I have never heard of this before. It was my lovely GP who gave me the result and said it could be a condition called Polymyositis which is treated with high dose streriods for 3 / 4 months and then a reducing dose over another 3/4 months if the CK levels are reducing.
Does any one on here have it as I have looked into it and so I am now scared, as my symptoms more match the IBM. After talking with GP we are going to wait ( he was willing to start me on steroids there and then ) and see what else comes back from the rest of the blood tests the new rheumy dr did and I am due a MRI scan of hips and lower back. And we will look at all of the results before deciding what to do
I really hope someone on hear has something wrong with there CK and can give some much needed advice. I am 43 yrs old
Thank you for reading this.
Soft hugs. Caroline