Feeling grumpy :-(

[Jopixy]

Hello everyone,

Is anyone else struggling with this humidity and hot weather? I am becoming more and more grumpy with every hot day that passes and I am sure that at some point my DH will just get up and walk out!

Also, I am experiencing terrible muscle cramps in my calves with twitching in my quads and a left knee that keeps giving way. I can't get from crouching to standing without someone hauling me up and instead of feeling 42 I feel 80! Does anyone else have these problems with their legs? I just want the old me back .........

J

[Hidden]

Hi

I hate this weather, having a flare up I think as I have been in a lot of pain, it is the lack of sleep that is killing me at the moment, roll on winter lol.

[Jopixy in reply to Hidden]

Hi, I know what you mean. But it won't be long until I am moaning about my chilblains again lol.

[Hidden in reply to Hidden]

Hi Silverstar

I adore the sun and love to sit outside and read. However, the last few weeks have been unbearable. My back pain has been so bad I virtually had to crawl out of bed then try to stand up on Monday. I had tremendous pains in my groin and was limping for most of the day. I've felt totally wiped out. I'm single with two children (their dad died) and yes, they can help me, but I'm quite an independent stubborn person. I don't want my Fibro to affect their lives as much as it does mine. I honestly don't know if it's the heat; a flare up; or both. It's quite bizarre - I sleep, but don't get enough restorative sleep, so I wake up knackered every morning ~ which I think is something that affects the majority of us. I've noticed the time that some messages come through on here. They range from 1:30am - 6:30 am with lots in between. I guess at least we have somewhere "to go" when we can't sleep.

My sympathies and good wishes to all fellow Fibro sufferers and many thanks to everyone who runs this wonderful site.

Of course the pain and brain fog is still there, but knowing I'm not a hypochondriac, as I've feared for a long time, is not the case (I had my formal diagnosis in June) and finding this wonderful site has been a true saving grace for me and gives me much comfort.

Gentle hugs to all

Coz xx

[Hidden in reply to Hidden]

Hi

You are not a hypochondriac lol, fibro is horrible and I defy anyone to walk in our shoes for a week. There might be some relief on the horizon, the weekend looks stormy and wet so hopefully it might reduce the humidity and heat. I love to see the sun but I like it in the low 20's, and cool at night as well. Hugs to you and hope you are feeling better soon. I too find this site a great help, my family are great but nothing beats chatting to fellow fibros lol. Take care.

[Hidden in reply to Hidden]

Hiya

Ah. Thank you for your lovely message. I've had a whole 3 hours sleep

I don't have any family near me as I moved with my children for a fresh start after their dad died.

I don't know many people here and it's hard to make friends when you're not working.

I've worked for 34 years and am climbing the walls at home. I want to work, but I can't even manage part time at the moment.

I tried doing some volunteer work but it was a bit of a thankless task.

I really appreciated your lovely message.

Thank you

Coz xx

[ladymoth]

Fibro does cause leg spasms and many strange pains - as we all know - but if you are worse in this very hot weather, it could be that you are dehydrated and need to drink extra water. A good idea is to get some rehydration sachets from the chemists (Boots do their own brand), because you may be lacking in salt as well, hence the cramps.

Dehydration makes you feel absolutely terrible, and you don't want that on top of fibro!

Moffy x

[Jopixy in reply to ladymoth]

Thank you Moffy, I have been pretty good about my water intake but I will try the rehydration sachets and see if they help. This has been going on for several weeks and I would love to get them feeling a bit more normal again

[Jomple]

Hi , I am finding that I can not cope with the heat!! Have spent so much time lying on my bed with a fan on, my skin feels like its burnt and I haven't sat outside, I have also started having sweats (not the change been tested) following the shower so been during my hair etc icon front of the fan, I work 4hours a day and have just been managing (taking hols to break down the week ) but that's all I am doing! Hubby is doing everything bless him xxx roll on cooler weather haha xx

[Jopixy in reply to Jomple]

Oh Jomple I'm glad it's not just me. I was sat outside in my nightie at 6.30 this morning as I felt like a furnace - hope the neighbours weren't looking - lol Hope that you start to feel better now that it is cooling down x

[HELEN-PMA in reply to Jomple]

Hi, I get really distressed and miserable with my excessive sweating, which affects my head and face. It pours off my face, my hair is soaked. It's like having a radiator on in my head, that I can't control. I have a shower, then sweat. I dry my hair with a hairdryer, but the heat from the dryer, adds more heat to my head, so I sweat more, meaning I can't actually dry my hair !!!! I have to dry it the best I can, then stick my head in front of the fan. I use it to cool my head down, and try and dry more of my hair, which doesn't work, because the air isn't warm enough to dry it....lol. At last, the mystery has been solved. I'm not just a moany cow ! I went to a Dermatologist (GP referral) I have been diagnosed with CRANIOFACIAL HYPERHIDROSIS !! I felt the same, receiving that diagnosis, as I did with the Fibro diagnosis....total relief that I am not going mad !! They can give you tablets to prevent the sweating, but like all drugs, they have side effects. I'm trying to find one that suits me at the moment. I HATED that heatwave we had, and I literally dread getting them each summer. Always a relief to be heading for Winter. I'd rather have it cold, BUT, if it gets too cold, I'll start moaning about that !! Fibro people, seem to have faulty temperature control. I don't like extreme heat or cold. My legs and feet get really hot in the summer, so I throw the covers off. Then as it gets cold, they get so cold, that they don't warm up in bed. I end up with electric blanket (prior to geeting in bed), and bed socks on. It all drives me MAD, on top of all the other delights and pain of Fibro !!! My poor hubby has so much moaning to put up with, and he does most of the household chores, bless him, he is a star !!

[Malwimmy27]

I have great difficulty getting up from a crouching position to standing up. I end up having to get onto my hands and knees and crawl to the nearest chair etc to haul myself up, very embarrassing particularly at work lol.

I'm struggling with the humidity too. I am really agitated in crowded shops even more so than normal, much to my teenage daughters amusement.

Take care . Becky xx

[Jopixy in reply to Malwimmy27]

Thanks Becky, its good to know that I am not the only one who can't get back up off of the floor. I got stuck on the pavement outside school the other day and one of the mums had to haul me back up to standing - lol.

Look after yourself xxx

[motherhen52]

I am feeling the same with all this hot weather,i thought it was just me