I was much recovered for quite some time and thought that I was now on the road to a normal fulfilling live, living by the rules of pacing etc. and getting along quite nicely, thank you very much!
However, about eighteen months ago, I started to feel that a lot of my symptoms (which were still there, but in the background and manageable.) were starting to impose on my day to day activities. I wasn't do anything different but everyday something else was worse than it had been the day before.
Since that time I have been up and down like a yo-yo and have been discharged by my pain clinic as I have been too ill to attend since before christmas.
I just wondered if anyone has managed to get their illness under permanent control or if this how it's always going to be.