Opening up the FibroAction HealthUnlocked community is a new venture for us at FibroAction.
We have previously avoided having a forum on our website, because of the time it takes to properly look after and moderate a forum - and the problems you can run into if a forum is not well moderated. However, our experiences with Facebook have shown that people living with Fibro want and need a space to connect with others living with Fibro and to ask questions they can't get answered elsewhere. My fellow trustee Lynn came across HealthUnlocked through her contact with the Hughes Syndrome Foundation and felt that it was an option worth exploring, so here we are.
The HealthUnlocked community offers a new kind of online community for charities and we hope it will work well for the people who find FibroAction and want to connect with other people living with Fibro.
If you want to share your experiences, write a blog. If you have a question you want to ask, ask away in the Questions area. Have fun!