When will our luck ever change 😔

[Dotty224]

I apologise in advance for this doom and gloom story but I am sat here now feeling like everything is crumbling in on me and I need to get it out.

My husband and I finally got pregnant on our second round of IVF after 3 years. IVF being our only option to get pregnant due to me having both my tubes removed 5 years ago. From the minute I found out I was pregnant I have been a paranoid wreck. Get to the 12 week scan and our screening came back with a high chance of baby having Down syndrome so had to endure an amniocentesis to confirm which came back negative. After that result I finally started to relax into the pregnancy naively thinking we were safe. Along comes the 20 week scan and they tell me our little boy has a cleft lip and a diaphragmatic hernia. Multiple appointments later and so far the findings are that he have a cleft lip and possible palate, left sided diaphragmatic hernia with his liver and bowel in his chest, a hole in his heart and on reading the hospital paperwork abnormalities with his brain!

We are back tomorrow to scan his lungs but prognosis isn’t looking great for him. I just don’t understand why we are being put through this hell when all we want is to become a family. I am starting to feel like it’s never going to happen for us. My whole world is crumbling apart and I just don’t know what to do 😔

[Solly-44]

Oh love, I’m so so sorry. I can’t even begin to imagine what you’re going through.

Sending you hugs and support. For what it’s worth, we are here for you xx

[Dotty224 in reply to Solly-44]

Thank you ❤️

[amandac84]

I don’t really know what to say, I’m so sorry for you. Sending love x

[Dotty224 in reply to amandac84]

Thank you ❤️

[kitscat]

I’m so sorry. It sounds like you are going through a really difficult time. Have you got lots of support around you? Xx

[Dotty224 in reply to kitscat]

Yes family and friends are great but almost feel like they are treading on egg shells around me. My boss has been extremely supportive which has made things easier with not having to worry about work. I feel like I’m going to have to ask for counselling tomorrow because it’s beginning to get too much xx

[Hidden]

Oh gosh what a terribly difficult time especially after such a fight to get pregnant in the first place.

As everyone else says - do you have any support? Can you get counselling style support from the hospital? This is a LOT to take in, process and deal with and I really hope you and OH haven't just been left on your own to deal with it.

Huge hugs x

[Dotty224 in reply to Hidden]

Hiya, I believe we can they haven’t mentioned it to us yet but will ask tomorrow. I was trying to go as long as I could without having to ask but everything really is starting to get too much. To closer I get to my due date the more it’s breaking me xx

[Lavender96]

Oh Dotty I’m so sorry. This must be such a difficult time, I can’t even imagine what you are going through. I really hope you’ve got a good support system around you, and we are always here when you need to get everything out. Sending you lots of love x

[Dotty224 in reply to Lavender96]

Thank you ❤️

[MissSaoPaulo]

I'm so so sorry hon, this is such hard news. It's not fair, it really isn't xxx

[Dotty224 in reply to MissSaoPaulo]

It really ain’t fair it makes it harder when the consultants just keep saying it’s just one of those things and that there is nothing to blame xx

[Picalilli99]

I’m so sorry that you are going through this. I can’t even begin to imagine how hard all this must be for you to deal with. Life can feel so utterly cruel sometimes. Counselling sounds like a really good idea. Sending you love and hugs xxx

[Dotty224 in reply to Picalilli99]

Thank you ❤️

[Kiedy84]

I am so terribly sorry to read your update 💔

I hope you have family and friends support around you in this difficult time. Also I hope that you can get some sensible answers from the clinicians to understand each piece of information and what this means and that they are taking time to explain everything to you. Ask them as many questions as you possibly can.

We are all here for you x

[Dotty224 in reply to Kiedy84]

Friends and family are great however feel like they are tip toeing around me. My best friend is due 10 days before me also so think she’s finding it a bit difficult. I have a list as long as my arm for them today xx

[CLDxxx]

I’m so sorry you’re going through such a difficult time 😔 be kind to yourself and I would definitely look in to counselling if you can. You have all of our support here 💕

[Dotty224 in reply to CLDxxx]

Thank you ❤️

[Prayingforafamily]

So sorry to hear you going through this. Sending love and hugs.

[Dotty224 in reply to Prayingforafamily]

Thank you ❤️

[Core]

I’m so so sorry to read this sounds like you are having such a tough journey with constant obstacles 😢 xx

[Dotty224 in reply to Core]

Just hoping our luck changes soon and we can finally be a family xx

[Cinderella5]

Im so sorry to read your post, so cruel! I hope today can go as well as it can do. Hugs.xx