Has ant one tried GUAIFENESIN as a tr... - Fibromyalgia Acti...
Has ant one tried GUAIFENESIN as a treatment?
I haven't personally but a few days ago someone posted they had been on it for 12 years ... Stopped it for 6 months and no difference .... I myself am very sceptical of wonder supplements you have to pay for ... And as its the main ingredient of cough remedies I am amazed to think it would work , but then I have been told thats the wrong sort of Gauifisenen ..
If you decide to give it a go please check with your GP first if you are taking meds or want to come off meds to try this
Good luck with whatever you choose
VG x
Hello Rosaann52,
As VG mentioned the blog from the other day I thought I would post the link in case you wanted to read that thread too.
fibroaction.healthunlocked....
Emma
Hi,
I have heard of people trying this but my theory is, if it worked, it would be something we would probably be prescribed as a matter of course. I would be interested to know what others think.
Hugs
I know this sound sinical but when there's not a lot of money to be made from 'new' treatments they are often overlooked...this apparentley has been around for years and is very cheap.. so no profit for the big drug companies..I'm going to give it a try though after Ive spoken to my doc to see if the med's Im on interfere with it.....
Actually, there have been 2 major studies over the years that looked for evidence that Guai works for Fibro and didn't find it. Whilst the original study was since criticised by the doctor who promotes this protocol, he has had decades in which to repeat the research with whatever conditions he felt necessary, and has not done so.
After spending the last decade in pain ...I'm at the stage where I'll try anything to be pain free.....and as for my Doctor ...like talking to a dummy took me 2 year's of persistant nagging to get diagnosed with a entrapped piriformus muscle and then had to go private for that...he only agreed to that because I was in so much pain I told him I could't take it any longer and that the only thing that was stopping me from taking a whole bottle of pain killers..was being there for my daughter. At one time I was sent to see a phycoligist because 'it was all in my head'....yeah right....3 injections and physiotherapy proved it was't...still have pain in my left hip that makes walking very painful....so having to start the battle all over again..hip x-ray Monday...what really is sad is that I'm praying they find some thing....how awful is that... just to make them listen...pain control is very difficult because I have IBS and most medication makes it worse HA HO.....I know things cold be worse and at the end of the day it's only PAIN....
.
Hi Rosaann,
I don't know what pain killers you take, but I have a combination of tramadol and paracetamol, which keeps me comfortable most of the time.
The tramadol is also EXTREMELY constipating, which for me has been a godsend, as my IBS gave me such bad 'squits' that I was afraid to go out of the house at times.
I've been through the whole psychology thing as well, which was a bit of a drag as I knew it wasn't all in my head. There is some truth, though, in the thought that anxiety will make pain much worse, and I was happy to have some CBT which has helped me a lot.
I was eventually found to have rheumatoid disease which in a way was no bad thing, as doctors now listen to me, and are a bit more helpful.
I do hope that you find a combination of treatmments and drugs that will help you.
Moffy x
Thanks Moffy.....tried tramadol....made me worse.. amtriptalin, pregabalin, zomorphe antidepresants..all had side effects..ended up with such awful constipation it ended up in a prolapsed bowel....not nice....had that sorted out... now absolutley terrified to try anything that might upset my tummy more than it is on a day to day basis now.....CBT...great for a while but in the real world how can you 'live' a 'normal' life ...pacing every thing you do..and if DWP have there way I'm going to have to look for a job in November...i'm sure any prospective employer will go out of there way too provide me with a nice quite room to go and have a lye down when I'm not feeling well and will just accept that if I need a few day's off to 'recover' they'll be only to please to accommodate my needs .......some hope of that...
6 years ago I tried this, it was expensive as you can't buy it in the u.k (and it also has to be cleared by customs)or at least it used to be and I also had to pay the post office for that
before I started the guaifenesan, I did 6 months homework on it,you have to avoid anything with salycilates in as it apparently "blocks" the guai from working and also avoid anything that has natural plant in them, practically most toiletries,hairspray,deodrant, things you use everday and take for granted has either salycilates or/and natural things in ,if on the back of your deodorant it says amongst the salycilates(especially benzl salycilate) and/or aloe vera or any natural fragrance you can't use it,even soil from the garden will block it working,toothpaste was hard to get for me,let alone all the ream of toiletries I needed,buying stuff that had none of the above mentioned things were expensive on top of buying the guai from America, after another 3 months of deep research I managed to track things down that I could use(I gave up wearing any make -up), i decided to do the protocol, so i tried it for two years ,reading the backs of any container to make sure i could use it, i tried doing the guai protocol, but after a lot of cost as the guai isn't cheap, i felt no better so for me personally it did not work whatsoever although i stuck to the protocol ridgedly so i stopped it...there is a book called"what your doctor didn't tell you about fibromyalgia" and it haswritten in there all about the guai protocol ,i would recommend reading that before buying guai as it sort of explains things, so it isn't a matter of buying guai and just popping a pill every day and it will make you better....it's a lot more difficult than that ,but if you feel like doing it ,i would research it a lot first ..
Thanks for that .....I'll do a bit more research....After a recent visit to my Doc's and asking for a test for Candida .... the result has come back 'positive'.and they've phoned me today to start treatment....I've had the symptom's for years, but it was never picked up by my Doc...my dentist told me to get checked as she had noticed 'a white tongue' and cracks in my tongue on the past 4 visits to her and though I was aware of it......yes I was but every time I'd asked the Doc and stuck my tongue out and asked....'should I be worrid about it' the answer came back...'No I don't think so' .....it apparently is a sign of auto immune defeciency...on my next visit to him I'm going to ask him why he never picked up on it and if it has been prsent for some time could it have spread to other parts and be causing my 'fybro' pain and stiff joints...comes to some thing when the patient becaomes the doctor...
A book I found helpful when dealing with systemic Candida myself some years back was 'Candida Albicans' by Leon Chaitow. I was unresponsive to the medications available to my GP (and didn't then know how to access other medications through private GPs, etc) so the tips on diet and supplements in the book (best done alongside effective meds though) were helpful to me.
Has anyone else tried massage?
hydrotherapy any one else tried it ?
Has anyone tried rebounding (mini trampoline)?
Has anyone tried Melatonin for sleep?
Has anyone tried myofascial release therapy?
