Mitochondria supplements...

[sporty333]

Hi there

Is any one doing the mitochondria supplement regime for mito damage etc? Just wondered if anyone was sharing my journey....

Si

[TheAuthor]

Hi sporty333

I sincerely hope that you are feeling as well as you possibly can be today? I do not use anything like this, but I have found a link to the web doctor service that has information relating to Mitochondria supplements. I really hope that you find it useful?

webmd.com/vitamins-suppleme...

Are you having fatigue issues? I have also pasted you a link for mito damage, and I hope this is useful for you also?

thebodypro.com/content/art1...

Please keep us all up to date with how you get on with your treatments as it will be very interesting to many members.

All my hopes and dreams for you

Ken

[sporty333 in reply to TheAuthor]

Hi ken,

Thanks for the links. One of them was interesting! I'm not great at the moment ken. I got a bad cold a week ago and I'm still suffering with low energy. Scary for someone like me with this condition. I'm on the supplements tho so I'm doing what I can.....

[Mdaisy]

Hello Sport33,

What are you currently taken and is it loosely based on Dr Myhill or the Shine Protocol Dr Teitelbaum? Do you feel you were better before the recent cold? Is it expensive?

I have read some articles that are emerging about Mitochondrial Dysfunction and ATP Synthesis problems... research continues.

On Pubmed: ncbi.nlm.nih.gov/pubmed/204...

On Pubmed: ncbi.nlm.nih.gov/pubmed/233...

For all members: Please note do not add any supplements without speaking with your GP and/or Pharmacist to ensure it does interact with any other medication.

I look forward to your reply

Best Wishes

Emma

FibroAction Administrator

[sporty333 in reply to Mdaisy]

Hi Emma,

Thanks for the links. I'll take a look in a mo.

Yes I am under dr Myhill so indeed it is her principles of mito recovery. I was doing better than I am now before the cold struck. I felt I had gone up to the next level with my recovery when I started the supplements. You know what it's like when you slip back: you think you won't recover again.

Is it expensive? Yeah I guess it is. What, £60 a month perhaps. I get the B12 and mag off my gp, so that's free. Other sups last longer than a month so that helps.

I'll take a look....

Simon

[Mdaisy in reply to sporty333]

Hello Simon,

Interesting to hear how you get on but wow £60 a month is a lot of money for most members especially ones who cannot work due to Fibro & disability.

I gather you take this alongside medication for pain and you feel the vitamin supplementation is helping fatigue levels? Are you managing to exercise a little more working yourself up slowly? Of course catching a cold or any infection tends to put us back as we feel the impact more than a healthy person due to what I've read about possibly having reduced immune systems (reported on the internet in some articles) research continues..........

Do keep us posted about how you get on long term, you may want to complete an assessment tool, like a Fibro Impact Questionnaire each month to see if you can see any improvement using charts and how long it takes to progress if indeed it does help.

There are several on the internet if you google, but here's one version;

drginahoneyman.com/forms/fi...

This way at least you'll have some idea whether the outlay is worth it for the results!

Best Wishes

Emma

FibroAction Administrator

[111sillyme]

would love 2 join in this conversation/group etc

64 yr old, diagnosed 2004, take CQ10 and Modanifil

[softekcom in reply to 111sillyme]

Hi, great to be reading this thread. I was diagnosed last year and was very sceptical about it initially. But the exhaustion and pain have completely disrupted my normal functioning, so looking hard for light at the end of the tunnel. Have you had any relief from your mitochondria treatment? What kind of relief? Have you experienced any side effects? Was it on the NHS or private?