Newbie here: Just wanted to pop by and... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Newbie here

Pebbles71 profile image
28 Replies

Just wanted to pop by and say hi. Joined today after being diagnosed about a month ago. x

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Pebbles71 profile image
Pebbles71
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28 Replies
missjones profile image
missjones

Hello and welcome xx

Pebbles71 profile image
Pebbles71

Thank you. im in utter shook at the amount of people who have this and yet I had never heard of it before. The awareness day is approaching is there anything I can do to help...sell some bands maybe in a shop/supermarket near me..some admin work of any kind???

downeygirl profile image
downeygirl

Ditto. Number two of many welcomes you will receive xxx

Pebbles71 profile image
Pebbles71 in reply todowneygirl

Thank you. although its horrible to think so many others have this fibro it is also comforting to know you are not alone and can share/talk

downeygirl profile image
downeygirl in reply toPebbles71

Too true. I thought I was going mad and the only person in the world feeling this horrible fast onset of symptoms which changed me and my life. It helps a lot to read other peoples's posts and know that what I feel is real and not in my head. However, being put in WRAG after appeal,I cannot honestly see what I can do earn money. This is the biggest worry. Leaves no head space to think about you and your life and what if anything, you can do to get through xx

Ginsing profile image
Ginsing

Welcome Pebbles to a brilliant site - lots of lovely caring people all in the same situation. We try and have some giggles in and out between the serious stuff. Hope you enjoy it Looking forward to your posts xgins

Ginsing profile image
Ginsing

Welcome Pebbles to a brilliant site - lots of lovely caring people all in the same situation. We try and have some giggles in and out between the serious stuff. Hope you enjoy it Looking forward to your posts xgins

Ginsing profile image
Ginsing

I put it on twice :) LOL what ever next xgins

Cookie72 profile image
Cookie72 in reply toGinsing

Hi gins, I read that the fibro awareness day is approaching (didnt realise it) where do I get the awareness bracelets from, thought I would also get some for my daughter to take to her job of work at the school, hope you feeling better today :) ...Dee x

Pebbles71 profile image
Pebbles71 in reply toCookie72

Hi Dee, I bought my bracelets from the fibroaction site the other day...you get a pack of 2 if i remember rightly.

Heres the link for the bracelets fibroaction.org/awareness-W...

And this is for the awareness week in sept

fibroaction.org/News/UK-Fib...

Hope that helps

Cookie72 profile image
Cookie72 in reply toPebbles71

thanks for that Pebbles i just been to the site and ordered some bracelets, my daughter and her friends are going to wear them too, ...Dee x

Pebbles71 profile image
Pebbles71 in reply toCookie72

Glad to be of some help. Yes I think the more that do wear them the quicker people will realise just how serious fibro is. Hopefully anyway!

My sons and partners are going to wear them too that week..mine will be on all the time. xx

Pebbles71 profile image
Pebbles71 in reply toGinsing

Hi Gins..thanks for your warm welcome and thanks for it twice lol. Have only just seen some of these posts including yours so you may have already seen some posts I have put..one regarding swwiming the other fibro fog...had lot of response about swimming which is fab to read and take on board. (only just posted the other one.

Anyway thanks again and take care xx

Tannels profile image
Tannels

Hi pebbles and welcome. A lovely site and plenty of information. It is a shock when you first get diagnosed and it takes a little while for everything to sink in and to come to terms with it. You will get a lot of support on here and smiles along the way.

Tannels x

Pebbles71 profile image
Pebbles71 in reply toTannels

Thank You!!

ladytelita profile image
ladytelita

Welcome Pebbles. I was diagnosed a few months ago; still coming to terms with it. Going from healthy, highly active person to sometimes finding it hard to function at all is bloody hard! I don't think I really believe it won't go away and one day I'll wake up and be fine.

The people on here are excellent. Always helpful and supportive.

P.

Fibrofoggiest profile image
Fibrofoggiest

Hi Pebbles, sorry to be so late in joining the welcome party, but as so many have already said you will find a lot of support and advice here, coupled with some fun and more little hearted posts to try and lift people's spirits when they are down. I'm sorry about the reason you have had to join us, but glad to welcome you to our merry little band.

Foggy x

Pebbles71 profile image
Pebbles71 in reply toFibrofoggiest

Thank you for your kind words...I have already found this site very informative on lots of issues PIP etc and how people are coping/methods of. x

pip_r profile image
pip_r

Hi Pebbles,

Hope you enjoy the posts. This is a great site to get useful info from those who know, to be able to vent on bad days and get support, but more importantly, to have a bit of fun banter with people who are in the same boat, but refuse to let it dampen their spirits. I always say its my sense of humour that stops me going insane :)

Pip xx

Pebbles71 profile image
Pebbles71 in reply topip_r

Thank you Pip I am finding the site very welcoming and useful already. xxx

Darren1976 profile image
Darren1976 in reply toPebbles71

Hi pebbles so your a newbie laugh out loud how it going so far hun

Pebbles71 profile image
Pebbles71 in reply toDarren1976

Thank you. Yer its a good site and have found out lots of info...and have already ordered my fibro awareness bracelets too lol

Cookie72 profile image
Cookie72

Morning pebbles , welcome to the site, it's. great site to be on, our volunteers are marvelouse even tho they are in pain like us they do there best to bring smiles to our faces, they ren take us on picnics (0n here of course ) and a great laugh looking forward to reading more posts from you ...gentle hugs to you ...Dee xx

Pebbles71 profile image
Pebbles71 in reply toCookie72

Thank you very much Dee...i am getting a bit addicted to here at the moment which isnt doing my back or hands/wrists any good but I am loving it. So many friendly people and so much good advice. Thank you for your warm welcome xx

sue32 profile image
sue32

Hi Pebbles! Welcome to what has to be the best site I have ever come across!! I have been offered so much help, advice and consolation from all members of the site and I know there's always a friendly face when I need one! XX

in reply tosue32

Hi Pebbles and welcome, I love this site found it last Dec and it has been a lifesaver, helps me comforts me and cheers me up when I'm down.

Pebbles71 profile image
Pebbles71 in reply to

Hi Mary as explained to Sue above this was the first one I stumbled across and I just knew I didn't need to look any further. i am finding it a godsend as my speech sometimes is affected and being on here you can join in with out talking...thank god I hear you all sigh lol.

Thank for taking the time to welcome me...take care xx

Pebbles71 profile image
Pebbles71 in reply tosue32

Hi Sue, luckily this was the first one I stumbled across and I just knew I didn't need to look any further. i am finding it a godsend as my speech sometimes is affected and being on here you can join in with out talking...thank god I hear you all sigh lol.

Take care and thank you for your Warm Welcome xx

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