getting worse my

daughter has just been diagnosed and is on it and it has made a difference to her pain levels are...
snowbird profile image

My GP has just laughed down the phone at me for having Fibro!

Rung the doctor today for some pain management and when I said this and that it was for...
emjane4465 profile image

What else can I do ? I am 20years old and have been been diagnosed with fibro and been put on amatriptaline and referred to the pain clinic

But every day is worse than the day before I can feel my legs loosing strength each day today is...
Johncarter93 profile image

gp has asked if one of his students doctors can see me to talk about fibro and how it effects me and my family.

gp just phoned he said could i do him a favour , he needs someone who has a long term chronic...
bellablot profile image