Getting unbearabley worse :'(

[Donna17]

I'm in cramping pain from the neck down its awefull this is NO life , my arms n legs cramp up n go in positions I can't move hard to explain I've lost over a stone n I really just can't eat , im in bed at least 5 days out the week coz soon as I try n get up its off again I av so had enough x

[Malwimmy27]

Have you contacted your GP? As you're in such awful pai and have difficulty moving around you should be able to get a home visit.

I really hope you get some help soon. Please let us know how you get on. There are lots of lovely people on here to talk to, the volunteers are a great support. Don't lose hope, sending you healing thoughts, light and love. Xx

[gilly25 in reply to Malwimmy27]

Hi hunny. Hope you feel better soon,iam in a lot of pain and told the doc it's getting worse, she says it doesn't get worse. But it's not her who is living with it everyday I feel like giving up but you still have to carry on, you are not alone so if you do feel desperate this site is so welcoming and there is always someone to rant at who wont take offence. Sending gentle hugs (xxx)

[Malwimmy27 in reply to gilly25]

I can't believe you're GP's response! It's sometimes bad enough talking to non medical people aboutthe pain caused by fibro! The pain as far as I'm aware damages neurons!

I agree this site is brilliant for all sirts of suppirt and advice.

Thankfully feeling in kess pain today.

Hooe you manage to get some help from another GP. Xx

[Tannels]

So sorry you are feeling unwell and in pain. I agree with Malmimmy27, you must contact your GP and get a home visit. You should not be coping on your own like this. Please let us know how your get on. I really hope you get some relief and feel a little better soon.

Tannels xx

[Donna17]

I totally avoid my doctor he makes me feel like a hypercondriac im so sick of being such a burden will ya do this will ya pass me that can ya just do that aaaaarrrggghhh wot kind o life is this n bollocks it don't get worse I no I've got worse I walk a few steps n my legs are so weak I just drop n they say its degenerative wot a crock come live in our houses for a day or a week n say that xx rant over thanks guys xx

[Ginsing in reply to Donna17]

Donna you are not a hypercondriac so will you plese ring the surgery for an appointment... if you cannot stand your doc then go to A&E get seen tell them what is happening about your cramps and the weakness.

You will be surprised they can help!! let me know how you get on Xgins

[Hidden in reply to Ginsing]

Sorry, but surely A&E is for accidents and emergencies as the name indicates! NOT for people who have issues with their GPs???

This is why our A&E departments are snowed under!

[hamble99b in reply to Hidden]

it wouldn't be because of issues surely. it would because of the medical problems which donna wants to have checked.

[Ginsing in reply to hamble99b]

Thank you Sandra it was her distress and pain and her lack of aility to move - nothing to do with the Doctor!

[rainbowdancer]

Hi Donna I do so wish you could find a good Dr I had a crap one for years! He made me feel aweful about myself. I no have a n Dr and he is amazing!!

I get spasms and cramps and now cant walk at all and he comes out and does a home visit if I am really bad. ;-(

Thinking of you and hope you can get this sorted x

Rainbow x (((((((((((((((((((((((((((((((((( gentle hugs )))))))))))))))))))))))))))))))

[Donna17]

Believe me I wouldn't go a and e with this n yes I am scared of goin to see my go I no I shud find another one n I will id rather see a lady doctor , no matter wot time ya see mine he always stinks o whiskey not good that x

[Ginsing in reply to Donna17]

You say you would go have you a friend who could take you? Or do you feel so ill that you need to get an ambulance - getting a friend to go with you is the better way try hugs xgins

[Royalspec01]

Hi there really don't know what to say because of the medical politics and all that stuff but what I do know is that you need some kind of relief from the cramps etc. without some kind of rest you'll never be able to manage it . Im sure that there's some medication that can help you relax I used to get restless legs bad with cramps they do still if I walk to far thank god for my mobility bike. Well hop this will help you but citizen's advice may be the best way to help you go about this and get your voice listened to and remember I know you want to do things for yourself but what you do do, is give the people who help you purpose not all bad and maybe with rest and rejuvenation you might be able to start again real slow and start doing things for yourself again please don't think im not understanding only trying a realist gentle hug and untangle those dreadful knots. fibro friend x p.s. he desperately needs Alcoholics Anonymous :))

[Ginsing]

I have been thinking about your cramps have you tried quinine bisulphate it is the best for relaxing the muscles. You can get it from your doctor or from drinking a tonic water which has it in. Has anyone suggested this or hot water bottles or conversely cold bottles . I have no idea why if you are really suffering you wont seek help but if you wont it cannot be so bad, so perhaps last night was better for you. xgins

[Donna17]

I think because of my doctors opinion of fibro I just grin n bear it coz I figure this is the way its gonna be n im more a hypercondriac if I tell him I've been told bout this tablet or that tablet believe me im not a sympathy seeker i just want a bit of relief from pain n tramadol n duloxotine don't touch it xx

[Ginsing in reply to Donna17]

do try simple old tonic water it will help

[Donna17]

I definitely will do thanks x

[hamble99b in reply to Donna17]

warm the tonic water up and don't drink it until you are in bed as it can make you very sleepy quickly.

[Donna17]

Really will it help me sleep xx