I have received a letter from my consultant saying I have 9 fibromylgia tender points. I did not know I was being tested for this as I was being prodded and poked all over due to severe all over body pain. All joints are sore and extremely week, muscles in tops of my legs ache and burn. I have carpal tunnel syndrome and my wrists and fingers swell (fingers especially at night). I get severe all over pins and needles, like being stabbed inside out and have been in a wheelchair for nearly two years due to the weakness, pain,constant tiredness and my leg muscles are just to weak for me to stand up properly. I have had a full MRI nuclear scan last week and xray to my cervical spine and hands. The radiographer asked if the sever pain in my shouldwes is worst on the right, which it is, he could see an immediate problem that the vertebrae in and at the top of my neck have closed together and are likely squeezing nerved - he said they looked fused. I am not seeing the rhuemy for another 7 weeks for the full results but am scared (other than my neck I will come away without a proper diagnosis for the all over pain. I also have cystitis and kidney infections one after the other and wondererd if this could be a symptom of fibro? I was in ITU before Xmas for 8 weeks (acute liver and kidney failiure, sepsis, encephalitis, portal hypotension etc and my husband and children were told that I would not survive and withdrew life support intervention. My breathing level went down to two a minute, which has caused slight brain damage, poor memory, forget workds and make spelling mistakes. Can no longer cope with numbers at all I got to the stage I was given 4 hours, the donation team were ready but for some reason my kidney started working and I have been slowly improving. My consultant isstill trying to find what caused it - I have only ever drank for a 4 month period in my life and I am 46. My consultant said there is too much damage than from such a small amount of drink. I am being tested for antibodies because t could be an auro immune disease. The rgeuny checked my blood foe ra antibodies, which I have not got but ir reqesting another test for CCP antibodies. If nothing other than my neck and shoulder problem show up, is 9 tender points enough to be diagnosed. After all this time I want a name and am scared I will never have one so will not know how best to hekp myself, do different Dr's have different criterias? Sorry fot the long post and many thanks for any advice you may give, So my symptoms sound familiar for fibro? Many Thanks xx
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