Reports say Fibro occurs in families ... - Fibromyalgia Acti...

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Reports say Fibro occurs in families as they may have a genetic predisposition to the condition,so how many of your relatives have Fibro ?

Mdaisy profile imageMdaisy235 Voters

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24 Replies
ladytelita profile image
ladytelita

I will add, technically my Mother has ME and has had two seperate strains of it. There are differences between our conditions but they are very closely related. My younger brothers friend also has ME. I'm the first with Fibro. (Sarcastic 'woo' there, *sigh*)

P.

Ginsing profile image
Ginsing

Hi my Mum had ME my daughter has CFS/ ME and I have se Fibro we make a good trio strangely my niece also has the propensity to the same allergic reactions as my daughter. / gins

Zosie profile image
Zosie

Hi everyone,

I have FMS, as does my Mum. We also think my maternal grandmother had it. When I was in my teens I was diagnosed with ME which was then overturned with a diagnosis of fibro. I just hope this doesn't continue down the family line; hoping it stops with me!

xx

lcm27 profile image
lcm27

I would like to add that both Rhuematoid and OsteoArthritis run in my family, both my parents are dead so can't ask about this, although I suspect my mother may have had it. My cousin has Multiple Sclerosis and no one has got Psoriatic Arthritis although I suspect my Gran might have had it and I've inherited her skin sensitivities, but again she's dead.

marg54 profile image
marg54

My mam has been dead now since the late 80s and for a few years before she died she kept saying she was aching all over she slept all day couldnt get out of bed, and then sleepless nights.My dad and I used to say there wasnothing wrong with her it was just arthritis and she was stringing us along because she loved people to run after her.

How wrong were we when I was diagnosed with fybro in the late 90s I had the same symptoms as my mam as it wasn't called fybro in them days, I feel so guilty to think that I thought she wss putting it on and now that she's gone I can't say sorry and make it up to her my dad too he has passed and I know he would have felt so guilty.

My youngest son is 34 has had arthritis since he was 25 and I have come to the conclusion that he is going to follow in our foot steps.

So people out there who don't think fybro runs in families I think your wrong .

Maladjusted profile image
Maladjusted

None to my knowledge, but as it isn't easy to diagnose, it is impossible to say if any of the generation before me had it.

Em x

Matrix profile image
Matrix

Myself,my father and two children have all the signs .

Cookie72 profile image
Cookie72

My nephew has ms, my nan was in a wheelchair but died age 36, so I never got to meet her, so as far as I know I could be the only one, BUT no one seems to know what was wrong with Nan, like I say I was born after she died but I have a strong feeling she had fibro or ms my daughter is showing signs but won't go to the docs, she is in denial, I could be wrong about her and I pray to God that I am....Dee

Glenys profile image
Glenys in reply to Cookie72

Oh, cookie, it must be awful for you worrying about your daughter like that. I hope she does see a doctor soon, if only to rule OUT fibro, as it could be so many other things. We all get fibro to a different degree, and if you are really suffering, she may be scared that by receiving a positive diagnosis she will become as ill as you. Whereas if she can be persuaded to sort it out sooner she may have a better chance of controlling it before it controls her (if that is what it is, of course).

Good luck with that XG

Cookie72 profile image
Cookie72 in reply to Glenys

Thank you Glenys, I think she is afraid she won't be able to cope like I do, but as I have told her many times, it's surprising what the body can cope with when it has to, it's surprising just how strong we can be, ....Dee x

jom277 profile image
jom277

No one else in my family have been diagnosed with fibromyalgia but both my mother and one of my sisters have extensive muscular symptoms and previous disc problems but no issues with fatigue and my nan had rheumatoid arthritis.

paularose profile image
paularose

Like others who have posted I selected 'no others' only because no one else in my family has been diagnosed (in fact I've only been given a diagnosis of 'hypersensitivity disorder/FMS like symptoms' because the consultant didn't carry out the test correctly). However my mum almost definitely has the condition. I know in hindsight my symptoms started to emerge in childhood and talking to my mum her's did too. I am also fairly certain my grandmother had it too. My mum has 14 brothers and sisters, 11 are women-I would love to find out how many show signs of the condition, it would be a fabulous mini research study :D. Unfortunately I live in England and they in N. Ireland so I don't know them well enough. I have 3 sisters and I'm suspicious that 1 of them shows mild signs but I'm not sure. The research so far suggests that FMS might pass through the female line. It certainly appears to be doing so in my family!!!! I am sooooo worried for my daughter who's only 3. I desperately don't want her to suffer but I have been convinced that the condition's genetic since I was finally diagnosed just over a year ago. Whenever I read anything about FMS they always say that it's rare in children. I think that's totally wrong and based on the fact that when a child complain of being in pain or sleepy or can't wake up in the mornings it's put down to 'other' reasons. If retrospective research with adults was carried out I'm sure that there would be many who showed early signs.

By the way..........does anybody know whether it's possible to vote more than once? I'm sure I've forgotten whether or not I've taken a particular poll and then voted again. If so these results are null and void.

Fingers and toes crossed all for a breakthrough in some way or other :)

punkrockchick profile image
punkrockchick

My uncle has it in my real dads side and a none blood uncle my aunties husband has it too its very interesting stuff x

Plumcake profile image
Plumcake

I don't know if any other family members were diagnosed with Fibromyaglia. My Mum died when I was 11. My sister died in 2008 and had scleroderma. Her son has durkas. Not sure of the spelling and can't find it on the net.There are no other family members I know of with this condition.

sophie22 profile image
sophie22

None of my family have been diagnosed with Fibro, how ever both my daughters have the same symptoms as I had when I was in my thirties, so I am hoping they are not heading in the same direction as myself! I would not wish it on any one!

Frangi-pan profile image
Frangi-pan

No others diagnosed for sure, but there is evidence that previous generations may have had fibro or similar... and one of my daughters as well as my husband, who obviously isn't a blood relative. (Mind you, he was the one who suffered pregnancy & labour pains!)

Glenys profile image
Glenys

I was diagnosed with Fibrositis at 19 years old, and mum told me then that the doctor has told her she had that too. It used to be a term for "unexplained muscle pains and spasms". She was on painlikkers - 4 doses a day - and had frequent panic attacks. She developed PBC and then non-alcoholic liver disease which killed her at only 56 years old. As we know the symptoms of PBC (un diagnosed but discovered at the post-mortem) and fibro are similar, but I cannot get my GP to see the link, and they will only do basic liver tests for me.

Glenys profile image
Glenys in reply to Glenys

And my sister had ME which has gone on so long now, I am wondering if Fibro is involved.

Ermintrude75 profile image
Ermintrude75

Hi

Ive answered other. I have Fibro, my sister has ME, my mum Lupus and my cousin has the same symptoms and has been told its fibro and then its not fibro.

x

SnagglePuss profile image
SnagglePuss

I answered 'No others' too, but think that may be historic failures to make a diagnosis in years past.

LadyTelita - "technically my Mother has ME and has had two separate strains of it." Crikey, there are STILL some GPs who don't even recognise that ME exists, let alone look for sufficient detail to identify separate strains! :-O

mystique profile image
mystique

My grandmother n mum had fibro amongst other illnesses, I have it alongside other illnesses and my daughter who also has dermatomyositis has it, she is only 17 yrs old.

Sammicat15 profile image
Sammicat15

My mother had rheumatism, as it was defined back then. Over the years, the more I've thought about her symptoms and complaints, the more I'm sure she had fibro. She emigrated to the south of France, when I was 17, so she could be in constantly warm weather, which helped her. Before that, in the wet Cornish winters, she wore mohair cardigans and woollen skirts all the time in a bid to keep warm and be comforted.

She died before I started showing symptoms, but I now have a better understanding of why she was as tetchy and bolshy as she was and why she made do many of the household and outside chores (chopping wood, sorting the litter trays for our cats, fetching the groceries from the nearest village 5 miles away etc) as possible during my teenage years!

Now I've got RA, osteo and fibro, I wonder what she'd have to say on the matter lol.

WoollyMamath profile image
WoollyMamath

I think its possible my son has fibro, although he is nowhere near to getting a diagnosis yet. He's only 29 and has 3 children so it will be a huge shame if he has it

there are 5 females altogether my father had 3 daughters all have fibro. my fathers brother has 2 daughters both have fibro. we all live in different parts of the country. all different circumstances. too much of a coincidence. we also have lupus MS rhumatoid arthritis etc. what a sickly lot