:( so much pain! pain consultant written me off.

[justlilme]

i am in agony being taken off morphine meds slowly (not that it made much of a difference).just spoke to my gp pain consultant has written saying he cannot really help me i need to learn to deal with my pain better. id love to know how if they helped maybe i could. feel completely isolated despaired........ tears running down my face sick and tired of life right now thought i was getting better but this pain tells me different. its so unfair. i am 25 look act like 85 with my stick/zimmer and wheelchair ................ what to do now..............

[munchkin62]

i know exactly how you feel i was told last year by pain consultant there was nothing else they could do for me only the psychologist !! im sure he was smirking at me when he was talking I actualy came out feeling angry,frustrated and humiliated like they thought the pain was all in my head I am on morphine at the moment but also find it does little but ide rather have the little than nothing,

[Hidden]

I have been there the pain clinic nurse believed me, the consultant did not

I do believe that he thought I had made the results of the tests and examinations up

felt like killing myself

[justlilme]

i totally agree with u both. also its not in our heads its been proven why dont people listen?! xx

[Cookie72]

hi there justlilme, u will learn to accept in it in time, you have to cos theres nowt that can be done, as yet they haven't come up with any medication that stops the pain, completely, only meds that help you cope with it, I've hade mine since I was 11yrs old, im now 72, only in those days it was called muscular rhumatism, then as time went by it became known as Fibromyalgia , I've seen many doctors, and pain clinics, the last one I went to was a Professor Davies at guys hosp and was discharged from there as there wasn't any more that could be done, they really only see you to diagnose the condition, its a question of self help along with the meds, I also have spondylosis of the lower spine, Barretts osaphegos which is a pre-malignant condition, asthma, tinnitus, like many on here I have many conditions without those that this fibro causes, its a bummer when you first find out cos you begin to winder if you can stand it for a lifetime but as time goes on you kinda accept it cos there is nothing you can do about it,and there always someone worse off, but I do sympathise with you its a very dibilitating condition and what makes it worse is the ignorant people out there that dont have it, dont understand or dont want to understand...I do wish you well, and send gentle hugs to you ...Dee xx

[Hidden]

Go back to your GP and ask to be referred to a different consultant in your local pain clinic... I first saw a woman who told me to stand up straight.... Wear a tight fitting bra..... With permenant chostochondritis .... That's going to happen.... Not... And I would feel like a new woman .... I went straight back to my GP who referred me to a male consultant who looked at me and said yes.. You are a perfect candidate for trigger point injections and I have them every three months and they have been amazing as I can't tolerate anything with coding in or morphine ... Never think this is it.... There is always as answer ... It just takes a while to find it.

VG x

[justlilme]

thank you for comments and help guys really appreiated i needed reassurance thanks xxxxx

[Royalspec01]

Hi there look I know this isn't easy for you not one bit. especially so young but I've been in the mind myself lately angry thinking my doctor wasn't believing me cause he said that tramadol was as far as he was willing to go to at this time. I was so thinking , right a new doctor he isn't good enough but to be honest by chance I have read others that were glad to come off of all the meds as we loose so many of our natural stimuli's such as smell taste sight even colours I read this on these blogs and you know what maybe that was why they didn't want to increase my painkiller or add other drugs to it (im diabetic lower back with severe onated ankles flat feet, I am in pain every step I take its hard to know which is fibro and what is the weakening muscles causing topped with memory loss through out my day and stumbling here and there and loss of balance wide spread pain niggling and niggling at me and just the sheer fear im crippling slowly ) .. I try to lessen my day, in some way to avoid the stress of things. every Sunday my family meet for Sunday dinner . When its my turn I even cook and carve the meat the day before plus stuffing balls etc. . when it comes to the dinner all I got a do is the veg and pots so simple I don't even get stressed for it cuts down my standing time and all that stuff its not what we cant do but when and how so hope this is some help big hugs ty everyone too for these blogs have helped d me so much. But fibro management taught me one thing im not alone and its ok to be flexible and do what I can and not what I shouldn't cause its going to hurt otherwise. Hope I haven't babbled to much but whiles your sat down is there some way you can make yourself feel pampered (incenses you like a film of telly just something you like to help you rest. Im sure you already know this so sorry if you do but ........what else can I say hugs

[Artyrosie]

One thing I can tell you FOR SURE - and that is that getting stressed makes pain worse. Am sure everyone will back me up on that, so the very first thing you can do for yourself is resolve that you WILL learn to deal with it and cultivate a positive attitude. The tough truth is that your doctor was right about learning to deal with it and not panicking. You are probably reading this and about ready to stab me to death with a fork, but this is the hard truth. As long as you fight against all the awful changes in your life and focus on the negative everything will be bad. Instead you have to ACCEPT that you have Fibro - and I do know thats easier said than done - accept that your daily life is going to be severely affected, and do whatever you need to to keep the pain under control, which includes keeping warm and as calm as possible. Then on better days you will be happy and grateful.

Lie on the sofa or go back to bed, do the absolute minimum, and try not to tense up against the pain - which actually makes it worse. I was taught this - instead of running away from the pain you perceive as a 10, go towards it in your mind and relax, and you will actually find it can be a 7. These are all small steps but in my experience the only ones that really work.

But yes I also agree - try and see a different pain doctor too.