Having fallopian tube(s) removed?

[sodas]

Hello everyone!!

I'm new here, but I'm facing a hard decision and would love your input and help me make a choise.

So I've had sacto/hydrosalpinx for a year or so and the left one looks completely damaged. It's also been causing pain and watery discharge, which is annoying so that one is going to be removed via laparoscopy. The other one looks a bit unclear ultrasound. My doctor couldn't say if it should be removed. I'm not sure what I should do!

I could tell them to leave it untouched. I would have some (perhaps false) hope for the rest of my otherwise fertile years. Or I could tell them to look at it and decide based on how damaged it looks.

I honestly don't have high hopes that neither one of them works right. I do get my period sometimes, but not regurarly. But... You never know, right? It feels tough to decide to get them both gone. I don't think I'd ever decide to try IVF for many reasons.

[leanneski]

Hello,

That’s really sad news, and a really tough decision especially if it’s unclear what the full situation is with the other tube. I haven’t had any IVF yet, still in the process of having IUI cycles, 3 have been unsuccessful, I have one more to go before IVF. It’s been really hard and there have been times when I’ve thought maybe it’s not worth the distress and anxiety. I keep going though because I don’t want to get to the point in my life when it would be physically impossible to go back and try and then regret it. That’s just me, only you can make the best choice for you. Whatever your choice is I hope that you’ll be healthy and happy! 💜 x

[Hidden in reply to leanneski]

Can I ask if they removed part of it or the whole tube? I am getting conflicting advise x

[KW83]

Hi lovely, sorry you're having to make this decision. I had a very similar situation this time last year, and it's really hard to come to terms with but you will do, in time. Regarding surgery and whether to remove both tubes, I also knew one would definitely have to go, they weren't sure about the other one. I asked my surgeon to use his judgement once he could actually see what was what, and to do the best thing to maximise my chance of having a baby. For me, that turned out to be removal of both and go for ivf - but if ivf isn't something you can do, make sure you discuss that with the consultant before hand because it may influence their decision. Wishing you all the best - it's a really tough thing to go through but you'll find a way x

[Hidden in reply to KW83]

Can I ask if they removed the whole tube or just part of it? I am getting conflicting advise xx

[KW83 in reply to Hidden]

To be honest I'm not entirely sure - you're best off just talking to your consultant about that. As long as the surgery is done by a fertility specialist they will do their very best to leave you in the best possible condition for future fertility and everyone is different so procedures and outcomes won't always be the same. Good luck x

[Hidden in reply to KW83]

Thank you. Problem is I have two fertility consultants telling me different things 😭

[Scarlett13]

I’ve had both my tubes ruined by an infection following a cone biopsy and had them both clipped shit during a laparoscopy to stop any fluid from them interfering with ivf, I’ve now had 7 embryos transferred but still not pregnant - it’s s long hard journey - if there is any hope for your remaining tube then keep it and keep trying naturally then you have ivf if that doesn’t work. Good luck x

[Dreams1982]

I had to have both my tubes for the very same reason and it meant that we couldn't have our ivf till they had been Removed. It was a hard pill to take but they were no good left inside and Wouldn't have made any difference in helping me get pregnant.

[Hidden in reply to Dreams1982]

Can I ask if your doctor removed the whole tube or just part of it? I am getting conflicting opinions....

Opinion one: remove the whole tube because it is completely damaged it is no use to you. If you leave part of the tube, the hydrosalpinx can come back so you have to remove the whole tube.

Opinion two: partial removal is much better because if you remove the whole tube it can restrict blood supply to the ovarie and result in fewer eggs. To preserve your fertility, you should only have partial removal.

....argh. Any advice? Xx

[Dreams1982 in reply to Hidden]

I had the whole tube removed.. Didn't really get a choice. They were going to try save one as the dye test wasn't conclusive but when they went it it was blocked so. Had to come out.

The feeling after was mixed.. I felt a loss that I'd never conceive naturally but at the same time I knew I'd never be able to. Go. Forward with ivf if it wasn't done xx

[Hidden in reply to Dreams1982]

Thank you xx

[Hidden in reply to Dreams1982]

Sorry, can I also ask if you noticed a difference in egg quantity after tube removal? Thank you so much xx

[Hidden]

A very tough decision. I am have the same issue and consulted many doctors. They all agree that the hydrosalpinx and tube should be removed....they differ on whether the whole thing should be removed, but they all agree you should remove it. Very hard to get pregnant, even naturally, with a hydrosalpinx because the toxic fluid washes away the embryo. You would give yourself the best chance of pregnancy by removing it and keeping the other one (if clear) xx

[recidwen]

Hey! I had this op last November. I had Both tubes cut away from the uterus by removing about a cm of tube from the uterus end. They were then burned to seal them shut. The hydrosalpinx are still there but cannot leak into my uterus. I refused total tube removal because of how the Fallopian tube is so connected with the arterial blood supply to the ovaries. One of my tubes was also slightly wrapped around one ovary and I didn’t want them going anywhere near it. My view was the least invasive the better. You have a choice over whole tube removal, tube clipping and tube cutting and burning. With clipping, ask them what they plan to use, if metal... do you have any allergies to the material? If removing whole tube, I’d be asking ‘is this surgeon a fertility specialist? how many such surgeries have done successfully? It is a lot to think about. Having the surgery was really hard for with it being so final so I had to make sure I was making the right choices for me. Hope that helps a little. Cx

[sodas]

Hello everyone! Thank you SO MUCH for your support and sharing your experiences! I really appreciate it. I actually already had my procedure just TODAY. I had my left fallopian tube removed, am feeling ok and the spot where it used to be already feels "emptied" which is so much better.

I got a cancelling spot so this is why things happened so quickly. Having this one removed was definetely right for me. The only thing bothering me a little is, I could have had hysterosonosalpingografia done simultaniously today for the other one - I don't know if I was a but crazy to say I don't want it today. I don't think I trust this doctor 100% that she would have spared my tube if the situation was somehow unclear. Plus I hadn't done a thorough research on the subject yet, and I think I could not have handled, right now, the news that I really am infertile. I'm not sure why I picked this option, but I did and now at least the left is gone and the right one may or may not be open.

It's probably not such a big deal, because I can have the tube test another time (I know it can be painful, but at least I'll be awake to see what's going on).

I wanted to tell what happened right away, please feel free to tell what you think!