Sorry no personal experience of it but a quick google search gives you enough answers.... healthline.com/health/prola...
this is a good article- keep scrolling as it gives lots of other reasons why it could be: stress/low sugars/ foods and meds
However apart from the more serious have you been tested for thyroid issues?? Hypothyroidism is one of the biggest causes of levels rising and a lot of women can become hypo when pregnant as the baby uses up the mothers thyroid hormone and needs it esp in first trimester.
They should test you for that ASAP and if your TSH levels are 2.5 or over thyroid meds should be given.
I believe
Cinderella5 had issues with high prolactin and may be able to give you more answers
Thank you so much, I’ve had tsh and thyroid but nothing was abnormal just prolactin.... I’m so confused as I have a period every month without fail, I have a high progesterone level to show ovulation and hopefully a positive test if continues to get darker.... my clinic are hopeless x
I had raised prolactin but this was related to my thyroid being slightly underactive. Have you had your thyroid checked recently as this can be made worse in pregnancy? The other thing is did you have your levels checked first thing in the morning? Your prolactin rises as you sleep and comes down again on waking so the ideal time to have it checked is around 4 hrs after waking. That one made a big difference for me. I'm presuming your nurse is going to redo your bloods or see the GP as I wouldn't have thought they can go off one result? DianeArnold can you help?xx
Thank you so much for getting back to me....I’ve just read you post from 7 months ago and can’t believe the difference. I had my prolactin done 3 weeks ago and it was 538, I was asked to have this retested 2 weeks later all tests have been completed this month, so last week did repeat test and day 21, day 21 has come back at 63, which the nurse said is good and shows ovulation, however prolactin came back at 867. However this was done within an hour of me waking up and no walking.... now I’m in no mans land... waiting on consultant to review the results and after my first month of clomid I tell the nurse that I think I may be pregnant as tests are getting darker day by day to her response.... oh no we don’t want you getting pregnant, you will be at high risk of miscarriage.... xx
It honestly does make a difference. Ask if they would retest you later in the day to be sure or at least put it to them that it may be a reason. You levels are high but they're not sky high so hopefully nothing untoward going on. When I first started IVF years ago I had mine done and it was around 680ish, and the next one was 250ish.....just a blip.xx
Do you know what your TSH was? Might not be abnormal as such but not low enough....I got told mine ahould be under 2 and it was 4.69 so still normal but not right.xx
Thank you so much, both mine were tested first thing, so I’m hoping this is a factor. It’s like 2 steps forward, 1 step back, ovulate ✅ test result looking good so far✅ prolactin big fat ❌ xx
I'm hoping yours is just a blip!🤞 It was my clinic that asked my GP to prescribe me my meds quoting that for fertility my TSH should be under 2. I think I was just lucky that my GP was familiar with this information. However he did say that if I got pregnant he would refer me to an endocrinologist to get my meds right as pregnancy can knock it out! Good luck, would love to hear how you get on!xx
No, I wouldnt say so. I got told under 2 for ok, so wouldnt say particularly bad. Have you queried if they will test your prolactin again, Im hoping it may have just been a blip! It can even fluctuate with stress and as I mentioned having it done late morning/lunchtime can be the way forward as it is higher when sleeping - copied from the internet "The levels will vary over a 24-hour period, rising during sleep and peaking in the morning. Ideally, a person's blood sample should be drawn 3 to 4 hours after waking."xx
I’m going to call Thursday now on official test day to see what they will do with this prolactin result. Thank you sooo much I don’t know what I would do without you, you’ve really helped easy my mind. Just wish my test would get darker.... but 100% not retesting until Thursday xx
I’m going to call Thursday now on official test day to see what they will do with this prolactin result. Thank you sooo much I don’t know what I would do without you, you’ve really helped easy my mind. Just wish my test would get darker.... but 100% not retesting until Thursday xx
Thanks both for your advise, called again today to check my re test on prolactin after completing 4 hours walking its back to the 500 range.... another retest Friday but hopefully no more 867 levels.... thank you both so much x
Exactly what Cinderella said- never accept ‘normal’ always get actual values or copies of tests if possible.
I’m shocked that some clinics are so clued up about thyroid and others completely ignorant.
Your tsh needs to be below 2 ideally. ‘Normal’ for someone NOt TTC is under 4. You need to be much lower and especially if now pregnant.
What an awful thing for your nurse to say@miscarriage.
if they were worried about it 2 weeks ago they should have advised you not to TTC this month(!)
Thyroid tests should ideally be done early morning and prolactin a few hours later but I’m sure you can find some middle ground.
Vit E And vit b6 brings down prolactin, as does maintaining good blood sugars and avoiding stress as the article suggests. You can certainly do all those in the meantime. It may well be your recent worrying over the tests and results that’s given you a bit of a higher blip.
I can’t believe how insensitive my clinic are... your so right that’s what o said, that they advised to continue having scans and follicule tracking when knowing I was over 500...if my first test get darker the next 2 days I’m getting back on the phone and demanding to be seen, retested or medication especially is these tests are positive...thank you so much for helping. My clinic have nothing compared to this group. Xx
I can empathise - we have to be on top of our own health plan and chase them up all while trying to relax.
I hate that they do nothing to prevent or manage it but wait till you fail repeatedly before advising a new plan.
You are already pregnant so not sure what waiting for lines to get darker will imply except that you’ve had an early miscarriage if they fade .... 😢
I would try what you can to prevent it and get ball rolling with tests. At least find out what your previous results are in meantime so you have a fuller picture.
Your little one seems a fighter given your pregnant after so many things going wrong with this cycle!
I’m going to call Thursday now on official test day to see what they will do with this prolactin result. Thank you sooo much I don’t know what I would do without you, you’ve really helped easy my mind. Just wish my test would get darker.... but 100% not retesting until Thursday xx
Thanks both for your advise, called again today to check my re test on prolactin after completing 4 hours walking its back to the 500 range.... another retest Friday but hopefully no more 867 levels.... thank you both so much x
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