Miscarriage test result

[FrancyItaly]

I had my miscarriage tissue tested “Cytogenetics testing”.

My little boy was healthy, had no special conditions. So I guess I need to do some tests myself to find out what caused the miscarriage.

Is this good news? Can the problem be found?

[Jess1981]

Sometimes they don't always find a reason and I think it's good news there were no chromosome issues found as it makes another loss less likely ( that's what I was told by consultant when we got our late daughter Amelias post mortem results) The tests never flagged anything up for me either. We were told " it just happens". I did have 2 early losses after losing Amelia at. 20 weeks but I'm now coming up 24 weeks and so far all is ok tho my anxiety with this pregnancy is through the roof and won't go away until our third daughter Eliza arrives. Even worse case scenario no answers are found you can absolutely have a successful pregnancy please don't be too disheartened every pregnancy is different. Sadly not every baby survives life is fragile 🥲💔but many more do 😍It is terribly frustrating not to know the cause of your baby's death I can totally sympathise with you not getting any answer yet - we desperately wanted to know why our Amelia suddenly just died to try to make sense of it she was beautiful and so perfect and a year on nearly I still can't get my head around it. I hope you have plenty support and counselling can help some ( I found it too difficult to discuss it I literally threw myself into our toddler ) I have always found the emotional aspect after a loss the worst part. Hopefully you can get an answer to hope to move forwards or maybe these investigations will put your mind at ease going forwards Xx

[FrancyItaly in reply to Jess1981]

Thank you Jess. Now they will test me all over to try and find out if I have any issue (never been tested for anything, just NK cells privately and thyroid) so they can put me on some sort of treatment before transfer. I would not go for a transfer if they just say “it happens”. I was just taking progesterone but now after 2 miscarriages I believe I need more support. Do you take any meds? x

[Jess1981 in reply to FrancyItaly]

I think I was just unlucky and maybe my body wasn't ready for another pregnancy for a few months following Amelias death ( the physical aspect on my body was tough as I had to birth her knowing she had died) as we tried literally first period after losing Amelia .I did however the prednisone from BFP till 12 weeks as I have slightly raised NK cells I took these with Francesca but wasn't allowed any in the pandemic but as things have improved and being vaccinated the miscarriage specialist agreed to them. That was the only difference apart from having a month off trying as I was undergoing miscarriage tests. I wasn't happy when I was told " these things just happen " when my world had fallen apart and the future with our daughter just gone. Trying gave us a sense of hope but also filled with fear. But honestly so many women who suffer miscarriage/s will go to have a healthy baby and no reason to think you couldn't either Xx

[FrancyItaly in reply to Jess1981]

It could just be by chance but I was never tested so this time they are doing “recurrent miscarriage” testing which makes me feel much better before my FET in December. Let’s hope I will have a positive outcome next time because it is just exhausting xxx

[Hoop123]

Hi Francy, we recently had the same results. It really shook me but my consultant prefaced it with it being good news. Was there someone involved in getting your results that you could talk to?

It was explained to me like instead of turning left, the embryo turned right, in terms of development and that can sometimes just "happen". As unfair as that is. He also said that we cannot always predict how genes will present themselves.

I don't have much more to add to Jess's reply but wanted to let you know you're not alone xx

[FrancyItaly in reply to Hoop123]

Sorry for your loss. I think my body somehow caused it and I need to know what can be done to improve my chances. I have 3 frozen blastocysts and I don’t feel I should go for FET if they don’t give me some extra support. The doctor should call soon to discuss next step x

[Hoop123 in reply to FrancyItaly]

I'm sorry for your loss, too. I hope the extra testing helps put your mind at ease before you go for your next FET.

I think because it was our first miscarriage, we have not been offered any further testing this time (if there were chromosomal issues there might have been other investigations) but if it happens again I will likely push for something. Our cytogenetic testing was mainly to 100% confirm whether or not it was a partial molar pregnancy.

I'd be interested to know what extra testing and support they do offer you, if you're okay sharing once you know your next steps. Xx

[FrancyItaly in reply to Hoop123]

Will do! For me is the second miscarriage and I was so lucky the NHS offered me tests (usually they do after 3 losses). As soon as I know I will tell you, although you shouldn’t think about it, there is no reason to think you will have a second miscarriage, it will be fine x

[Clover5]

Hi hun. I'm sorry for your losses. It's good they've ruled out there being any issues with your little boy. I really hope they can get to the bottom of things for you with some further investigations, to try and put your mind at ease.

I've had 8 losses, with 3 being by ectopic pregnancy and a late loss of my daughter Ebony at almost 22 weeks. Unfortunately after loads of testing, they've never been able to say definitively what causes my losses, other than with my daughter they believed this was due to an incompetent cervix, that caused a womb infection and sepsis resulting in early labour. They'll also test you for thrombophilia with the reoccurring miscarriage tests. I've had this done a couple of times and although they ruled this out, they said there is some sort of clotting issue, so I have to take aspirin with any future cycles.

I know how scary it is to carry on with treatment without having all the answers to what might have caused previous losses, when you feel like you can't cope with going through another loss. It's so unfair but hopefully all the anxiety, pain & upset will be worth it in the end when we both get to hold our healthy babies 🙏.

Wishing you all the best my lovely 💕xX