no-one warned me: no-one warned me... - Fertility Network UK

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no-one warned me

ForABabyPanda profile image
7 Replies

no-one warned me about stimulation activating my endometriosis again, and I was not offered mild Ivf even though I am not wanting multiple embryos and I have endometriosis - why would they not give me mild ivf? It was never discussed! My body may be permanently damaged now as this endometrioma is not going to go away on its own!

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ForABabyPanda profile image
ForABabyPanda
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7 Replies
Jade2006 profile image
Jade2006

My endometrima has also grown.

ForABabyPanda profile image
ForABabyPanda in reply to Jade2006

😞

Jade2006 profile image
Jade2006 in reply to ForABabyPanda

very quickly in just 5 days of using the menipour injections .

My ivf cycle got cancelled due to follicles not growing to so it’s just a double disappointment.

Awaiting major surgery .

Hope your doing ok .

Titawine profile image
Titawine

mine too, I was so upset because I endured 3 months of down regulation with decapeptyl and it was a nightmare, just to be offere a fet on a medicated cycle , the taking of estrogen made the endometrioma come back so quickly after the failed fet 😭😭

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi ForABabyPanda. Hopefully with some treatment for the endometrioses and cyst, you will be able to start a different protocol more suited to you. Ask questions when you go back. Good luck! Diane

ForABabyPanda profile image
ForABabyPanda in reply to DianeArnold

ugh, I just wish they’d taken my endo into account or at least warned me so I had a choice of protocol based on risk. The only treatment available for endo is more surgery which I absolutely didn’t want to have after last time, and if the IVF protocol they chose caused me to need surgery I’ll be really annoyed! Like will they not do further IVF on me before I get the endo surgery again?

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK in reply to ForABabyPanda

Hi. Yes they could do. Might down regulate you for longer to see if it can be calmed right down. Fingers crossed. Diane xx

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