Newbie

Hi everyone

I'm new here and this is my first post.

I was diagnosed in April this year, although have had symptoms for many years.

I work full time but finding things are getting difficult lately.

I had a fare up that lasted about 4 months then things seemed to settle down, just had what I call background pain.

Then the last two days things have become bad again, struggling to get up from sitting position, climbing the stairs, even walking around the house.

Was wondering if I could claim PIP so that I could possibly reduce my hours in work.

Also has anyone had their symptoms get worse?

Sorry for long post.

Thanks in advance for any support

11 Replies

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  • Helo col Iv had fibro for 10 years and was told at the beginning they get worse , So all you can do is sort out your medication and do the best you can I have had loads of help from this Foram and you will too with the great people on this site to help you Good luck to you

  • Hi col and welcome hope you get lots of help and advice off here.not sure about pip but I think you can claim it while your working but would advice you to phone welfare right they will tell you also I got told fibromyalgia would only get worse. You won't be sorry you've joined us on her friendly people who all suffer together ☺Carol x

  • Hello and welcome! Not a long post at all. So sorry you're struggling with another flare so soon. As I understand it, PIP is assessed according to how your condition impacts on living a 'normal' (whatever normal is) life and things you cant do because of it. The Forum has it's own benefits advisor, whose name escapes me but I'm sure someone will know. Perhaps message TheAuthor, or post it. You have nothing to lose by trying. I do wish you well!

    :) xx

  • Hi erne

    Thanks for the reply.

    Don't like the sound of things getting worse!!

    Everything I've read says this isn't a progressive dis ease...

  • Just do your best as we all do 😊

  • Thanks to everyone for your replies,

    Got a feeling am going to be a regular on this site as I don't really have anyone to talk to about the dreaded fibro....don't like to talk about it at work.

    Thanks again guys, speak soon

  • Hi col,

    I know what you mean. I don't have many people I can talk to about it either. But fortunately my partner has been amazing in supporting me though. But everyone else don't seem to understand it much. I'm tired of having to explain in detail what I go through daily. Sometimes just saying "I hurt and I'm tired all the time" (or something to that effect) just doesn't cut it. You feel compelled to go into every detail, even though that's exhausting in itself, just to try and stop people from looking at you as if you're a lazy beggar or something!

    What treatment or exercises have you tried? My doctor has recommended swimming as its a good all-over body exercise.......so it definitely sucks that I have a fear of water! Lol.

  • H l am like you l dont have any one to talk to about my fibro when l do talk to people they just dont understand what it is ect

  • Hi Col123

    Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I am so gneuinely sorry to read that you are struggling with work, and it is always worth applying for PIP. I have pasted you a link below to the GOV.UK cache on applying for PIP:

    gov.uk/pip/overview

    I want to sincerely wish you all the best of lcuk, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi

    Yes you are able to apply for PIP and work ,however their two elements to it

    1 mobility

    2 care

    If you look at link you can do the PIP point test

    benefitsandwork.co.uk/perso...

    Just remember that what you score yourself may be different then how they view you at assessment .

    Good Luck

    Rose

  • Yes hun you can

    And you probably have a flare up.

    PACE

    PEOPLE ATTITUDE CALMNESS ENJOY X

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