not a good day: just been told by my... - Fibromyalgia Acti...

Fibromyalgia Action UK

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not a good day

7 Replies

just been told by my husband that i should ' get a good nights sleep', well what can i say to that little eye opener ????

7 Replies
FibroFairy profile image
FibroFairy

If you are under the care of your local ICAT's team, ask if you can attend their pain management course and take him with you...it may just open his eyes a little to your reality :)

ZoeH profile image
ZoeH in reply to FibroFairy

I agree. I took my other half to one of these programmes and it has completely changed his outlook. He couldn't understand how much pain i was in. Taking him to one of these pain management programmes was of huge benefit to the both of us. Even just seeing other people like you will open his eyes.

kraftyk8 profile image
kraftyk8

My husband came to the pain management course too. He really got it, but every now and then he says something like that. It usually just takes a look to make him see the error of his ways! te he.

exhausted1 profile image
exhausted1

oh dear, am sure people mean well when they say things like that but when its ur family I end up thinking omg!!! even you just dont get it..x

lol those were the days xx

Louise09 profile image
Louise09

Hi, my consultant prescribed 2 lots of meds for me and they do work! Once I am asleep I only wake up once or twice. Getting to sleep was never a problem for me until I got ill, now I tend to doze more than ,what the professionals call 'quality sleep'. But with pregabalin and amitryptaline I actually get that 'quality sleep' and feel so much better! Don't get me wrong I still have pain but its easier to cope with!

shellydowl profile image
shellydowl in reply to Louise09

ive had fibro for about 7 years now, well prob longer but diagnosed then. i was put on duloxatine for two years. they changed my life but not for the better. i started to sleep all the time i didnt care about anything or anyone i became a person i wasnt really. when my daughter got married two years ago and i had no emotion whatsoever it began to dawn on me that something was wrong. i had been living in a weird world for too long and decided there and then to change. i stopped taking this awful drug (cold turkey) and slowly but surely my life started to return to normal. when i say normal i mean a life with pain. these drugs stopped the pain but also completly changed the person i am. two years on and i have lived with the pain with the knowledge that i am back to the real me. a nice caring mother of two with responsibilities.. i now cry again and feel emotion. clean up my house that i was always so proud of and have settled down and met a lovely man who has asked me to marry him. i was scared to go back on any form of medication but after no sleep and so much pain i caved in. ive been put on naproxen and amatriptalyne and have finally had a good nights sleep. at the first signs of them affecting my mental health i will be stopping tho. i will never go there again. not a nice place to be.

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