Implantation failure tests - NHS?? - Fertility Network UK

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Implantation failure tests - NHS??

Greyeverything profile image
11 Replies

I’m currently 10dp5dt and it’s a BFN, I know it’s still slightly early maybe but I just know it hasn’t worked. For the first time tonight I’ve had this overwhelming fear that this is never going to happen for me and I’m so scared.

We are NHS funded and we have had one fresh failed transfer and this will be one failed FET. As I understand it if we have one more failed FET i will fall under the category of Repeated Implantation Failure.

My question is what happens then? Are there tests that can be carried out on the NHS? Or do we have to pay? Can you pay for tests but still have NHS treatment? Are there NHS treatments for Implantation failure. My husband is very unlikely to agree to pay for anything anyway to be honest 😢

I’m also worried because it feels like a lot of people get a BFP on first or second go and those with repeated implantation feature don’t seem to have many successful outcomes - am I wrong? I’d love to hear some positive outcomes? I’m in such a dark place at the moment, all my positivity has gone 😩

So sorry to moan, I know there are people going through much worse than me. I just feel almost embarrassed it hasn’t worked. Just in a really bad place.

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Greyeverything
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11 Replies

I can’t help with this but thinking of you and sending hugs. It’s not over yet and even if it is a negative I’m sure there will be things to try - the ttc journey can be a long one so I’m sure there will be things to try. X x

sun-and-rain profile image
sun-and-rain

I'm myself preparing for to face my fifth failure... Not even a faint line today 14dp2dt... Still waiting to do the final tests... But a friend of mine from junior high finally got her baby last year after about 10 cycles! So yes, there is hope ❤ For both of us ❤

Greyeverything profile image
Greyeverything in reply tosun-and-rain

And there’s me feeling sorry for myself after 2 failures! It’s just awful isn’t it. Are you NHS? Have they done any tests etc for you or changed the treatment etc? X

sun-and-rain profile image
sun-and-rain in reply toGreyeverything

You know, two or five doesn't necessarily make much of a difference. Loss is loss. Failure is failure.

As for your questions, no, I'm not NHS as I'm living in another country than the UK. And yes, they changed the approach for this last one. Have had three FETs in natural cycle, one ET in fresh cycle and now this FET in stimulated cycle because they thought maybe my lining wasn't thick enough for the embryo to implant properly... Yet it didn't seem to work. Actually I haven't had a BFP since my very first attempt, but the failure was a fact just a few days later. Now I have one 4db left in the freezer before I'll have to start all over again with hormones for a EC, and then they'll probably transfer two at the time...

Scarlett13 profile image
Scarlett13

Hi! The most likely reason that the embryo hasn’t implanted is because the embryo is likely to be chromosomally abnormal so your body rejects it. So far I’ve had 6 embryos failed to implant. My 7th one did implant but then I had a miscarriage at 4 to 5 weeks which again is probably because it was abnormal. After 2 failures I was recommended the scratch which you have to pay for whether you’re nhs or private. I’ve now had the scratch every time. Embryo 8 is going in on Thursday! And I still have 3 Frosties. I’m on my third cycle. You’ve just got to keep going xxxxxx

Greyeverything profile image
Greyeverything in reply toScarlett13

Yes I had considered there was an issue with the embryos. My worry is that that they are all abnormal and I have 7 left frozen so potentially go through this 7 more times for it just to fail each time regardless of what else I do. Can’t do PGS testing on already frozen ones so 🤷🏼‍♀️

Had the scratch with my fresh but wasn’t offered with my FET. Will ask about it for next time even though I remember it being horrid 😩 thanks for you reply and good luck! X

Scarlett13 profile image
Scarlett13 in reply toGreyeverything

I got 7 embryos from this cycle and regret not doing PGS as I’m halfway through them - my consultant said you can have PGS done still on frozen ones but obviously it’s more tampering and not really worth the cost with a few left now - should have done it when they were fresh but I was so optimistic that one would work and soon! If I need a 4th cycle and get good numbers then I’ll do PGS. I’m using access fertility - paid for 2 cycles with no refund - thankfully I went for that so I’m not having to pay lots for all these FETs! Good luck - you’ve got a great chance with those high numbers! Xxx

Scarlett13 profile image
Scarlett13 in reply toGreyeverything

Also as you’re only 31 you’ve got a great chance of having some normal ones in your brood!! I’m 38 so my chances are going down x

Greyeverything profile image
Greyeverything in reply toScarlett13

I hope so. It would be better if the issue was with me because at least then we can do things to fix or improve it potentially 🤞🏻 thanks for your replies Xx

Fabiolatino84 profile image
Fabiolatino84 in reply toScarlett13

Hello, just some advice. You know you can do a testing on each embryo to see which ones are normal and which are abnormal. It’s called Pgs testing, costly but worth every penny.

Cinderella5 profile image
Cinderella5

I kind of found the NHS just had a bit of a one size fits all approach. Im in no way saying that we weren't really lucky to have had NHS treatment but they dont seem to think outside the box. We just got told they have no idea why our 2 transfers didnt work. I was a good bit older than you at 38 so they just told me it was egg quality. Fast forward onto private DE cyles and we have adjusted everything possible and got our 1st BFP on our 5th transfer....we lost the pregnancy at 6 wks but in some ways we have some hope that we can get pregnant....whether it will happen is another story. I had immunes check, hysteroscopy, bloods check for clotting issues etc. I now take prednisolone on request to try it, apparently there is no great evidence that it works (so the consultant said but was happy to let me try) but it was literally the only thing we changed last time. Doing the same this time in gearing up for transfer number 6 next week. You definitely have age on your side but I do know how disheartening it is to keep having BFN's. I do believe that IVF is a numbers game, bit like winning the lottery....some people are super luck and other arent. I guess if the Dr's had the answere the success rates would be much higher than they are when in actual fact its only really a 30+% chance of success. All you can do is ask your clinic to see if they might some of the above investigations. Best of luck with it all.xx

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