Last time I posted, Thomas was at home and we were waiting for Matthew to follow. All Matthew needed to do was continue to feed and grow. The hospital were increasing his feeds more and more but quite aggressively and he began to not tolerate them. One Saturday morning in October, we received a phone call from the hospital to say that Matthew's abdomen had distended so severely that they needed to put him on a ventilator and transfer him to a tier 3 hospital for potential urgent surgery. So far, one of the worst calls of my life.
Long story short, he needed a triple hernia repair and they thought that had fixed the problem. After nearly 4 weeks, he was then transferred back to our local hospital and within 48 hours he was discharged. After having him home for just 10 days, we could see his abdomen has grown again and his breathing looked slightly odd (tucking in under the ribs). We took him to A&E to be checked a few weeks back and he was admitted. The Consultant surgeon said that the previous hospitals hadn't actually got to the root cause of the problem and he needed to have a stoma to bypass his colon. He had the surgery and then two days later the bit next to the stoma prolapsed so he had to have emergency surgery to correct it. He got weighed yesterday and he had effectively not put on any weight in 5 weeks🤕I'm really hoping he turns a corner soon as I'm starting to get really worried. 😪 At 13 weeks old he's just under 1.8kg.
Thomas is thriving and doing really well which is great!
Come on Matthew 😟