I have just received a letter from my local Clinical Commissioning Group... Has anyone had one of these letters recently? Apparently this will be available to the area health units who will be caring for me and will also be available to anyone taking care of me in an emergency. It will list all the meds I take, allergies I have and any bad reactions to medicines, to ensure those caring for me have enough information to treat me safely..... Now, I can always opt out of this but since I was only diagnosed on Tuesday, things seem to be moving quickly, maybe it is down to the fact that I've had 2 ops (one in 2007 and one in 2011) that left me feeling very raw about the treatment I was given immediately after and this has left me with ptsd, which I will be having counselling for as the second op experience was the trigger for the Fibro ( I nearly didn't make it). So, the question is, is this a good thing? every local nhs unit will have access to personal info about me, I can choose not to have one of these so I guess that it is good that i'm being given a choice and can withdraw any time. But would you want to have one of these for you?
Summary Care Record - your emergency ... - Fibromyalgia Acti...
Summary Care Record - your emergency care summary.
It really is up to you I guess its good to know that your covered no matter where you go but if it leaves you feeling unsure then wait till you are. If it was me if there were specialised things I needed or others needed to be aware of in case of any treatment then id fell a lot reassured but that would be most if I travelled regularly. I personal think its the NHS s way of introducing more thorough systems to help support us with our illness's . really hope this helps . gentle hugs
Is this the national computer thing where everyone has a summary record created eventually? I opted out of that as I don't trust government IT projects to be safe/secure and I suspect mission creep will happen and before we know it every last detail of our lives will be stored on there.
Doctors have managed to treat patients and save lives successfully in emergency situations for years.... why do we need this now?
I have to say in reply to this that I have difficulty seeing a Doctor. It used to be just the receptionist that I had to battle with, now it's them and a nurse that stand between me and my right to see a GP. Having said that, I'm a liitle uncomfortable with this national computer thing too. I really don't know the answer.
I am wary of it becoming national too.... I do plan to visit my GP next week to discuss my recent hospital appointment and I will certainly bring the subject up during the appointment... The paper work that came does say that you can opt out of the system at any time but if I do this at a later date whose to say that my file won't be kept on record up to the date of me opting out...